Goodlife, I truly respect ,and appreciate all the care toward me and my endless problems. Trust me, I get sick of it as much as those hearing about
My other alternative, is to simply not update my situation. That wouldnt really be my style, because in our world (PC), especially for newcomers, I think its critically important, that men understand the good and the bad. For those that jump into a primary treatment, its kind of hard to understand and comprehend the side effects and complications involved, particually we who underwent surgery.
I knew and expected issues with both ED and incontinence, and prior to surgery, my wife and I came to terms that I may be dealing with both issues short or long term, or even forever. With my strong Gleason 7, my age, and my velocity issues, we decided it was the best shot at curing or slowing down the beast. I still stick by that.
What new guys need to know, is that PC is a game that doesn't play fair. I was blessed with no ED, I never say that to rub it in, I feel for every man that deals with that and learns a new life of sex with pumps, drugs, and/or needles. I expected to be among them, I still consider it some kind of miracle. Incontinence for me in the normal sense of the word was very minimal, but now I realize, its because I had a stricture blockage issue going on right from the night of my main surgery. I have the opposite problem, instead of peeing too much, or dripping or leaking, I simply block up. So I feel for every brother here that has to live with long term incontinence, and for those that have to have slings installed and other devices.
The longer I am in this battle, the more wisdom I see for telling our new brothers, that if they have a low grade case, most of us agree on what that means, gleason 6, no serious velocity issue, no family history, 1-2 cores, low per cent cancer contained, etc, that they really ,really should consider some form of AS.
Many of us had to have surgery, it truly was the best choice with the most hope. But for those with multiple options, again, directing this to our newer brothers, then they should think through what side effects and changes in quality of life issues really mean long term.
I had admitted this freely here at HW, my worse crime is that I seriously underestimated the quirkiness and nastiness that PC can bring upon us, and the fact that there is no "normal" in almost any aspect of dealing with it.
Learn, learn, learn. Think, think, think. Then decide, in that order.
Thanks for your continued care and concern. This is my 161st day with a continuous catheter, my bladder neck aches like hell from todays "testing", so yes, I get a little cranky, and a little touchy and sometimes I tend to take things personal, since we dont have the privilge in our brotherhood of sitting face to face. But I appreciate one and all, and I really am ok to agree to disagree with people.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days