Yananow~Terry's must read for PCa patients~especially new folks~"Strange Place"-info

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Veteran Member

Date Joined Dec 2008
Total Posts : 3149
   Posted 3/11/2010 5:18 AM (GMT -6)   
Really gives you a much better perspective on overall PCa, Terry moderator and originator of www.yananow.net has many years experience in PCa world and has helped educate probably thousands and thousands of people. This is a great read on PCa:
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 3/11/2010 4:35:19 AM (GMT-7)

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 3/11/2010 7:06 AM (GMT -6)   
about the the YANA website founder:


Terry took over several years later. Terry is a proponent of active surveillence and started out a G6 guy 13 years ago. He currently is on ADT and doing well, although he now has metastatic disease. Terry is very satisfied with his approach.


I consider Terry a personal friend and he has been a wonderful contributor to the PCa community.


Prostate Cancer Forum Co-Moderator

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 3/11/2010 8:26 AM (GMT -6)   
What a resource, it should be printed out and read by all. I had seen and read bits/pieces of this before, but never saw it all together like this. It covers virtually everything ever discussed here at HW, and it would be hard to argue with any of its presentation. I was impressed with the detail and thoroughness of each and every aspect covered.

For anyone harboring non-rational thoughts about potential treatments, what I read should help bring your mind back to the reality of the situation.

zufus, I personally appreciate the direct link, and will return to it often as a future source and reference point.

On the personal front, I found the following directly interesting as it applies to my current woes, kind of put some validation to it:

"Another issue to be aware of is stricture from scar tissue, which can also cause urinary problems. If the man has a history of poor scarring (some reports suggest that if any scar on his body is more than 10 mm (about 3/8") wide) then there is about an eightfold increase in urinary problems following RP (Radical Prostatectomy"

(If you guys knew my scarring history during my entire life, childhood to adult, the above is starting to make some sense why I have been dealing with what I am dealing with)

Can't get into the details right this second, but I thought the section on HT/ADT presented a frightening world. Unless I read too much into it, it seems to emphathize a lot of significant and major side effect issues, as many were highlighted. I am of the mindset, and perhaps its irrational at this point, I don't pretend to be an expert at anything, that I don't want to go down that path, as I have always been ultra sensitive to side effects in general, i.e., my recent rounds of SRT. After reading that section, it made me understand why I felt that way.
(No reflection to any man on HT, I know it helps and works for many, but it is another juncture in our decision paths in our PC journey)

In general, this guide should be required reading before anyone jumps into a primary treatment for PC, and if read correctly, could encourage some of our brothers to seriously consider AS, if their low numbers and lack of direct family history warrants it.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days

Veteran Member

Date Joined Dec 2008
Total Posts : 3149
   Posted 3/11/2010 12:36 PM (GMT -6)   
Thanks David and TC, that is why I posted this, it is a very good read on the world of PCa and well put together for lay persons to comprehend and honest.
It gives people an overall perspective and heads up on what is what.

David the hormone therapies are not necessarily as intolerable as you might think, granted ADT3 combo is probably more effects than just ADT1 which can work for patients...alot of possible choices in drugs and therapies. If you have a psa running toward 1000 or more, most people opt for drug choices, but anyone can chose what they want...shouldn't be **** system for choices.
Youth is wasted on the Young-(W.C. Fields)

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