Are you ever jealous of other HW folks?

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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/12/2010 3:43 PM (GMT -6)   
Just curious. I have to admit with my not-so-great pathology I would read posts with signatures indicating say G 3+3 and everything else negative and I would sure be jealous. Wish I had those stats.
 
Then some folks had a quick uneventful surgery recovery with no ED and no incontinence. Geezzzz, I am happy for them... and wish that would happen to me. (Sigh...)
 
Now, I know that's stupid. Especially since with this disease you never know that much anyway in terms of reoccurences.
 
I was also happy for those who got in the Zero Club, but a bit jealous too.
 
(Now I am there and that's nice).
 
Anyway, I'm wondering if I'm the only one with that human failing.
 
Be honest now!
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/10/10--DRUM ROLL: 0.01


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/12/2010 4:02 PM (GMT -6)   
Not jealous,
Just wishing I had your numbers Mel ~ :-) Wait a minute...I did have your numbers...

Tony
Prostate Cancer Forum Co-Moderator


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/12/2010 4:02 PM (GMT -6)   
I agree with Ohio State, NEVER. Each PC case is too different from one brother to another. I rejoice with anyone's good news, and I sorrow with anyone's bad news. I would never be envious of any one else's situation. We each have our own lot in life.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/12/2010 4:23 PM (GMT -6)   

Heh...heh...I'm not worthy!

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/10/10--DRUM ROLL: 0.01


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 3/12/2010 4:48 PM (GMT -6)   
Hi Compiler,
I guess I feel the same way you do. I've had the good fortune (so far) to be reasonably free of complications of PC. It breaks my heart to read the problems some of the members have.

Sincerely,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Five PSA tests undetectable, latest Feb 5 (Whew!)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 3/12/2010 4:57 PM (GMT -6)   
Of course I wish I didn't have a G9.  Of course I wish I had wood any time I wanted it.
 
But jealous ?  Don't think so.  I am going to play the hand I was dealt, and try to make you think I've got 4 aces.  One, I have good insurance that has enabled me to have some of the best treatment available. two, I've had zeros, three I have a wponderful supportive spouse, and four, I'm pad free.
 
But at night when I go to bed, I 've still got PC that coulod choose to rear its ugly head anytime, just like everyone else on here.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 3/12/2010 4:59 PM (GMT -6)   
I don't but when I read of others having a worse time I feel bad worrying about myself. I worry and cross bridges before I need to (I believe you do that as well). I was a Gleason 8 and only suffer from ED and worry about every day about PC. I read some posts with people with gleason 6's or 7's who are enduring far worse and may more issues than I have endured. I think we should all pause and be thankful we have this site to communicate, vent, and yes disagree at times.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
20 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


John T
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Date Joined Nov 2008
Total Posts : 4227
   Posted 3/12/2010 5:07 PM (GMT -6)   
PC is a spectrum and where one falls on that spectrum is just pure luck. It does no good wishing you had something else. It is only productive to deal with what you have.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 3/12/2010 5:26 PM (GMT -6)   
Mel,

My view is similar and yet somewhat skewed from that of my fellow PCa brothers. I rejoice in the successes of others and equally rejoice in my own limited successes.

I feel guilty at times at how easily I have cruised through the various processes. Surgery and recovery were a non-issue. IMRT was tolerated extremely well and with very minimal issues.

However, my application for entry into the zero club is still pending and may ultimately be rejected.

Yet daily I am reminded that I personally am thankful that all I have to deal with is PCa. I look at my lovely wife and all that she has been through and know that my journey has been a bed of roses compared to hers.

I was blessed with an easy surgery and IMRT so that I could have my energies and strength to care for her.

Your post has been very timely today. We received a call today from her doctor following her most recent skeletal surveys and mri's.

The pain she has been feeling this last week has been defined. She has yet another cracked vertebra, they have found multiple new bone lesions in her hips and pelvis and new ones altogether in her upper leg and left arm.

She is looking at increases in maintenance chemotherapy, radiation to treat the new areas and a process where they basically cement the spine to repair the cracked vertebra.

So I never feel guilty about others success. I pray for them and those that are still doing their battles.

In my situation I am reminded of the position I took when my doctor called to tell me I had PCa, I told him I didn't have time to have cancer, I was too busy caring for my wife.

Today my position has not changed. "Every Day is Still A Bonus" and I am still living it that way, alongside my lovely wife.

Thank you for the opportunity to allow me to express this. As always your questions and queries provoke thoughts and conversations in all of us.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/12/2010 5:37 PM (GMT -6)   
JohnT - that was very well said.

Sonny - Give my best to dear Lynne, don't like the sounds of these new developments with her, glad you a there for her 150% and have some of your strength back physically and mentally to deal with it. May the Lord bless her and keep her still longer.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Sonny3
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Date Joined Aug 2009
Total Posts : 2447
   Posted 3/12/2010 5:44 PM (GMT -6)   
David,

Thank you. I did not want to hi-jack Mel's thread but I thought it was appropriate info that allowed me express my position and thoughts on having Pca.

