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seaofpee
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 3/6/2010 1:30 PM (GMT -6)   
Thank you JB71. I have been using the tenas and i think they are better than the depends. they seem to stay up better and not ball up. 6 weeks post her to, ready for a vice grip. My patience is thin but my pants are thick, still can't wear my wranglers.
Rich
First surgery October 09, that's when they found psa of 5.4
December biopsy  gleason  7  3+4
January 20 rp
psa 2 weeks after 0.06 Thank God.
I feel blessed.  The surgeon said the cancer was starting to come out of the prostate.
ed. still there no progress uro says pump will help
age 58
cialis caused 3 day headache
surgery done in Denver


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 3/6/2010 8:52 PM (GMT -6)   
S.OP. I'm down to my last Depends so I have no choice to buy some thing else (tonight) soon, but for sure, no more Depends.

Someone needs to re-design these overpriced pieces of crap.

I'll get back to everyone with my Tena results.
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
 
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
 
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
 
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
 
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
 
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 20)
 
First PSA test since surgery on March 25th.
 
Next appointment with the surgery Doc is April 13.
 
.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/7/2010 7:09 AM (GMT -6)   
Hey JB and C of P,

Have you tried the CVS variety? I have good luck with them and I can stuff them too. Of course our sizes might be very different. Also, I now have a very short nozzle so it always remains in the target absorption area. At least that's one positive aspect of this ordeal.

Jeff (the leaky one)
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11 5 months: Still 3 pads per day. 400-450ml/day
2/26/10 7 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


Buzzdriver
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 3/7/2010 10:15 PM (GMT -6)   
All:

Having about a year's experience now with leaking, some days good, some days bad, and having tried all the brands mentioned - I've now gotten to the leak level that a "pad" works as well as the pull-ups, and doesn't tear my skin up like the underpants do - but for days when I'm just really leaky - I've been using a product called AlphaDry - it's an external condom catheter style device with it's own reservoir. You have to get the right size, but it beats taking three sets of pull-ups or 5-6 pads to work every day. Anyone else have experience with AlphaDry?

Buzzdriver
57 Now
Age 54 at DX.  Gleason 6, PSA 4.2, a .78 rise in one year. 
 
Had High Dose rate brachytherapy at California Endocurie Therapy Center in Oakland, CA in February of '06.  Very successful - PSA came down quickly and steadily to current .08.  No problems.
 
Developed flow restriction in summer of '08 - had bladder neck resection in March of '09 - immediately incontinent, immediately in severe and constant pain, ultimately left job because I could not function because of pain and incontinence.
 
Started hyperbaric oxygen therapy (HBOT) three weeks ago - pain virtually gone, blood in urine down to "trace" levels, still pretty leaky.  HBOT has been a godsend with respect to reducing the pain! 
 
Considering sling procedure to get control of leakage. 
 

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