Yes, I was one of the rare one that had a lot of pain with my salvage radiation treatments, 39 of them for a total of 72 gys of radiation. I had a lot of trouble with radiation years before not related to prostate cancer, and I had the complication of having a suprapubic catheter in place during all of my treatments. I would get a lot of burning pains both in the rectal and penile areas, and when the treatments were being done, I would sometimes get a strong burning sensation where the catheter exited my stomach area. It's been 3 months since my radiation ended, and most of those pains have either lessened or gone away. Still dealing with fatigue, though.
Not smarter than your doctors, and you should be compliant to them, of course, but curious too, why you needed radiation so soon, when you had a Gleson 6 cancer, which is usually low grade, and a zero post surgery PSA, the normal criteria isn't there for having radiation, unless there is more to the story than you posted.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days