Thank you for your prayers,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy


RCS
Veteran Member


Date Joined Dec 2009
Total Posts : 1247
   Posted 3/12/2010 6:03 PM (GMT -6)   
Compiler,
 
I must admit I have been jealous.  Not of someone else's Gleason, or dx ... but of some peoples care, and treatment options. 
 
When I've read the debates on how to pick a doctor, I wonder what it would have been like to be able to find the best doctor, instead of having to use the HMO docotor ...  To be able to select a doctor with 250+ Da Vinci's instead of being assigned one who had 35 (but had completed a fellowship) ... To have the VA pick up the costs ... To, etc. etc.
 
I guess I come to the bottom line; that I had good care, and have come through this in fair shape (knock on wood ... I wish). 
 
I hope that you, and anyone else who has this darn disease, do at least as well as me ... with whatever level of care you have.
 
Bob

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 3/12/2010 6:39 PM (GMT -6)   
Absolutely jealous of the guys that had surgery and had little or no problems with ED.
Happy for them but sure wishing that was me.
 
Dave
Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/12/2010 6:59 PM (GMT -6)   
What an interesting thread this has turned out to be. In fact, I posted this mostly seriously but with a little bit of tongue in a little bit of cheek. The reality is that you can have the best pathology and suddenly things start going south and vice versa.
 
Also, you've made me appreciate something I took for granted: the opportunity to research and go anywhere I want for treatment. As someone posted, they wish they had that freedom. I know others just don't have the wherewithall or even the health to do that. Additionally, there are so many Americans without insurance. I heard recently that the number is 47 million with 10,000 per day adding to these rolls. Imagine getting PC with no insurance. I know Ohio State has managed to navigate those waters, but it's not easy.
 
Here's another thought pertaining to something I am thankful for. I let my employer know immediately when I got the dx. They were wonderful with this. The Dean was on top of things and we made suitable arrangements. Meanwhile, our HR person stayed on top of things in terms of forms to fill out and other legalities such as Family Leave Act stuff. I know there are folks who not only have to fight an illness that can be exhausting, but they end up fighting their employer. I also know there are folks here who are unable to even have an employer although they are smart enough and young enough -- but not healthy enough -- to contribute in the workplace.
 
Finally, Sonny, your attitude is top-notch. I have been depressed at times because it seems that every test comes out worse than the one before (until this last PSA test). But that seems to be happening to you in spades. Yet, you have had minimal problems from the surgery and radiation. You are probably in the top 1 percentile in that area. Yet, if anyone should be bitter, it would be you. Here you do so well, yet so far the PC in you seems to have a mind of its own. I sure hope the next PSA test affords you a wonderful surprise and a respite from this disease. Additionally, here you do the RV route and now your wonderful wife has new problems. I hope you both can still get a lot of RVing in and enjoy life for a long long time. Cheryl and I would love to meet both of you, so we hope things are still a go, but clearly there are now new medical issues.
 
Finally, David, I know I've probably caused you a bit of ...well...consternation anyway with my suggestions. But it is all part of trying to help each other here and sometimes maybe we don't always do that in the best way. I SO MUCH would like to read that somehow you are at least turning the corner.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities.

Next Event: First post-op PSA on 3/10/10--DRUM ROLL: 0.01


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/12/2010 7:54 PM (GMT -6)   
OK...I'll admit I'm jealous...of those whose lives have not been touched by prostate or any other cancer. But, each of us has a cross to bear in this life, and I do believe that there are far worse things to endure than cancer.

My sister in law's oldest son left home years and years ago, and disappeared. No one knows where he is and he has not tried to contact his mother or sisters. We know that he is alive (somehow my SIL found this out) but have no idea where he is or what condition he's in. None of us has any idea why he severed his relationship with his family. I simply cannot imagine what thoughts go through my SIL's head.

When the earthquake hit Haiti, there were 3 U.S. college students missing who were there doing missionary work. One of the students comes from town...yellow ribbons were tied around all the trees and her family was actively working with the Red Cross to find Stephanie. Well, sadly they did find her...and her body was brought home for burial about 10 days ago.

I have to believe that we go through the trials and tribulations of life for a reason. Perhaps the reason is simply to change our perspective on what's really important. Sometimes, it's a bit more complex. But, as the saying goes, "that which does not kill you makes your stronger." I think that each and every person on this board could be a poster child for this saying.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


dlhtbiker
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 3/12/2010 7:57 PM (GMT -6)   
Am I a little jealous of the brothers that had the good fortune to be dry from day one, yeah a little. Each of us heals differently and although I would rather be pad free at 16 weeks I can handle the one to two pads that I go through now pretty easily. What really gets me jealous are the guys who have a supporting wife behind them. Mine is no where near as supportive as what I have read on this site. Those are the lucky guys and those are the ones I envy.
dx August 2009 age 50 PSA 3.9 Free PSA 9
Biopsy Sept 2009 Gleason (3+4) 7 2 out of 12
RPE November 2009 Contained in Prostate no exterior involvement
6 week PSA < 0.03


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/12/2010 9:55 PM (GMT -6)   
Don't know if I would call it being jealous. I am mostly pleased with my easy road of PC. If I had one emotion I would have to say it would be angry that the Dr. was not quite as gentil with the nerves as he should have. I was not prepared as I should have been for the ED. At least now I know I can make it work with Caverject!!!!!.. I am thankful that at this point the PC is Gone for now..

