Testing peeing by blocking off the catheter

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 3:40 PM (GMT -6)   
The past two days, been doing periods of testing attempting to pee on my own.  Per dr. instructions, have blocked off the SP catheter, and just see what happens.  Purposely drinking lots of water during these tests.  Yesterday, didn't do much, and it hurt to try.  This morning, did 2 hours on purpose.  I peed about 2 times on my own, but each time, it took all the grunting and pushing in the world to make it come out, and you could tell it was being restricted and forced through a smaller hole than normal.  I know this feeling from past stictures and blockages.  Eventually, felt pressure in my bladder building up, like you do when you have a blockage.  So while taking my shower, I unpugged the cath, and as I expected, it released a lot like niagara falls.  Probably at its best, my pee was coming out of my urethra at 10-15% pre-surgery.  Considering I have now had 5 corrective surgery, not real happy or impressed.
 
It may take a while longer and some more patience.  I will continue testing every day between now and next Monday when I meet with my uro/surgeon again.  Thank goodness I still have the SP catheter in place, I would be sweating bullets today if there were no catheter to relieve me.
 
So the jury is out, perhaps it will improve in the days ahead, I hope so.  Since this morning's attempts, my entire bladder neck area is swollen in pain, no doubt from all the pushing and grunting I put it through earlier.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/9/2010 4:05 PM (GMT -6)   
Oh David what can I say. You are right thank goodness for the SP. Do keep trying. Thinkiing about you.

Cajun Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 3/9/2010 4:15 PM (GMT -6)   
If the neck is still swollen from its previous treatments, then it's probably a good sign that you managed to get something out -- here's hoping anyway....
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted 3/9/2010 4:50 PM (GMT -6)   
Might have been just 15% today but everyday can get better... we know you'll keep at it as you have said you will! You know better than most of us but I remember when my cath first came out the flow wasn't so hot and it burned (although there was plenty of spontaneous unwanted leaking for a couple months).

You and the rest of the gang are in our thoughts,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/9/2010 4:55 PM (GMT -6)   
David, hope it gets better soon. we're all pulling for you. Squid
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
* 03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place. Surgery scheduled for 03/11.


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 246
   Posted 3/9/2010 5:35 PM (GMT -6)   
I still hoping for the best I kinda agree with Piano youve got a few more day till doc app
PRAYERS!!! DEERHUNTER
i
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see!!!!!!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 6:04 PM (GMT -6)   
jeff, interesting what a believer my uro is these days with the SP catheter, he wasn't real gung ho in the early days, but since I still have an ongoing problem, he knows this makes his job easier, and knows that it keeps me out of the ER and from very painful traumatic affairs.

piano, definitely some swelling from the latest surgery and post radiation for sure.

jake, true enough, but i had already gone through the original stage of becoming continet back a full year ago, so far, none of the corrective surgeries have messed up anything in that department.

thanks, bro. squid.

true deer hunter, 5 full days till then. the trouble with dialation attempts, if there is an underlying stricture problem, then the opening up by dialation can disapear in a matter of days or weeks, I am hoping this time will be different. From my op in mid January, till this one a week ago, the bladder neck had almost closed shut, hard to believe
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 3/9/2010 6:26 PM (GMT -6)   
Hopefully things will only improve from here on out. like someone said maybe it's still swollen from the last surgery. Wishing for you to be cath free by spring.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/9/2010 6:49 PM (GMT -6)   
David,
Granted, I am a mental case. But hear me out.
With a 40 pound bag of pea gravel and my excel spreadsheet you can make your own bladder pressure test firing range in your back yard. You will be able to see changes way before you'd notice them on your own. the program figures pressure from the height above ground and the distance.
You can also measure your flow rate by filling a measuring cup while timing. It is good to get a baseline and maybe it will give you some forewarning.
I measure every few days... sadly that's how I know I will be continent sometime in 2012.
Jeff (the leaky one)
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11 5 months: Still 3 pads per day. 400-450ml/day
2/26/10 7 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/9/2010 7:48 PM (GMT -6)   
David - here's to positive thinking, prayers and 15% becoming 20% becoming ......

gentle hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 3/9/2010 8:07 PM (GMT -6)   
darn, Jeff, 2012? you'll be dry before me.

