Just sitting here sore

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/4/2010 3:17 PM (GMT -6)   
Minor vent, I suppose.  It's a beautiful day out, low 50s and sunny.  Made it to 2 PM before I had to take my first pain pill today.  Tuesday's surgery have left me pretty sore, even two days later.  It's definitely the second catheter causing all the extra pain, as it's a foley and its going right through the middle of my urethra and bladder neck, which is where the dr. did his work.  According to him and the OR nurses, it was extremely enflamed to begin with, assumed to be post radiation damage.  Guess that is making it sorer than it would normally be.
 
In theory, this 2nd cath might be able to be removed either Friday night or Saturday morning.  My wife was given the syringe to do that by the doctor, and she has had plenty of experience in her normal work as a nurse.  Will have to see how I am doing by then, if we are not sure, will have to see the Uro on Monday when he is local to me and get his opinion.
 
In any event, I am honestlly sick of the whole process, PC and all.  Sorry to say it that bluntly.  When you think back that I got my dx. in August of 2008, hard to believe I am still fooling around hurting like this, with two stupid catheters in place at the same time.
 
My spirits are down, but I am still hoping this time, it will work, and I can be free of the tubes once and for all.  Then before you know it, will be soon time for my 2nd reading PSA post SRT.  I need to see something good there.
 
Sorry for the mild vent.  Sometimes hard to pass all these long hours alone at home.  Only so much I can do to stay busy.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 3/4/2010 3:22 PM (GMT -6)   
David,

Never be sorry for venting...it is a good thing. Hopefully as the rare nice winter days actually take us to spring, all of this will be a memory and you can get back to where you were before 08/08.

Wishing you well,

Joey G
Age -57; Diagnosed 10/05 PSA 13.4 GS 9 Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09) (Pomegranate???)
Looking to take next steps soon
Hoping to qualify for salvage cryo or radiation


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 3/4/2010 3:28 PM (GMT -6)   

Having a little "Pitty Party" for yourself every now and then is good for you. Havens knows you deserve one...

Go outside and get some natural vitamin D and take the rest of the day off.

 


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 3/4/2010 3:34 PM (GMT -6)   
If anybody has reason to vent you do and besides it's healthy. Try not to get down on yourself (easy for me to say right) it will only make your pain feel worse. Look out the window and daydream about the motorcycles. Heal fast buddy.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/4/2010 3:54 PM (GMT -6)   
Thank you Joey, and Steve, and Neal, of course. Don't like to think of it as being a pity party, but it may look that way to an outsider. Mostly pain talking right now, sometimes hard to keep a positive thinking trend going on. It's just been one thing after the other, as you all know.

Thanks for the continued support here, means more than many realize. Trust me, and I have said this many times before, I take easily as much as I give here.

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/4/2010 4:05 PM (GMT -6)   
I feel your pain (not quite as much). Sitting here after a bladder spasm. Your post surgery pain has me worried about my upcoming surgery. I have a larger catheter than usual since they dilated me on Monday. Guess they wanted to keep it open until the surgery. But, this one is really uncomfortable. Along with the spasms, life ain't good here in sunny Hawaii either. I have been wondering how common this scar tissue problem is. My doc says the tissue closed way to fast after my first dilation. Sure sounds like yours. I am glad only for the fact that my PSA is low enough to delay the radiation. The Urologists feel that it would just complicate the scar tissue problem right now. The radiologist agrees. I guess you and I are a lot alike. I don't like pain and am not afraid top take the pain meds. Unfortunately even with the meds the pain still gets through. I really hope this surgery does the trick for you and that I can follow suit with mine. I'd also much rather be worrying about PSA numbers. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
* 03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place. Surgery scheduled for 03/11.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/4/2010 4:14 PM (GMT -6)   
squid, due to my ongoing problem with the closures and scarring, that is exactly why my radiation oncologist insisted to my uro/surgeon that i have a SP surpapubic catheter installed just prior to starting radiation, as a pre-emptive strike. The logic being, the area is already problematic, and prone to swelling issues, and the amount of radiation I would be getting would just make matters worse. My uro realized that a bladder neck closure in the middle of radiation could cause a serious emergency situation with no easy answer, so in the end, he saw the logic of the SP. At my radiation clinic, I was the first ,and perhaps still only person, they did IMRT on with a SP cath in place the entire time. I had the op for the cath done on Oct 1 and started radiation on Oct 5. Since my radiation has long been completed, several months now, my uro surgeon is still agreeing on the logic of doing it that way, now that he sees that I am still having post radiation collateral damage to such a tender area. of course, just because this was needed for me, doesn't automatically mean it has to be that way for you. that's between you and your medical team. i would advise that your radiation oncologist and your uro talk openly in advance about your closure/blockage issues.

