A "Must See" location for the GFMPH Tour.

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Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/6/2010 11:56 AM (GMT -6)   
Guys,

This place has to be included in the next GFMPH Road Tour. It is located in Collins NY.
I can't wait for spring so I can visit this Must See location . tongue

Enjoy,
Jeff

GFMPH = Good For Men's Prostate Health)
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11 5 months: Still 3 pads per day. 400-450ml/day
2/26/10 7 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 3/6/2010 12:04 PM (GMT -6)   
I need to go there since I seem to have 'lost' mine or maybe it went there on it's own Road Trip?
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
 
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
 
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
 
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
 
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
 
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 20)
 
First PSA test since surgery on March 25th.
 
Next appointment with the surgery Doc is April 13.
 
.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 3/6/2010 12:21 PM (GMT -6)   
This is perfect!

Can we all do a karaoke version of "My Enormous Penis" when we get there?
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/6/2010 1:30 PM (GMT -6)   
One of the great Weiner signs of all time, hope and inspiration for one and all. When was the last time your weiner had a smile like that on its face?
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/6/2010 3:11 PM (GMT -6)   
This place is sort of on the way to the many Western NY wineries and about 1 hour from Viagara Niagara Falls, a classic sight-seeing location.
(If you are a nature lover it is near Zoar Valley -one of the few places on the continent with primal forest. Awesome cliffs and many waterfalls. On the 3-4 hot days we get per year, you can spend the day walking up river with it's crystal clear, ice cold water and let the water cleanse your whole body. Magic. Definitely GFMPH.)

Hey JB,
Now you have a reason to fire up your bike and head north. Who knows what you might find?

David,
I'm pretty sure the last time mine was smiling like that was July 20, 2009 - the day before my surgery. (229 days - But who's counting.)

Paul,
We can all stand in the lot and sing. I relish the thought.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 3/6/2010 3:14 PM (GMT -6)   
You have to wear rubber pants. Can't contaminate that water with leaky weiners.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/6/2010 3:17 PM (GMT -6)   
Jeff:
My initial response :) - "silly pecker"

Now all you need is to find the time tunnel for mr. happy since some of us have regrown their foreskin after surgery
- I originally lost my foreskin at age four - nice Dr. Schulman, he did a good job .. he would not be pleased to see it has grown back... oy vay !
(hopefully trimix will help reverse the effects)

as I say in my sign off on the gay chat sites,
hugs and tugs

BRONSON

(no offense intended)
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/6/2010 3:30 PM (GMT -6)   
Hey Bronson
No offense ever taken! You brighten my day.
I'm confused. Why would anyone be offended by Hugs and Tugs?

Hey Goodlife,
The the river flows so quickly and has so many waterfalls that all evidence of a 350ml leak is washed away. (As long as you avoid asparagus) If not, people will just assume a bear did it.

cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 3/6/2010 5:17 PM (GMT -6)   
New york, isn't that the state where Elliot Spitzer's cavorting with a ********** was actaully a HIGH POINT in the recent history of political ethics?


PS I can't believe the site zapped that word.....

Steve

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/6/2010 7:45 PM (GMT -6)   
Jeff-

In gay chat sites and profiles , sometimes gay guys flirt in their messages by suggesting on saying goodbye, they hug and give one another a playful little tug on mr. happy ...

-I will leave that up to your wife ! :)

platonic hugs

BRONSON ( and Steve)
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............

Post Edited (tatt2man) : 3/6/2010 7:35:02 PM (GMT-7)


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/6/2010 7:50 PM (GMT -6)   
Paul: When you start the voicing for the song...Remember I am a Bass II...:)

Jeff 2 Thanks for the post... ROTF

Cajun Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/6/2010 8:25 PM (GMT -6)   
Steve,
Collins is so far from NY you'd think you were in a different country. They do take American money but things are much cheaper. Elliott could not find anything that cost more than $100 - even a house.

We could do a rap video in the parking lot without disturbing anyone. Just deer.
It's 10 minutes from the Gowanda Reservation too. Cheap cigarettes and gasoline.

Bronson, I got it. I was just pulling your chain. ;-).

Jeff, too - the Leaky one.

cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 3/7/2010 12:42 AM (GMT -6)   
Well, I know this.....that the Ethicis Committee is investigating Charles Rangel and so far they haven't found any.

Hey, Collins sounds like a nice place.

Just picked up my daughter in Tampa, home from West Chester U. for spring break. Otherwise would never be up this late.

Steve

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/8/2010 10:26 AM (GMT -6)   
Steve,
That whole western NY area is very interesting. Its isolation and horrific snow from two lakes keep the outsiders and industry away. The state prison located there adds quite bit to the economy by employing locals. Vegetable farming is the mainstay for the rest. With Zoar Valley, Gowanda, Eden Valley and at 2000 ft with no industry, the skies are magnificent. Poor, but magnificent.
When people think of NY they picture NY City. Collins cannot be further from that image. But it does have something NY can never have: Wienerville.
Jeff

I just heard that one of our members is a gourmet chef! Definitely Chef Worthy. I think he and his guest need to visit the Rochester Area for a GFMPH weekend.
I make a mean chocolate truffle. What food pairs well with that?

Jeff

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/9/2010 7:00 AM (GMT -6)   
Jeff:
That would have been an easier do when we lived in Toronto. Often Rochester is thought of as Toronto's sister city south of the border and across the lake - a bit more difficult now we are in rural Ontario surrounded by sheep and cows... lambing season is coming up - looking forward to do some nice photo research for more artwork - thanks for the compliment.
:)
hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............

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