Saturday Morning Update: The Death of Catheter #13

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/6/2010 9:48 AM (GMT -6)   
Well, the dr. said to leave the foley in for a min. of 3 days after Tuesday's surgery, then my wife could remove it.  We let it stay in 4 full days, just to be safe and give one more day of healing time.  Woke up this AM, and it was my idea to stand in the shower for the big removal.  My wife attached the needless syringe to the catheter port, and I asked her to extract slowly like my dr. does  (causes less back pressure pains insided), well, hydraulics worked on their own, and the pressure of the saline filled the syringe on its own, pushing back the plunger.  She detached it, emptied it, and re-attached to make sure there was no more in the balloon.  2nd syringe only got a few drops.
 
The standing is a great idea, and being in the shower  stall makes it easier to clean up.  She said, you pull it out, unless you want me to.  So, remembering how the dr. did it last time, I slowly but smoothly pulled it out, kind of finger over finger, in about 4 weird, but not painful feelings, the nasty thing slipped out of my urethra and onto the floor of the shower.
 
What a sigh of relief.  For the record, that was the shortest lifetime of any of my 14 catheters, this bad boy only got to stay 4 days.
I still have the fully operational SP catheter #14 in place.  In a week or so of additional healing, we will start testing the bladder neck by plugging off the SP and see what natural ability I have to pee in the normal manner.  If it works, great, if not, the SP cath is in place and will continue to work as needed, avoiding any emergency and painful situations.
 
Still hurts like hades down there, that whole bladder neck region feels raw and enflamed as they described, but hopefully, as the day, and weekend goes by, I will be back to more managable levels of pain.
 
So far, so good, have to be thankful for each small step in the long, involved process.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 3/6/2010 9:56 AM (GMT -6)   
Fingers crossed
Alfred

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/6/2010 10:01 AM (GMT -6)   
and toes crossed, thinking about including the eyes.....nah......nevermind... smilewinkgrin eyes
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 3/6/2010 10:12 AM (GMT -6)   

Here's hoping........

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/6/2010 10:15 AM (GMT -6)   
Everything I've got two of, I've got crossed for you, David.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/6/2010 10:25 AM (GMT -6)   
Thank you, Alfred, I sweated this part, but it went smooth

thanks, james, nah, no need to go cross eyed

skeener, thanks too, another item to mark done on the check list that i am hoping will free me

sheldon, thanks for all the crossing, but don't try walking about like that, you are liable to tumble and hurt yourself.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/6/2010 10:45 AM (GMT -6)   
Great. Hope this time it works. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
* 03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place. Surgery scheduled for 03/11.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/6/2010 1:35 PM (GMT -6)   
Squid,

And this is my mid-afternoon report. Just by removing that foley from the bladder neck and urethra, I would say my pain so far today been reduced 60-70% from this time yesterday. Actually drove for the first time in a week, went to a few stores and ran some errands. Home now, tired and sore, but what an improvement. Spasms today have been fewer, and perhaps 4-5 on the pain, instead of 8-10 back to back ones like I was getting the past few days.

I will speak to my uro Monday, and should be able to start experimenting turning the SP cath on and off, and see how well the bladder neck repairs are working. If it hurts too much ,or it it blocks, I still have the safety of the SP in place. That's a big piece of mind when you are dealing with these chronic stricture issues.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 3/6/2010 1:53 PM (GMT -6)   
Dear David,

I am so glad that you have good progress on your catheter removal. I see the hope of healing and recover and pain-free is in the very near future. I cross my finger and wish everything will go to the good direction. Lots of pray for you.

Enjoy the beautiful weather!

Jennifer

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/6/2010 2:07 PM (GMT -6)   
Thank you much, Jennifer. Sunny skies and about 65F here in western SC today, suppose to be even warmer the next few days too.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 3/6/2010 2:20 PM (GMT -6)   
That's what I'm talkin about!....now on to Part II. Hopefully, second verse, same as the first!
 
Arnie
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/6/2010 3:05 PM (GMT -6)   
Yipee you're moving forward. . .
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2839
   Posted 3/6/2010 3:31 PM (GMT -6)   
David - lets here it for small steps !! - and this time, hopefully ( with everyone on this HW site being crossed for good luck) four steps forward and NO steps back.

Maybe you could star in your local St. Patrick's Day parade ( are there any Irish down there?) and you could be the Saint himself driving the snakes out of South Carolina !!

gentle hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/6/2010 3:39 PM (GMT -6)   
David, so glad to hear that the "twin" is out...and that you are feeling so much better.

Sheldon...everything you have two of ... does that mean you're crossing your ...aw, forget it.

Be well guys.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3731
   Posted 3/6/2010 3:44 PM (GMT -6)   
David,
I found myself inadvertently kegeling and clenching my knees together when I got about 1/4 of the way into your post.
Let's hope thirteenth time is the charm. Drink Drink Drink.
Jeff

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 246
   Posted 3/6/2010 4:36 PM (GMT -6)   
David . sounds like everythings going in the right direction best of luck!!!!!!!!!!!!!!!
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see!!!!!!


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 3/6/2010 4:39 PM (GMT -6)   
David,

OK, there's one down and some progress. Your story about the catheter falling out reminds me of what happened to me. They filled me up, deflated the baloon, and.....my catheter came flying out in a gush of water like a baby Alien out of a space traveler. It lay there writhing on the floor, the nurse covered her mouth in horror, and said she'd never seen anything like that. I'm still haunted by that and still lay awake nights wondering what in the hell she meant.