with both caths in place, been having many severe spasms today, but was expecting that, having just been through this scene 5-6 weeks ago. it's just got to get better.

from what i have been told, we are in a group that ranges from 1-5% at the most that have this as an ongoing chronic problem.

hope you hang tough too, my friend. we are definitely in the same boat so to speak.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 3/4/2010 4:19 PM (GMT -6)   
Hi David,
 
Vent all you want. That is one of the reasons we are all here; to listen, help, console and sympathize. I feel your frustration and your sense of hopelessness, but please don't  loose hope, things will have to turn around for you sooner or later. I just can not believe that you have come this far and endured so much for nothing. THINGS WILL GET BETTER SOON.
 
Your friend,
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/4/2010 4:30 PM (GMT -6)   
DAVID - vent away - release that steam that builds up inside - metaphorically speaking - flail away like buckshot hitting the side of a barn door - you deserve to VENT all you want ...
did some distant prayers for you and healing imagery - I am into that stuff - when I was sick with other things / and with my first companion - would draw an image in my mind of the area to heal - picture it as it is - and then change the picture into what I wanted it to be - healed up and back to "normal" again..... even though it is focusing on the source of pain and sadness - projecting that image out into the ether can help you distance yourself for a brief time away from the physical pain and give yourself a break..
....
I expect that some would think JOB got off easy when he faced his trials - and at times it makes no sense - but as you already know - you are loved and cared for by more people than you will ever know ( I am sure the lurkers are saying silent prayers and wishes too)

gentle healing hugs
BRONSON

.......
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis
location: Peteborough, Ontario, Canada
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/4/2010 4:44 PM (GMT -6)   
mag, it has to be for something, that's what i keep holding on to, all this endurance and fight, its got to be worth it in the end. thanks.

bronson, as usual, thank you for your kindness. just been building up for a few days, even before the surgery. the entire routine was just getting a bit old. suprised my wife is as patient as she is with all of this going on. she's sees much worse every day working with the elderly and with re-hab patients, then she has to come home to what seems like the perpetual patient. that part angers me, as i was always the strong one.

david
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 3/4/2010 5:21 PM (GMT -6)   
David, hang in there. As miserable and dispirited as you feel there is always hope and a good chance things will get better.


Pulling for you in chilly Florida,



steve

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 3/4/2010 5:57 PM (GMT -6)   
California good vibes sent your way just now. For me, my favorite oldies spring me out of the blues. Just finished listening to the Beau Brummels, Four Tops, Leonard Cohen and I'm 18 again... well with arthritis, psoriasis and an occasional drip... but in my mind I'm there again.

Take care,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 3/4/2010 6:03 PM (GMT -6)   
You go right ahead and vent away David for we are all on your side. Raging against the world can be a great release, far better than keeping things bottled up. It may not help the inflammation and pain but it does feel good when its done. I can just see that foley tube chaffing against that red raw tissue ........ it makes me wince just to think about it without having to actually endure it. Probably feels like a few of those sewer lobsters you mentioned on chat raking away at your insides.  But you shall endure and recover. Take care,
Bill

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/4/2010 6:04 PM (GMT -6)   
Vent me arse! That's not a vent. Hardly a mild grump. And, after all you've been through David, on the entitlement vent meter it's a positively sunny assessment of your situation.

Sorry friend, if you want to have a vent you'll have to do better than that mild excuse.

Two other comments.

One, it sounds like you're playing the 'don't take the pain killers' game. That line about making it to 2 p.m. Haaaaarumph! You know to take them before you need them, to keep on top of it. Listen up! 'Nuff said.

