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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 3/3/2010 10:42 AM (GMT -6)   
I'm just frustrated. I know reading David's journey makes me realize that others have it worse.
 
Nevertheless, this apparent bladder infection has thrown me for yet another loop. It has delayed my first PSA. Worse, I'm just feeling lousy. There is bladder pain, burning, and nausea, queasiness, reduced energy. The gains I made regarding incontinence have kind of dissipated.
I started cipro yesterday so I hope it kicks in soon. Meanwhile awaiting results of urine culture, probably tomorrow.
 
It would be difficult returning to  work if things didn't improve (but I would try).
 
Anyway,this is just a vent. I am again at the
downward point of this roller coaster where depression reigns.
 
End of vent
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/2/10


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/3/2010 11:12 AM (GMT -6)   
No problem, Mel, our journey are made of many dips and climbs. Hopefully when the antibiotics kick in, your overall feeling of wellness will return, and onward you go. Venting is an important benefit of belonging here. When you vent here, people listen, and somewhere, someone or several someones have already did or are doing what you are doing.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 670
   Posted 3/3/2010 11:31 AM (GMT -6)   
I hear you, brother
You definitely have a reason for the backtracking on the incontinence, so that's a plus (looking at the bright side). Hopefully all of this is temporary but still difficult while you are going through it.
My prayers for speedy improvement are with you
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09, 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 3/3/2010 12:32 PM (GMT -6)   
Mel, it happens. I went two "after catheter" rounds with UTIs (three total so far - knock wood). Being real careful about cleanliness helps (be generous with the wet wipes after every trip to the toilet, change pads if they are damp, don't wait for "wet"), as well as drinking "too much" water to keep things flushed out. Also be sure to keep your toilet bowl & seat clean - a daily wipe down with Lysol or the like. Otherwise you are saving those bacteria for next time. All that done, mine stopped, last one being 7 weeks out from surgery (knock wood again).

But the pain is a real show-stopper. In another post where I said peeing with a UTI will bring you to your knees, I wasn't kidding. Had to sit down to pee lest I fall down.

Hang in there, it gets better.

Post Edited (142) : 3/3/2010 12:10:26 PM (GMT-7)


MaxBuck
Regular Member


Date Joined Jan 2010
Total Posts : 75
   Posted 3/3/2010 1:21 PM (GMT -6)   
Bless you, man. Cipro is usually very fast-acting, so I hope it works like yesterday for you. Sucks in the meantime, though. Our thoughts are with you.
Dx at age 56: Oct 09; PSA 5.8, followed up by 9.9 two weeks later (reproducibility of test - ?)
Biopsy ind cancer in 8/12 cores: Gleason 8 (4+4)
open radical retropubic prostatectomy Dec 4 09
Post-op pathology: 56 g weight, cancer in 21%, Gleason 7 (4+3, tert 5); margins clear, no lymph node involvement (0/9), perineural invasion present, T2c N0Mx (but showed clear from distant metastasis in pre-op bone scan and CT scan)
Continence data: essentially no incontinence 9 weeks post-op
ED pretty complete: some erection possible but current non-functional


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 3/3/2010 3:13 PM (GMT -6)   

I'm wondering if my incontinence is causing the UTI?

I think I empty reasonably well, but there continues to be drip...drip afterwards. It's kind of like you pee but you can't get those last drops out. I go back, pee out a few drops, and 5 minutes later there are more drops. So, after awhile I just hold it back.

I remember having BPH where it was difficult to urinate and that was miserable. This is miserable too but it does not "feel" like I am retaining urine.

Meanwhile, the cipro is doing a number on my gut -- the big D. I have never had that before with cipro. Time to get on the yogurt!

 

Mel

 


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/9/10


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 3/3/2010 4:29 PM (GMT -6)   
At least in one case, mine did. I was trying to keep it down to 7 pads a day, and was letting them get wet (not really sopping full, mind you, but they were wet). I was trying to walk, getting hot, usual jock itch turned into a uti since everything was warm and wet - so I did myself in. Changed the house rule to damp = full, and haven't had that problem since.

More pads / more pain. Wasn't too hard a choice. (Sorry Jeff - wasting resources there).

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 3/3/2010 4:42 PM (GMT -6)   
Hey 142,
You're killing me. Al least tell me you throw them in your wood burning stove and convert them to BTUs.

Mel, Each morning after my shower I put on a layer of A+D Zinc oxide diaper cream. I put it on after my evening shower too. (Yes, I'm embarrassed to say I waste water resources.) I have not had any UTIs. Coincidence? Who knows?

