My 45 year old husband just diagnosed last week!

New Topic Post Reply Printable Version
33 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

kuls
Regular Member


Date Joined Mar 2010
Total Posts : 57
   Posted 3/11/2010 11:03 AM (GMT -6)   
Hi all,
 
My husband was just diagnosed last week:
 
T1C, Gleason 3+3 =6, 2/10 cores pos. PSA 3.89
 
I can give you more info, but obviously we are dealing with low-risk disease.  I'm a Radiation Therapist, so I'm quite familiar with the treatment options.....unfortunately, that doesn't make it any easier for him to come to a decision!!
 
He's leaning toward surgery without too much delay.  We're meeting with a Rad. Onc. today to discuss Brachy and Active Surveillance, and have a consult booked with an Edmonton urologist (Dr. Eric Estey) who performs the robotic prostatectomy.
 
I know that there is increasing evidence to support that VERY young men with low risk prostate cancer are candidates for active surveillance, but I am REALLY not comfortable with it, given his young age.  Also, is a 10 core sample really enough to assess disease extent??  What makes me the most uncomfortable is knowing the stats about how many men whose Gleason grade/score is upgraded after prostatectomy, and also how many (even with low tumor volume) have positive post-op margins.
 
I'd LOVE to hear from some of you younger men about your experience and decision-making process!!  Also, if there is ANYONE who has had the robotic surgery performed by Dr. Estey!!
 
Thanks for your input!
Karen
 
 

Post Edited (kuls) : 3/11/2010 10:07:56 AM (GMT-7)


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 3/11/2010 11:12 AM (GMT -6)   
Karen,
Welcome to HW and sorry to hear about your husband. I guess even the fact that you are in the field does not make this any easier on you. I am 61 so not one of the younger one's, so will let them respond. I do like the fact that you all are seeking info from a variety of treatments and the more educated you are the better the choice. Please keep us posted and be bleesed.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/11/2010 11:14 AM (GMT -6)   
Hi Karen,
I am a younger man myself. I was diagnosed with advanced prostate cancer at age 44. I think you have one thing backwards about very young men. Active surviellance protocol is typically reserved for men with less than 10 years life expectancy in low risk cases, and less than 20 years life expectancy for very low risk cases.

That stated, there is plenty of time to make decisions. As he is monitoring his PSA for a while he can use the time to review all options.

Good luck in the coming months. and welcome to HealingWell...

Tony
Prostate Cancer Forum Co-Moderator


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 3/11/2010 11:21 AM (GMT -6)   
I was diagnosed just before my 44th birthday. I agree with Tony - taking some time now to research all the options can only help.

Best wishes.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/11/2010 11:21 AM (GMT -6)   
Hello and welcome, Karen, and your husband.

Forty five is young for a dx, but we have younger ones here too.  My uro said I was one of his youngest patients, and I was 56 at my dx.

With you doing what you do for a living, having some inside knowledge on the radiation side, doesn't make the decision any easier.

The trouble wiith any PC dx with a biopsy, as you know, are you seeing the whole thing? did the biopsy miss it? (that happened to me twice) and am I seeing just the tip of the iceberg? At best, a biopsy dx. is just an estimate of what is going on inside.

Some would suggest using the color doppler imaging technology to see if it can a"see" the tumor and its extent.

It's not uncommon after surgery, as you said, that the Gleason and/or staging increases in the post surgery pathology. In others, of course, it stays the same. In rare offerings, it goes down.

On the surface, looks like your husband has most treatment options or even a period of AS available, but that is still a tough and personal call to make.

Wish you the best, and please keep us posted on your journey.

David in SC


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


kuls
Regular Member


Date Joined Mar 2010
Total Posts : 57
   Posted 3/11/2010 11:22 AM (GMT -6)   

Thanks Michael....you're right!!  It doesn't make it any easier! 

I've already told my husband that, as his wife, I'm EXTREMELY biased about what he should do (I want him to LIVE, and I want it out YESTERDAY!), but I also want him to be able to make an educated choice after reviewing ALL the options.  Ultimately, although this affects both of us tremendously, I want him to make the decision that HE is most comfortable with, and I will be supportive no matter what he opts for.