David - I'm cheering for you. Hang in there.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 8:10 PM (GMT -6)   
Neal, felt like spring today, does that count? Got to 79 F and sunny. Thanks.

Jeff, not sure how literal I was suppose to take your post, I wish you would suddenly go dry, I feel for you even though we are on opposite ends of the pee problem, you can't stop going and I can keep going, both are frustrating.

Bronson, thanks for the encouragment. Even my normally patient wife is starting to lose patience with all of this, doing the best I can, and will continue the experiment in the morning. Hoping it will even be a bit better next attempt. She says I might have to settle for a perm SP cath situation, and I assured her, I am not submitting to any more of these corrective surgeries, a whole new approach will have to be found after this if it doesnt work.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/9/2010 8:28 PM (GMT -6)   
David ,

I was only partially kidding. I really do believe in measuring as much a possible.
Fortunately, I only have one flow rate to track. If I had 2 you can bet there would be 2 charts on the refrigerator. My poor wife ... my poor sweet wife...

Jeff
I'd gladly send you the spreadsheet if you think it might be useful.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 8:43 PM (GMT -6)   
Jeff, at this point, something that organized and scientific wouldnt be needed. Either my poor bladder neck opens enough to allow my output or it doesnt. Today's experiment off the cath was very stressful and painful. For almost 5 1/2 continuous months, my bladder neck hasn't had to do anything, and the bladder itself is being constantly put to sleep with the ditropan (for the spasms) so it may take it a few days to wake up and remember how it all works. That's what I am hoping between now and the time I meet again with my Uro next Monday.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 3/9/2010 8:43 PM (GMT -6)   
I hope it gets better for you. If not, what is next step?
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
20 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 3/9/2010 8:52 PM (GMT -6)   
David,
I sure hope that it will get better in the next few days.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/9/2010 9:02 PM (GMT -6)   
David
- when I was the primary caregiver for my first companion, John, when he was in I.C.U. - coma level 8 - 15 weeks - the one thing the nurses and liason officer reminded me was to take care of myself so I could do a better job taking care of John

- I think at this point that should be shared with your wife - so that she has a me-day - out with friends - or the "Y" - a day away for her from cancer - once a week - or even a half-day whatever you two are comfortable with - and in this way, you are also the caregiver for your wife and her health.

- patience sometimes needs to shout or cry or wail in disbelief as to "why is this happening to me - to my husband - to my companion - father....? " you get my drift.

-I have never met your wife but she must be a wonderful person to love & support you in this physical and emotional turmoil - just as you are a wonderful person - stronger than you think - getting a little lost in this battle... but from your postings, there does seem to be a light at the end of the tunnel.

-best wishes , love and support to you both.

hugs
Bronson and Steve
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 9:11 PM (GMT -6)   
Thanks much, 142, rob and EdC

Bronson - my wife has a tight network of her fellow nurses, she has constant parties, gatherings, night out with the girls, going to the casino with the girls, camping with the girls, etc. etc. definitely not an issue. that doesn't count the endless shopping trips with our daughter, or her friends.

I dont really require any physical help from my wife, I tend to myself. As she is working full time, and I am not presently, I make her life easier by doing all the housework, laundry, most of the cooking, running errands, etc. etc, so that when she isn't working, she doesnt have the normal daily burdens to do on her time off. I figure that is fair.

Her frustration is that she knows there isnt much if anything she can do to directly help me when I am having the pain periods and when solutions don't work out. She's dealing with sick and dying people everyday in her work, and she is use to having long term loved patients dying on her, just the cycle of life at work.