By the way, make sure you leave the A+D tube on the sink, opposite where you keep the toothpaste. 'Nuf said.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11 5 months: Still 3 pads per day. 400-450ml/day
2/26/10 7 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/3/2010 4:44 PM (GMT -6)   
Mel
- when on Cipro - please avoid - milk products and vitamins and supplements with minerals - and/or calcium
- they nullify the effect of the Cipro - growing up I had to take twice as long dosages of the stuff since it took so long to kill the infections
- it was only in the last 5 years I was informed by another doctor to avoid (see above) certain things - now I only have to take one dose - so again - avoid milk, calcium and mineral products /supplements

take the yoghurt (large container -one for three days - like Astro Yoghurt - with real active cultures) - only AFTER the series has been completed ( if it is a 10 day supply - you take it for ten days - no ifs and or buts) - so you do not develop super-bugs

-also - keep a clean routine - but try not to overclean the area - you can cause abrasions that can allow nasty stuff to get into your body -

sincere very knowledgeable hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/3/2010 4:55 PM (GMT -6)   
Mel - a quote from healthsquare.com

..............
How should you take Cipro?

Cipro can be taken with food or on an empty stomach. Cipro should not be taken with dairy products (such as milk or yogurt) or calcium-fortified juices alone; however, Cipro may be taken with a meal that contains these products. Drink plenty of fluids while taking this medication to prevent crystals from forming in your urine.

...............
from wikepedia.com

Concurrent administration of ciprofloxacin, with magnesium or aluminum antacids, sucralfate or products containing calcium, iron, or zinc (including multivitamins or other dietary supplements) may substantially decrease the absorption of ciprofloxacin, resulting in serum and urine levels considerably lower than desired.[109]

.....................

hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/3/2010 4:59 PM (GMT -6)   
bronson - that's some good info there - didnt know any of that, thanks even though it was directed towards me, I made a note of it
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 3/3/2010 5:10 PM (GMT -6)   
David - you should have seen the impact on me - have taken antacids before meals all my life for reflux & the like, so when they started me on heavy antibiotics, had to reschedule life as I knew it. How many hours after pill a for pill b that conflicted with pill c that didn't like fruit juice ......
But fortunately I knew the interactions up front.
Amazing how much we forget when we try.

Bronson - good catch.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/3/2010 8:28 PM (GMT -6)   
sorry David - I am confused now - I thought I was responding to compiler/Mel's use of yoghurt /yogurt to combat diarrhea -

"bronson - that's some good info there - didnt know any of that, thanks even though it was directed towards me, I made a note of it" - or should that have been "wasn't" ?


I was raised on antibiotics - as a sickly allergic child it was the best remedy at the time (so they thought) - in adulthood (with grey-ish teeth due to effects of tetracyline - causes transluscent enamel) I nearly became one of the "20th century disease" victims allergic to everything around me - and it took a lot of balls to say - enough is enough - and stopped all antibiotics and other nasty stuff ( I would be on 3-4 prescriptions a year just to keep breathing) and it took a long time -about 3 years to rebalance myself .... but I digress...

as we have all learned here in this wonderful website / forum, the key factor to survival is information - information to use to help cope with life and better our lives - and that information can also be used to 'kick us in the arse" and to say enough-is-enough - and choose a different path -

Mel - your path is a struggle and some of it is internalized from previous experiences and maybe, just maybe, you have worried yourself /run yourself down so all those nasty creatures living inside all of us rose up and you got a UTI - from your emails you seem very festidious and not prone to infections.

Rest - take your meds - mediate or dream - give your body and your soul a break - if you are a reader, this may be a good time to get lost in a book.....

I hope I don't sound too authoritative , I mean this all very sincerely - since I have been down that route myself in the past.

antiseptic hugs :)
BRONSON

p.s. yes, I do like my () and / and ... it is sort of the way I talk !

...
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............

Post Edited (tatt2man) : 3/3/2010 9:33:39 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/3/2010 8:29 PM (GMT -6)   
bronson, its me. i meant to say your posted wasnt directed towards me, but thought it was useful. think the pain is screwing with my mind too, sorry
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/3/2010 11:34 PM (GMT -6)   
zzz.. no prob david - no prob at all ... I changed my sincerely to its correct state - I combine words when I am trired ...zzz
huggs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 3/4/2010 9:09 AM (GMT -6)   
Mel, I hope you are better and realize you will have good days and bad days for a while. It is perfectly normal to vent. My friends tell me I should win an award for venting. Before PC, I was never sick, never had to worry about my health, etc. except for some high cholosterol.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
20 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better

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