The one thing I've really been able to help with is the gathering of reliable info, and coordinating consults, etc.  I am very fortunate to have access to doctors that I have worked with and have known for years.  As I told him last night though, I wish I could do MORE!!  Geez I feel helpless!!

 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 3/11/2010 11:31 AM (GMT -6)   
Karen,
Sure you feel helpless, because at some level we all know that some of this is out of our hands. But one thing that you are doing very well, is being helpful. Gathering all that info and coordinating appts. is an act of love. Keep us posted as you can and we will be thinking of you and your family.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


kuls
Regular Member


Date Joined Mar 2010
Total Posts : 57
   Posted 3/11/2010 11:34 AM (GMT -6)   
Thanks for the reply Tony!

You are correct in stating the CURRENT guidelines for AS protocol. It was actually a couple of the Radiation Oncologists I work with who suggested that he is a candidate for AS, even though he is only 45. Their rationale is that many men (even very young men) are being over-treated for low-risk disease, and that even men in their 40's can delay the inevitable life-altering issues of ED and incontinence for a period of time with surveillance. They do, however admit that there IS risk involved in trying to identify which men actually HAVE indolent disease vs. more aggressive disease, and that there is a risk that even with active surveillance, a man's disease may progress beyond the window of curability.


Not really something I want my husband to roll the dice on!!

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 3/11/2010 11:44 AM (GMT -6)   
Karen,
I was diagnosed when I just turned 37 a week. It has been difficult, my doc had done over 2k robotic surgeries and I have been the youngest. I have taken the attitude that I am blessed that I caught it early. All of my reasearch based on my age pointed me to have the surgery. Yes there are side effects of the surgery my ED is coming back slowly through injections and sometimes med's.  The dribble comes and goes. The alternatives are much worse, good luck and please ask any ?'s as you go along the way. Just from my experience through it the biopsy was much worse then the operation. I know both you and your husband are in the shock stage. It took me along time to get out of the shock stage but it does come!!!
 
LIVESTRONG!!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
5 Post OP PSA's from 9/2008 to 12/2009: <0.1
 
 
 


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/11/2010 11:45 AM (GMT -6)   
Kuls:
the key thing you have right now is time - to find the best procedure - and- to find the best doctor so your husband is content with the final result. -this is a great forum for support so you do not feel hopeless... you have a lot of good things on your side already.
wishing him and you all the best...
hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/11/2010 11:59 AM (GMT -6)   
Karen,
The one piece of advice I give to folks who come to me is to not make any decisions while the emotions are high. A cancer diagnosis is a very emotional thing and what most don't understand after being diagnosed with prostate cancer is that there is plenty of time to get past the emotional phase. You would be more rolling the dice with a knee jerk decision, than taking your time and making a calculated decision that is based on as much factual data as you can understand.

May peace be with and your husband. If you would like to read my story here is my website:

www.caringbridge.org/visit/tonycrispino

Tony
Prostate Cancer Forum Co-Moderator


kuls
Regular Member


Date Joined Mar 2010
Total Posts : 57
   Posted 3/11/2010 12:12 PM (GMT -6)   
Thanks Tony! Great advice, and your website looks excellent! I'm going to have to go get ready so I can pick my husband up from work for his appointment, but I'm definitely going to read the rest of your website later.

He (we) are most definitely NOT going to make an emotional decision....even though emotions are high right now. We had booked a trip to Arizona for March 18-29th, and are still going to go. We're both looking forward to it, and waiting a couple of weeks is not going to hurt anything! It will do him a world of good to get away from his office, and the "downtime" will give him a chance to process some of the info.

We're going to spend a couple of days in Tucson with friends, do a couple of days at the Grand Canyon, and the remainder of the trip will be spent in Mesa with his parents.

Our consult with the Edmonton urologist isn't until April 12, and even if he opts for surgery, we may even be able to sneak in a trip to Mexico beforehand!!