She asked me tonight not to get my next PSA test (2nd post salvage radiation) until after our anniversery on April the 6th. Dumb me didn't get it ,so I had to ask, if it is bad news, she just doesnt want to know. Fair enough, I said, so it will be scheduled more like mid April, its not like I am all excited to know either, it will be what it will be regardless.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/9/2010 9:21 PM (GMT -6)   
David - thank you for your prompt response to my concern - I am very glad that your wife has a tight network for support. It is what I expected, but I go through the motions at times, reflecting on what I read and what I have experienced myself .
hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/9/2010 9:28 PM (GMT -6)   
Well, David. One robin does not a spring make, and one 15 percenter doesn't mean always 15 percent.

I can't imagine after everything that bladder neck and whatever has been through that it's not swollen to the sticking point. I'd not be surprised for it to take several weeks to calm down, and I agree that straining isn't likely helping it settle.

I'll be watching for further reports, and praying for nothing but the best for you.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/9/2010 9:40 PM (GMT -6)   
True enough Sheldon, it can be safely assumed that it is sore and swollen, only been a week since the doctor was doing his thing up there, but if I don't try these attempts, all parties feel that it will simply swell close again and/or start to scar close, so hurt or not hurt, I have to keep trying at least until I see the doctor on Monday. Else it will defeat the purpose of this last surgery. The same surgery in January didnt involve the tests after, and in barely a month, that bad bladder neck was closed shut that fast. Hard to believe. So since I have made up my mind that this is my last attempt at this methodology, I am going to do my best to see if it can be made to work out.

At least I have the indwelling catheter as a safety valve, and to be honest, a bit of a security blanket in the back of my mind, so that I dont panic or flip out if I start to block up during these test periods.

Thanks though
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 3/9/2010 11:53 PM (GMT -6)   
Hi David, here's hoping it improves in a short time.

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/10/2010 6:48 AM (GMT -6)   
David,
With all the silly data I take and with all the fluid dynamics calculations I make, I feel I have a pretty good handle on what's going on down between my thighs. 3 months ago my leak was equivalent to a 90 um hole. (A hair is 60 um in diameter. ) Now it is equivalent to 71 um. Knowing the size lets me know that conventional imaging will be useless.
I truly believe that telling the doc my leak rate is now 280 ml day with a baldder capacity of 425 ml at a pressure of 10" of water adds to his understanding. I can pull out my updated chart (which he keeps in his chart folder) and show I was at 380ml leak /day, 375 ml capacity and 9 inches three months ago. Guys pay a fortune for urodynamic testing and I get it for free, at home, as much and as often as I want. I can then use that info to run experiemnts like: is this exercise functional? Is coffee a problem? Does something change later in the day? The long term data helps spot trends.
All the data might be useless but at the very minimum it refreshed my hydraulics and fluids education and is good for a laugh. So, all in all, it's a net positive.

For a nice solid pee of 375 ml per minute at 10" of H2O pressure you need a hole of .078" or 2000 um. That is easily imaged. If your pressure is only 2" you'll need a hole of .116" or 3mm.

Hey, I've got an idea. I'll trade you a few um of my leak for a few of um of your stricture. That would send us both in the right direction.
Good luck,
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11 5 months: Still 3 pads per day. 400-450ml/day
2/26/10 7 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/10/2010 8:30 AM (GMT -6)   
Bronson, and thank you for your care on the subject you wrote. In some men's journeys, the wives get forgotten, or are even put into back situations. Definitely not the case on my home front. I have known what side my bread is buttered for many years now.

Jeff, it's amazing that you can put all this leakage into meaninful data, a real engineering feat actually, I definitely wouldn't know enough to do that, or even think about it at that level.

Thank you, squirm.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 3/10/2010 5:11 PM (GMT -6)   
no rush, try little by little, you will be fine!

wish the best for your progress!

Jennifer
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