Radiation Treatments

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Hunter48152
Regular Member


Date Joined Feb 2010
Total Posts : 32
   Posted 3/9/2010 2:08 PM (GMT -6)   
Well just started radiation treatments 3 months after Robotic Surgery just as a precautionary measure. I was wondering if anyone who has had radiation felt any kind of pain after there treatments? Also, did the radiation add to the ED problems after the prostate surgery?
Age: 44
Diagnosed: 9/09 PSA: 5.3
Ultra sound showed lump on left side
Biopsy: 5 of 12 Pos. Gleason: 6
Da Vinci Nerve sparring done: 12/16/09
PSA 1 month after surgery: 0.0
Path. Report: Tumor at the margins but had not gone through capsule
Start Low Dose Rad. March 2010 as a precaution


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 3/9/2010 2:18 PM (GMT -6)   
Hi Hunter,
I developed some rectal irritation (proctitis) towards the end of radiation treatments. It was painful in the sense that bowel movements hurt. My doctor prescribed a topical treatment, Proctofoam, that relieved the pain. Things got better over the next several months, and I now don't have any side effects that I can attribute to radiation. My ED from the prostatectomy seems about the same.
Everyone's different. Some guys report zero side effects, others have side effects worse than what I experienced.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 3/9/2010 2:53 PM (GMT -6)   
Hi Hunter,
I am just a little puzzled, why radiation would be required at this stage, seems like a fairly good path report with gleason 6, surely would you not wait for a psa rise first ?
Kev
Age 51yrs
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4 Gleason Score 3+4=7 Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week. ED- okay with Meds.
PSA at 12mths no change remains 0.03
"Everyday in Everyway I get better"


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 3/9/2010 3:16 PM (GMT -6)   
Hunter,
I also agree with Kev, but hey now you have started them so go with the tx. I have 3 left and really not much pain, some fatigue, loose bowels and frequent urination. Some light burning pain around the mid-section but not sure if that is caused by my post-op nueropathy or radiation or the combination of the two. Wish you the best and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 3:45 PM (GMT -6)   
Hunter,

Yes, I was one of the rare one that had a lot of pain with my salvage radiation treatments, 39 of them for a total of 72 gys of radiation. I had a lot of trouble with radiation years before not related to prostate cancer, and I had the complication of having a suprapubic catheter in place during all of my treatments. I would get a lot of burning pains both in the rectal and penile areas, and when the treatments were being done, I would sometimes get a strong burning sensation where the catheter exited my stomach area. It's been 3 months since my radiation ended, and most of those pains have either lessened or gone away. Still dealing with fatigue, though.

Not smarter than your doctors, and you should be compliant to them, of course, but curious too, why you needed radiation so soon, when you had a Gleson 6 cancer, which is usually low grade, and a zero post surgery PSA, the normal criteria isn't there for having radiation, unless there is more to the story than you posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 246
   Posted 3/9/2010 5:53 PM (GMT -6)   
HI Hunter Iagree with Purgatorys 2nd pargarph I had 40 treaments at 75 similar to Galileo systoms but not as bad 3 months out hips stiff when getting up but improving every day Back at work one week and two days Cons't Supt walking is helping to get over it.
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see!!!!!!


zampilot
Regular Member


Date Joined Aug 2009
Total Posts : 152
   Posted 3/9/2010 5:53 PM (GMT -6)   
No real pain or anything like it in my experience, some mild side effects starting in week three or four. In the E.D. Dept I was starting over again. Rad tends to affect the blood vessels, not the nerves, so now it really isnt in your head, it's physiological. Takes a while to recover, just like after surgery. 5 and 1/2 months after Rad I am seeing more light at the end of the tunnel than I was before Rad, six months after open R.P.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 6:08 PM (GMT -6)   
PS Hunter, forgot to add, I didn't have any ED problem prior to my salvage radiation, and so far, haven't had any post radiation, though that may catch up to me at some point in the future, but hoping not.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 3/10/2010 2:55 PM (GMT -6)   
Just celebrated two years since my final salvage treatment this week.  Happy to report no major side effects during the IMRT or after and I am still good to go on the erection front as well.  I did go through some periods during the past two years where I felt I might be having slight ED issues but in retrospect I think it was all in my head. 
 
I happen to agree with your aggressive approach on treatment as I did not wait for much of a psa rise before I took further action.  There is mounting evidence that radiation following surgery significantly improves survival even if it doesn't cure the disease which to me makes the radiation worth the potential side effects.
 
If you are young then I think you need to go after the disease aggressively.
Age 45 at DX
 
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07
 
PSA Jan 4th 2008= .1
 
Started Guided IMRT on January 7th, 2008 to treat prostate bed and lymph nodes, completed on March 6th, 2008
 
PSA April 18th 2008 =.03
 
PSA August 18th 2008 = .01 or less, test only goes down to .01
 
PSA August 21st 2009 = .01 or less
 


Hunter48152
Regular Member


Date Joined Feb 2010
Total Posts : 32
   Posted 3/10/2010 4:48 PM (GMT -6)   
Thank you for all your responses. I asked the Oncologist why we wouldn't wait for the PSA to rise.. He told me that it use to be the old school rule of thumb to wait. But in recent years they have found that using a low dose radiation as a precautionary measure means less likelihood that they missed any small cancer cells during surgery that they could not see. He also explained that if we waited for the PSA to rise treatment could be worse and it could also give the cancer a chance to spread else where. I guess an ounce of prevention is better than a pound of cure.
Age: 44
Diagnosed: 9/09 PSA: 5.3
Ultra sound showed lump on left side
Biopsy: 5 of 12 Pos. Gleason: 6
Da Vinci Nerve sparring done: 12/16/09
PSA 1 month after surgery: 0.0
Path. Report: Tumor at the margins but had not gone through capsule
Start Low Dose Rad. March 2010 as a precaution

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