Continued wishes for good luck,

Steve

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 3/6/2010 4:42 PM (GMT -6)   
I hope 13 is the charm. At first, I thought why would he do this on a Saturday when the doctor's office is closed. Then I said this is #13 and his wife is a nurse. You are in good hands. Again, I hope this works and hope you are having a good weekend. Nothing but sunshine here in Houston.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
20 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 3/6/2010 4:53 PM (GMT -6)   
Everything crossed for you here as well David. I hope this one goes smoothly and life can return to normal(or as normal as our lives can be). Watching for the updates.
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/6/2010 5:36 PM (GMT -6)   
Arnie, thanks, I am real systematic by nature, so on my check list, this is one for the record book

Thanks and hugs, Carebear

Ohio, you will never change, I had already read the most recent Zufus posting, and complimented and thanked him for it, no one has ever denied the guy is a warehouse of harder to find PC knowledge.

Bronson, thanks as usual, you are a kind fellow. Well with a last name of Riley and wife's maiden name of O'Neill, we are pretty Irish. My mother, though a Brit, father was from Belfast, and my Great Grandfather on my father's side came over from Ireland during the free land grab in OK, as in the movie "Far and Away". The family farm for generations was a quarter section, 160 acres near t he Kansas border. One of the largest Irish celebrations is in Savannah GA, outside of NYC or Boston, but its about a 4 1/2 hr drive for me.

Sephie, thanks, my best to you beloved John. Prior to this morning, my two catheters would cross each other natually, lol.

Jeff, nah, todays event was just a repeat of many a cath removal, my wife did great on the syringe part, and I learned by watching my uro remove two former caths from me, telling you, or for anyone new, have your caths removed while standing up

Deer Hunter, thanks my friend, you been there for me a time or two already, appreciate it

Steve, there is so much lubricant on a cath, to aid in the insertion side, it works well on the removal side, this lil fellow only lived for 4 days, but bore, did the nasty thing put the hurt on me during that time. Hope that is the last foley cath I have to think about for a long long time
After over 5 months, the SP cath really is just a minor bother, I can understand why neuro patients and others that have them for years get use to them. You would think it would hurt coming out of a hole in your stomach, but it really doesnt as a rule

rob, if my wife wasn't a very experienced nurse, this would have never happened today, but didnt want to suffer two more full days till Monday, plus t he doctor was fully confident in her skill level.

Thanks, my good mate Billy Mac. I want to be normal just like you. (Geez, can't believe I said that, lol)
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 3/6/2010 6:39 PM (GMT -6)   
David, I am praying that this time you get to stay open. (so to speak) Very pleased that the removal was easy for you.

Cajun Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/6/2010 6:41 PM (GMT -6)   
Big thanks, Br. Jeff Go Saints!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


craig10
Regular Member


Date Joined Feb 2010
Total Posts : 115
   Posted 3/6/2010 6:50 PM (GMT -6)   
purg-- sounds good-- rooting/praying for ya!
age 55, married, kids and grandkids
2008 psa 4.7
2010 psa 5.5
biopsy 2-10 -- 3 of 12 samples positive ca 60% 25% and 20%
perineural invasion not seen
location rt apex
3+4=7
waiting for second opinion--
negative prostascint/mri fusion for ca in body scan, pelvic scan, and neg scan in pelvic lymphs or vas def's bi-lat
meeting next week with surgeon at City of Hope...


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/6/2010 7:11 PM (GMT -6)   
David,
I mentioned the SP cath to my uro during my procedure last week. He says to hang in there for now. I will bring it up again on Monday during the pre-op chat. I have a bad feeling about this. The two uros I talked to both seemed to think that for now this is no big thing - not uncommon. I have a great doctor so i will just keep the faith and see what happens with the surgery. My feeling is that they are cutting out excess scar tissue that formed after the reconnect during surgery. I would imagine that scar tissue will again form after it is cut this time. It seems like an endless cycle. My incontinence was almost zero before the stricture problem. Now the Uro is telling me that the stricture could have helped with the incontinence problem and when he opens it up and cuts out the scar tissue I might go back to the great but hard to control flow. Saw your note on a previous post about your initial surgery. Our cases are so similar it is amazing. I spent 6 hours on the operating table and close to 4 hours in recovery. My family thought I was dead for sure. The only thing that kept my wife going was a call from one of the surgical nurses every hour to say I was doing fine. My surgery was open also. The Uro said all along that the reconnection was "extremely difficult" because of the position of my bladder and my fat gut. I feel for you and all the suffering you have dealt with so far. I really don't want to follow in your footsteps any more!!!! Get well. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
* 03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place. Surgery scheduled for 03/11.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 3/6/2010 8:14 PM (GMT -6)   
thank you craig!

squid, i dont want you or anyone else to follow my footsteps. my surgery was difficult because they stated that I have a very deep and narrow prostate bed, it was have excluded robotic surgery even if i had chosen it. because of the difficulty, it was hard for the surgeon to make the bladder neck/urethra connection, one of the most complex parts of the surgery, and then add my body's annoying way of over scarring when it heals, and bingo, you have a chronic problem at play.

one reason my surgeon isnt eager to eliminate the SP cath, is that it works well, and he knows that I know, that it was a very expensive hole to put into my bladder, I figured that day surgery including hospital and surgeon to install the SP was above 15,000. So I don't want it closed off randomly only to wish a month later that we hadn't shut it down. all good things in time.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days

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