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Has anybody's incontinence improved after 9 months?

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Prostate Cancer
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cocrgolfer
Regular Member
Joined : Oct 2009
Posts : 171
Posted 3/16/2010 11:29 AM (GMT -8)
Hi Guys,

There have been several threads here lately about the sling procedure. At what point someone just gives up on his leaking and decides to do it seems to be a very individual decision that has a relationship to his patience, or work requirements, or tolerance to the interference in his quality of life. As a now long term leaker (five months) I am beginning to ask myself how much longer am I willing to put up with this. I also am in contact with several other guys who are going on 6, 7, or 8 months with at least some leaking. We all have basically the same question.....if the odds are that 90% of post-prostatectomy patients get to be pad-free at 12 months, is there really much chance of improvement after 9 months? Does it make any sense to continue hope after 9 months?

So my question here for the veteran leaker brothers is: did anyone who was leaking several pads/day actually improve after 9 months to, say,one light pad or even no pads?

Any responses appreciated,

Steve
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goodlife
Veteran Member
Joined : May 2009
Posts : 2692
Posted 3/16/2010 12:06 PM (GMT -8)
It took me 8 months. I was down to 1 or 2 pads in 6 months.

Personal opinion is a year would seem a reasonable cutoff, based on what I read here.
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Steve n Dallas
Veteran Member
Joined : Mar 2008
Posts : 5263
Posted 3/16/2010 12:18 PM (GMT -8)
I like to keep bring this up....At my 3 month post surgery visit - my surgeon said he wanted me to be pad free by the next visit in 3 months.

He said it a way that made me think I had a choice in the matter. Two days later on Saturday I didn't use a pad and haven't worn one since.

Mind you, I was barely a 2 pad a day guy at 3 months..but I think the "Mind over Pad" worked for me. Maybe it can work for you too.

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goodlife
Veteran Member
Joined : May 2009
Posts : 2692
Posted 3/16/2010 12:40 PM (GMT -8)
Wearing tan slacks helps too !
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Geebra
Regular Member
Joined : May 2009
Posts : 476
Posted 3/16/2010 7:01 PM (GMT -8)
Took me over a year. I used one pad for the last three or four months, more before then. There were three things that I feel helped. Walking a lot. Losing wait. And when I was only a light leaker, I stopped wearing a pad.

Don't lose hope.
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Worried Guy
Veteran Member
Joined : Jul 2009
Posts : 3790
Posted 3/17/2010 2:00 AM (GMT -8)
I'm at 8 months and still leak 3-4 pads per day. My leaking can be as little as 10 oz per day (250 ml) if i am quiet, or 15 oz (400 ml) if I am active. I'd sure like to know if anyone recoverd naturally from that level.
I recall about 6 months ago another long time leaker was scoped out and found to have scar tissue that was blocking the sphincter causing a leak. His Uro said no amount of kegels or other exercise would have fixed it. The tissue was removed and he was fine.
Does anyone here remember who that was?
Jeff - the leaking one.
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Tamu
Veteran Member
Joined : Oct 2006
Posts : 626
Posted 3/17/2010 6:37 AM (GMT -8)
I recovered my continence fairly quickly so I cannot share any personal experience but I can tell you what the PA in my urologist's clinic told me. We were talkiing while my penile implant was being activated and I was asking him about how long should men wait before going with some type of intervention. While I was specifically referencing implants he told me that a year for leaking was when they would start suggesting a sling. It depends some on whether the leakage is stress related(coughing, laughing hard, picking something up, etc) or was occurring without any cause. The day of my penile implant surgery my surgeon was also doing two slings and another penile implant.

Tamu
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cocrgolfer
Regular Member
Joined : Oct 2009
Posts : 171
Posted 3/17/2010 1:37 PM (GMT -8)
Thanks for all the replies. Especially Geebra who said just what we wanted to hear. Have no choice but to continue the waiting game. Darn, I always thought I'd be dry by now.

