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zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 3/3/2010 8:16 AM (GMT -6)   
Hi guys and gals,I am just having a terrible time with this radiation.When I get done with my treatment I am so tired I just barely can function.They gave me two meds to relax my bladder they turned my pee different colors.Well turns out I am allergic to both of them.Had two really bad reactions covered from head to toe with the most severe hives I ever had.I quit taking them and am back to (normal)haha . I will get back to posting in two weeks when my radiation is over! Thanks for the venting time always thinking of my PCa brothers.

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 nerve sparing by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-10
organ confined
extracapsular seminal vesicle involvement
lymph node involvement


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/3/2010 8:45 AM (GMT -6)   
Zach, sorry to hear of your struggles and the alergic reaction. Please post again when you feel able. It's always good to be in touch with my PCa brothers and know how you're doing.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 3/3/2010 8:45 AM (GMT -6)   

Zach

Sorry to hear about the bad reactions to the medications.  Sounds like you are back on track now!

Good luck with the rest of your radiation.  Hang in there and we will hear from you when you are finished.

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/3/2010 9:09 AM (GMT -6)   
Zach, so sorry to hear about the terrible fatigue and the allergic reaction! It's amazing how each person reacts to these things - some sail through with nary a problem and some seem to carry an almost unbearable burden!

Good luck ... we look forward to hearing from you in a couple of weeks when the RT is completed.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/3/2010 9:17 AM (GMT -6)   
Zach, sorry you are having the troubles with the IMRT, I had a terrible time myself and it was well documented here. Some men to and some don't, no way to predict ahead of time. I wonder if you were on pyridium as one of the meds, as it will turn your pee to a glowing orange color - stains anything it drips on, it easy to be allergic to that. Wonder if you were on ditropan for the spasms like I have been on for so long, its never given me any problems, but perhaps you are sensitive to that.

Hope you do better when this part of your journey is over. Please feel free to vent anytime. It's one of the privileges of being here at HW

Good luck.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/3/2010 9:49 AM (GMT -6)   
Zach,
Sorry to hear about your problems with radiation tx. If you started on 1/10 my guess is that you are very near the end of the tx. Hang in there and update us when you can.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 3/3/2010 10:23 AM (GMT -6)   
Zach, you're almost finished and the side effects should subside soon. Today is my 29th out of 39 sessions and the last few days I can really feel how effects build up. I'm going to ask Michael to send me his National Geographic magazine collection since I'm running out of reading material while on the "throne".

Rest up!
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/3/2010 10:40 AM (GMT -6)   
LOL Jake, they are in the mail. When my wife and three dogs and our cat see me sprint thru the house, they now know it is not for exercise. We could start a list,, you know your going thru IMRT when you scan the paper looking for specials on Charmin. You know you are going thru IMRt when---------- well you get the drift.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 3/3/2010 2:36 PM (GMT -6)   
Zack,
 
Sorry to hear you are having a hard time with the radiation, hopefully, it will be over soon and all the side effects will go away.  I just finished my 33 treatment today and have two to go.
I guess I am one of the lucky ones as I have not had any real problems.  Good luck.
 
Jerry1  
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/3/2010 2:52 PM (GMT -6)   
Zack, the countdown continues, and each day is one closer to the end, so keep slugging along.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 3/3/2010 9:10 PM (GMT -6)   
Zack keep the faith, sorry it has took it's told on you but your close to finishing hang in there!!!!!
Deerhunter Bucky
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see!!!!!!


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 3/4/2010 7:17 AM (GMT -6)   
David,it was pyridium and prosed which turns your pee a brilliant blue. Thanks for asking

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 nerve sparing by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-10
organ confined
extracapsular seminal vesicle involvement
lymph node involvement

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