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 3/11/2010 12:15 PM (GMT -6)   
Hope you take the time to see Sedona while you are there. The Red Rocks are beautiful and about 2 hours south of the canyon. Have a great trip.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 3/11/2010 12:31 PM (GMT -6)   
As others have said -- investigate and don't rush. I chose surgery because at age 66 I wanted any side effects up front rather than delayed as with radiation. But my brother at age 55 went with seeds and now 6 years later is considered cancer free. He reports all side effects easily treated with Viagra.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day
9 mo. PSA 0.00 -- 1 light pad/day ED remains


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/11/2010 2:01 PM (GMT -6)   
Kuls: Best advise I can give at this time is enjoy your trip. That is a beautiful part of our country. I was there last nummber. You are gathering info and the 2 of you will at some point make a decision as to which treatment is best for you to follow...Once you decide you can not look back. Best of luck on your journey. Do keep us posted as to your progress.

Cajun Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 3/11/2010 2:07 PM (GMT -6)   
Kuls -- the surgeon your husband is considering might be willing to give your husband the names and contact information of some younger patients he has operated on. Of course, each person's case is different -- so actual results may vary, as they say -- but your husband might find it useful to talk with some such people. Best wishes, Medved
Age 45.  Father died of p ca. 
My psa starting age 40: 1.4, 1.3, 1.43, 1.74, 1.7, 1.5
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/11/2010 2:51 PM (GMT -6)   
Karen, welcome to the forum toy you and your husband. Looks like the guys have taken you all in hand...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
Gonna Make Myself A Better Man: www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4223
   Posted 3/11/2010 8:00 PM (GMT -6)   
Kuls,
You are correct in that the biggest risk in AS is underestimating the gleason grade or volume of the tumor. In verified low risk PC, AS is very reliable and any progression can be detected and cure rates are the same as if treated immediately. That said, the best way to verify if it is truely low risk is to get either a 3D Mapping biopsy or a Color Doppler Ultrasound. Even at a young age a truely low risk PC may take years or never for treatment with very little risk.
The cure rates for G6 tumors are similar for all treatment options. The main difference is the side affects. If your husband chooses treatment he should be aware of all the side affects that each treatment option carries with it. You are wise in taking time to evaluate all options.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Jeffaine
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/11/2010 8:35 PM (GMT -6)   
skull I am new to this so I am awkward, I am 55-At the age of 54 I had a Biopsy it was Dec 2009 it found 3 out of 12 cancer left side & I think 3+3 gleason, 7.4 PSA, Docs gave me all the choices I choose DiVinchi after  being railed at by my doctor for wanting watchfull waiting, He said I was too young for watchful waiting, I went into surgery on 4/20/09 @ 0800 AM I came out at 4-5 PM  I am 6' tall 225 lbs with a Computer gut, after several hours on the table the doctor had difficulty with my breathing because of the angle of the table for divinchi (it points head down) my body was not expiring (getting rid of) co2 as my insides were pushing on my lungs, so,  they stopped the surgery to allow the natural processes of expiration take place, they gave me fluids, 10 liters to help dilute the co2 (I think) and they waited an hour to see if the co2 would go down.  When they started back up the doctor could not find the urethra to reconnect it to the bladder (it had retracted) and he had to call in my uroligist to come into the hospital (from some distance away) to consult, all the while I am in surgery.  Finally they meet and greet and decide to open me up (RP) to find the end of the urethra and attach it to the bladder neck.  I woke up from what I expected to be a Divinchi surgery in the ICU with 10 liters extra fluid in my system, a ventilater still breathing for me, my blood pressure 240/140, I had micki mouse hands and because I was so bloated it was pushing all the IV's right out of my veins, Does anybody want to here the rest? I will continue if it's appropriate? 