Steve
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kw
Veteran Member
Joined : Nov 2006
Posts : 883
Posted 3/17/2010 6:48 PM (GMT -8)
I would wait a year. You never know how your body will heal. Hang in there.
KW
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Mavica
Regular Member
Joined : Jun 2008
Posts : 407
Posted 3/18/2010 9:41 AM (GMT -8)
After 1.5 years, I still leak enough that I want to wear one pad daily - a thin woman's-style pad. I was at the Urologist for my twice-yearly check-up (PSA 0.0) and spoke to him about the leaking and he told me there's no standard answer for this, only statistical data collected by researchers (such as himself). But, my leakage has decreased after the 9-month and 1 year periods . . . and I don't plan to do much else but wait for it to get better, since I now expect to live a longer life (with the cancer removed).
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cocrgolfer
Regular Member
Joined : Oct 2009
Posts : 171
Posted 3/18/2010 3:41 PM (GMT -8)
Thank you Mavica for the hopeful reply. If you don't mind, how much were you leaking a 9 mos.?

Steve
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bcc
Regular Member
Joined : Oct 2009
Posts : 46
Posted 3/18/2010 3:53 PM (GMT -8)
hi i must be mr frustrated after only 1 month thinking i was ok then drinking leaking .pushing leak, sneezing l ,cough l, bend to floor lbarry
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tatt2man
Veteran Member
Joined : Jan 2010
Posts : 2845
Posted 3/18/2010 4:30 PM (GMT -8)
very interesting thread - I am still leaking - stress incontinence - walking up stairs - standing up - bending over - ... walking is fine and going down stairs are fine but frustrating and isolating - sorta stayed to myself and inside doing my work and not getting out - gained more weight than I wanted and waist size - so whole new set of pants for summer - can't wear trackpants forever ...
- at last nights real world PCa support group the main speaker was a doctor from Hamilton, Ontario - associated with McMaster Medical Centre - he stated that if you are a leaker at 6 months -that is what you will be without intervention - such as a sling etc... and he had done over 1000 sling operations as well as ED implants.
-I am willing to wait but not forever - will consider my options in October ( 11 months after surgery - after seasonal work ends - landscape garden sales) -
-still working on it - and as others have said - there is always hope

gentle hugs ( not to squeeze you too hard)
BRONSON
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Worried Guy
Veteran Member
Joined : Jul 2009
Posts : 3790
Posted 3/18/2010 6:18 PM (GMT -8)
Hi Bronson,

You wrote: "the main speaker was a doctor from Hamilton, Ontario - associated with McMaster Medical Centre - he stated that if you are a leaker at 6 months -that is what you will be without intervention - such as a sling etc... and he had done over 1000 sling operations"

The cynic in me forces me to consider the source here. The speaker makes his living installing slings. Naturally, he will err on the necessity side.

From my own daily measurements I see depressingly little change after 6 months. But, I'm not ready to throw in the towel. (I can't. I need it under my chair.)
I will most likely wait until the one year mark before going for the sling. In the meantime, I'll hope a miracle happens.
Jeff
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goodlife
Veteran Member
Joined : May 2009
Posts : 2692
Posted 3/18/2010 6:22 PM (GMT -8)
My thoughts exactly Jeff !
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leaky
New Member
Joined : Mar 2008
Posts : 15
Posted 3/18/2010 6:39 PM (GMT -8)
Hi cocrgolfer,

After several years of leaking and trying several procedures, I've come to believe there must be infinite variables involved. I doubt your future can be predicated on what any of us have experienced. Still I pray the best for your recovery.

Leaky
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waterloo
Regular Member
Joined : Jan 2009
Posts : 101
Posted 3/18/2010 8:13 PM (GMT -8)

 Hello from dee in bc.

My husband was a least 14 month before he really had control,and that only if he did not drink to many beer's,That was and is still a promblem .Ido belive it dose have something as to what you drink and what you are doing ,shoveling ,golf ect .In time  it will all come together..

  DEIDRE

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cocrgolfer
Regular Member
Joined : Oct 2009
Posts : 171
Posted 3/19/2010 2:30 PM (GMT -8)
Jeff, a big DITTO on your comment.


Leaky, I agree about the infinite variables involved in this incontinence. However, as you seem to understand very well, the misery of leaking does cry out for some sort of hope, and if some guys get better months after surgery, then it could happen to me and other long term leakers.



BTW, how did you get along with your sling procedure?



Thanks for the kind thoughts,



Steve
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