I do miss my prostate!!!! and all the pleasures it gave to me.

Cajun Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 3/12/2010 10:27 PM (GMT -6)   
I doubt that any of us are really jealous of those with better numbers. We all wish that we didn't have to be here or go through the rigors of treatment and side effects. We just have to play the hand that is dealt to us and take one step at a time. It is fruitless and frustrating to ask why. We all look back but we don't stare.

I was forunate to have good numbers after surgery and further treatment for PCa was not required. Then a year and a half later my doc told me I had lung cancer. After surgery and chemo I have good numbers there too. Both cancers are in remisssion due to early diagnosis and aggressive treatment. I am thankful every day to be alive and feeling good.

Finallly, the friendships I have made here on HW and elsewhere in the cancer community are priceless and I am fortunate to have been able to form them. I have several friends that have been dxed with breast cancer since my treatment ended. To be able to give them hope and encouragement helps me more than them.

At the bottom of my signature are what I consider to be the two best weapons we have in this fight.
Age 75. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06. Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + .05 cc Trimix = Excellent Results
PSAs from 1/3/07 - 7/17/09 zero.
Next PSA - July/2010
Lung cancer dxed on 5/16/08. Surgery on 6/25/08 T1N1M0 - Stage IIA Finished 4 cycles of chemo on 11/7/08.
CT scans on 12/2/08 - 12/22/09 - in remission!!!
Next scan in June 2010.
Biker90's Journey
http://www.caringbridge.org/visit/jimrobinson
"Patience is essential, attitude is everything."


Heavy Leaker
Regular Member


Date Joined Feb 2010
Total Posts : 63
   Posted 3/13/2010 6:07 AM (GMT -6)   
dlhtbiker said...
Am I a little jealous of the brothers that had the good fortune to be dry from day one, yeah a little. Each of us heals differently and although I would rather be pad free at 16 weeks I can handle the one to two pads that I go through now pretty easily. What really gets me jealous are the guys who have a supporting wife behind them. Mine is no where near as supportive as what I have read on this site. Those are the lucky guys and those are the ones I envy.

It is very interesting that dlhtbiker mentioned being jealous of the guys with supportive wives.  It made me remember to thank my wife again for everything she has done to make this journey a little easier.  I am indeed a very lucky man to have such a wonderful wife & she has been there for me through 28 years of marriage.  I know Compiler asked what we might be jealous of but dlhtbiker reminded me of what I should be thankful for.  Thank you dlhtbiker & I hope your wife can somehow become more supportive of you.
 
Ray
4 biopsies over 4 years starting in 2006, 4th biopsy showed 5% of one core Gleason 3+3=6.  PSA in 2005 6.0, rose to PSA 18 shortly before surgery.  Chose surgery over radiation due to conflicts in PSA versus biopsies.  PSA 18, Gleason 3+3+6, Age 58, Rising PSA since 1999, Biopsy 5% of one core
Robotic surgery 10/26/09  T2B Tumor 30% of prostate  involving left & right lobes  NOMX Gleason 3+4=7  Urethral Resection margins &  resection surface clean Seminal vessicles clean.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/13/2010 6:22 AM (GMT -6)   
Ray, as a wife, I really appreciated your beautiful response. Thank you.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/13/2010 9:55 AM (GMT -6)   

Sephie:

 

That PSA data is interesting. It seems we don't often see PSA rising and then going back to 0 again. That's great. Just curious: were all the PSA readings from the same lab? Did he do anything specifically that might have resulted in a lower PSA?

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms. 

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.

Next Event: First post-op PSA on 3/10/10--DRUM ROLL: 0.01


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/13/2010 10:25 AM (GMT -6)   
I'll admit that when I see that someone is dry one day post catheter, having a solid woody at 2 days and probably fathering kids at 2 months, I do wish I could "get me a piece 'o dat" too.
I don't resent the other person. He is inspiration for me.
Now where did I leave that pack of pee pads and Trimix?
Jeff too

Postop
Regular Member


Date Joined Feb 2010
Total Posts : 385
   Posted 3/13/2010 11:06 AM (GMT -6)   
Worried guy...fathering children? Wouldn't be envious of that. With the ductwork disconnected, if that happens, a paternity test would be in order.

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 3/13/2010 11:23 AM (GMT -6)   
I would have to say that I have never been jealous of anyone on the forum. I do enjoy hearing people that got great news and I try to comfort the ones that don't. I think David mentioned that each case with PCa is so different none of know how it will turn out. I have read about men with gleason 6 that seemed to spread quick and then there is me with a gleason 9 and I feel like I am doing great.
I do however think your feelings are normal as we go through the stages of acceptance. Glad you shared your feelings because this has turned out to be a good thread.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/13/2010 11:40 AM (GMT -6)   
Hey Postop
I meant that the recovery was so quick and complete, in so short a time, the prostate grew back thanks to a couple of extra multivitamins and a few stem cells left behind.
That's what I'm talkin' about. :-)
Jeff
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