Two, I'm sure it must be boring doing nothing. Especially after so long. I'm at the office. Been here since just after seven. Dealing with banks, auditors, all that sort of good stuff. Right up your alley. Pity you aren't closer by and we could take turns being Chair of The Board here. The pay is exactly what you get now --- not great, but there is free coffee. It's well below zero though. Tonight I'll go for a long walk along the frozen river. The river is about an eighth of a mile wide, and the ice several feet thick. At least I hope it's thick. If you want 50 plus, you'll have to stay where you are.

Cheers, Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 3/4/2010 6:19 PM (GMT -6)   
I'd say more like a whine my brother. lol. I llove you man. Stuffs gettin better. Stuffs gettin better everyday
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 3/4/2010 6:41 PM (GMT -6)   
Glad to here somebody else is feed up with pc Crap and what we go thru. Let 'em have David VENT ON my man!!!!!!!!!!!!!!!!!!!!
DEER HUNTER, Bucky
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see!!!!!!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/4/2010 7:23 PM (GMT -6)   
David: Rant and Vent all you want. Sometimes it helps to express those frustrations and dissapointments and even some whay is this happening. You have been a rock during this process and we have been the ones that have felt the frustrations for you. Buddy you know that we are here to help you and if being a ear or eye to see or listen to your battle and give you that support it gives us strength and the priviledge to be able to do just a bit of something for you.

We on HW have been helped by you so very many time. We are honored to have you as a friend.

Cajun Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 419
   Posted 3/4/2010 7:28 PM (GMT -6)   
David,
I have been a little down this week also since my sling surger does not seem to be getting results I had hoped. That said I take a couple of words from my late father in law who dealt with colon cancer for some time.......his line "every day is a holiday"....even while he was fighting the disease. You are in my prayers every night.
64  year old male in excellent physical condition.
PSA jumped  3 to 8 in one year
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP,  7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Largest tumor nodule: 1.3 cm. All margins negative.
Incontinence & ED. Dry nights , no control during day.
Imipremine and detrol, Phy ther. and kegals no help.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Incontinence symp. index severeity score=22
Rec. for sling surgery. Dr. does mostly InVance.
Researched and decided on either AdVance or Virtue.
Virtue sling surgery 2/3/10 NYU med center by Dr. Victor Nitti
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/4/2010 8:56 PM (GMT -6)   
Thank you guys, for all your heart felt and kind responses. The support here is overwhelming sometimes. I think of each of you, and know that we all have our own private battles, our own tough moments, sometimes we win, sometimes we lose. If I didn't believe that it could get better, I would lose all hope, but I keep struggling forward, hoping that there is light somewhere just a little bit further.

Today was just a rough day pain wise, and yes, taking plent of meds, not a masochist, but meds can only do so much. The spasms with a double catheter would have to be experienced for you to understand how they get me so unglued. After you have a couple of dozen while awake during the day, you start to lose it, I apologize if that is weakness, but I have "x" amount of pain tolerance, and once I used that up, I am in a weakened state, and then you start not to think real rational. I hope that is a normal process.

But I do believe in my heart, that we are in this together, that what keeps this group going onward. I have been in such a downward slump the past few months, its hard for me to think I can of any help to anyone, but again, I try to think beyond my own situation. Certainly not the only one suffering here, I don't have a monopoly on that.

Perhaps tommorow will be a better day.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 3/4/2010 9:10 PM (GMT -6)   
David,
You have every right to vent your frustration with the long painful journey you have been on. I'm praying that this surery is your last and that your PSA will be undetectable. You sure have had enough.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/4/2010 9:53 PM (GMT -6)   
Thank you Ed, I am really hoping this is it, at least for now, longer than now would be nice too :)
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/4/2010 10:08 PM (GMT -6)   
While I may tease you, David, I'm with EdC all the way on this one --- beautifully said, Ed.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 3/5/2010 6:52 AM (GMT -6)   
Hang in Dave! All will be well.

regards
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.
> Sept 09 - 3month PSA - Undetectable!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/5/2010 10:22 AM (GMT -6)   
I am hanging the best I can Ike, even if doesnt sound like it
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 3/5/2010 10:32 AM (GMT -6)   
David, I hope today is a better day for you. Sorry for my dark humor. I cant help myself. You are an amazing warrior and battle after battle you never lose hope. Hang on baby. P.S. Its friday
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

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