Jeffaine
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/11/2010 8:41 PM (GMT -6)   
This jeffaine again I meant to say Dec 2008 for the Biopsy and it was April 2009 that I went into surgery the first time for this disease. It's almost my 1 year anniversary since the life changing event.

klondiker
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 3/11/2010 9:09 PM (GMT -6)   
Karen, My Dr. was also in favor of monitoring the PSA but I chose to have RRP. I chose that instead of the DaVinci because I had faith in my surgeon and he was more comfortable with the open surgery. Afterwards I asked if perhaps I had been too aggressive. He said that I had made the correct decision as the pathology showed that the cancer in one location had spread to the margin of the prostate. If I had waited....
Still, it is a huge decision with lots of implications for both of you. Good Luck.
Age - 55
2004 PSA 2.7
2008 PSA 5.8
Sept 2008 PSA 5.66
Oct 2008 PSA 6.67
Biopsy on 11/25/2008 cancer found in 10% of one core , gleason 3+3=6
open RRP done on 1/14/2008. Pathology showed 20% of prostate cancerous, gleason 3+3=6, contained in capsule
First post op PSA 2/10/09 - 0.07, PSA on 7/15/10 - 0.03
As of 2/11/09 down to one or two pads per day, only an occasional pad used since April 09.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/11/2010 9:30 PM (GMT -6)   
Jeffanie, since you are new, why don't you start a new thread with your journey and your story. Its quite interesting and I for one would like to hear the rest of it. It's important for men to know that even robotic surgeries don't always go well.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/11/2010 10:10 PM (GMT -6)   
Hi Karen,
Welcome to Healing Well. I wish you well in negotiating this maze. My husband was exactly 49 yrs and had intermediate risk but low PSA. We also took 4 months to decide and did this on basis of Gleeson score in the end. Fortunately due to luck, chance, skill and many other things, he came through his surgical treatment without any side effects although a long recovery with the ED, to full recovery. Like you, I did not pursuade one way or the other at the time (I am a nurse and had worked in spinal and urology - a bad past for this game too).
My husband took 4 months to decide his treatment, and saw 3 specialists in that time. We had many conversations and I always had a notebook handy to jot down questions we thought of. We always asked exactly the same questions to at least 2 professionals if it was a queston we had researched. Check it all out, take your time, and good luck. You will find this site is invaluable for getting info on any treatment plan you are researching, or thinking about. There are always a variety of opinions of course, but in the end, it is his sole decision. It sounds like, despite the horrific shock of this happening at his age, that you do have a positive and good attitude. That is really important. Good luck and take care, Lana
Creed_three (Lana) - with husband "CJ" now aged 52 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. Next PSA April 2010.


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/11/2010 11:24 PM (GMT -6)   
Hi Karen,

Welcome to the forum! Your husband's dx is almost identical to mine. I had 2 cores positive and a PSA of 4.3, but I was 54 on surgery day (still young!).

I consulted with several health care professionals and had friends that chose various treatment options. I decided on robotic surgery.

My surgery went great. For me, it was one of the easiest surgeries I ever had.

My post-surgery path was excellent and follow-up PSAs are good, but not perfect.

I think I'd choose the same route again, but your husband's choice will be what's right form him and for you.

I wish you both the best for his decision. You'll get great support on the forum whatever that decision might be.

Kind regards,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


normek
Regular Member


Date Joined Feb 2010
Total Posts : 49
   Posted 3/12/2010 3:04 PM (GMT -6)   
Hello Karen, I also was dx with pc last November at 45 years old. My numbers were very similar to your husband, I had a psa of 3.5, 1 of of 12 cores was positive for cancer and my gleason was 3+3=6, stage T1c. I had my prostatectomy in Moncton NB on January 8th, back at home on the 10th and catather removed on the 15th. My pathalogy report after surgery came back with an unchanged gleason, however I had cancer in both lobs of the prostate and in total 35% of my prostate had cancer, and upgrade stage to T2c. Everyone is different but I chose surgery because for me it was the only way of knowing exaclty what was there. I have been completey dry after 6 weeks post op and only use a pad when I go out in public...just in case.
New Topic Post Reply Printable Version
33 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Tuesday, June 19, 2018 8:50 AM (GMT -6)
There are a total of 2,973,181 posts in 326,066 threads.
View Active Threads


Who's Online
This forum has 160948 registered members. Please welcome our newest member, joyis.
469 Guest(s), 10 Registered Member(s) are currently online.  Details
Chris Topher, Melody16, C_G_K, Bull101, Sherrine, Tudpock18, onceitfreeze66, fiddlecanoe, 1039smooth, straydog