Welcome, new friend- Piy

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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/3/2010 4:33 PM (GMT -6)   
In another thread, Amy (Piy) posted for the first time. Welcome to the Forum, Amy. She said:

Missyj - This is my first post to this forum. I have been a lurker for quite a while and have been meaning to register and tell our story, (I'm the wife). Your post compelled me to register and reply.

I don't know all of the details of your husband's treatment so far but I can see from your signature that he was diagnosed with advanced pca. I would think the most important thing would be to ensure your husband is seeing an Oncologist who specializes in Prostate Cancer. There are a handlful of top-knotch pca oncologists here in the USA, not sure about UK. My husband had a recurrence after his RRP in October '07 and we were referred by his surgeon to an oncologist in our city. Although we were told that this Dr is very highly regarded, (and I have no doubt that he is good), he does NOT specialize in pca and his approach seemed to be pretty cookie-cutter: hormone treatments, then chemo, then you die. That was pretty much his message. We decided to take a more proactive approach to treatment and my husband is now seeing one of the top pca oncologists in the country. It is my understanding that some of these doctors have had some success with treating patients with advanced pca. I know the list of doctors has been posted here before with contact information, but not sure by who. Perhaps someone who knows will chime in. But I do know that the following are some of the most highly regarded pca oncologists in the USA:

Dr. Stephen Strum

Dr. Charles "Snuffy" Myers

Dr. Robert Leibowitz

Dr. Mark Scholz

Perhaps there are some in the UK that you can consult with to determine additional treatment options.

Best of luck to you and your husband ... don't give up!!

Amy

Piy
Regular Member


Date Joined Mar 2010
Total Posts : 145
   Posted 3/3/2010 4:58 PM (GMT -6)   

Thanks James -  I will update my profile and signature to include my husbands stats.  Unfortunately I don't remember all of them off the top of my head.  He was dx just after his 48th birthday in June 2007 with a Gleason 7, upgraded to Gleason 9 after surgery.

This site has proved very informative and helpful.   Research is huge, thank God for the Internet!  :-)

Thank you,

Amy


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 3/3/2010 5:09 PM (GMT -6)   
Welcome aboard, this a great place with great people.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/3/2010 5:24 PM (GMT -6)   
Amy, welcome to HW Prostate Cancer. Hope we can be a big help to you and your husband. Support and care here is very real and sincere. Hope you continue to post your husband's PC journey with us.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time

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