My Mystery Pain has been found

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t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 3/16/2010 10:04 PM (GMT -6)   
Hey folks, well six weeks out from Mr Roboto and all seems to be goin well. What little bit of stress leak i had when tiring is now gone and i`m down to 2 get up and pees at nite which is way better. I`ve always gotten up at least once because i`m a lite sleeper and hear everything. Now the crappy news, i`ve had this weird pain to the right of my pubic bone since the op that kind of radiates down to my right nut especially after i`ve been on my feet for awhile. Also i`ve had a bit of swelling there and always just chalked it up to the op but it seems to be getting more nagging as i`ve gotten back to normal life. Since it hasn`t improved i called the doc and ding dang it i`ve got a hernia. Its very mild but i`m sure it wont fix itself. We have a pow wow set up in a week to check it out. The nurse said it can happen from the surgery as i`ve never had any indication before this. Crap! I thought we were done. Has anyone had one of these? And did you have to have it fixed? Any advise? Thanks all, Tim
Dx at 50 in 12/09 Merry Christmas its cancer....
3 of 12 positive, right side only, psa at dx 2.6 free%14
gleason 3+3=6
routine physical, no symptoms
Da Vinci performed Feb 2k10 by Dr Marc Milsten [hes got mad skills]
99% continent from cath out, mr happy fully functional at 2 weeks out!
path showed same gleeson with no other blips other than one slight margin, organ confined 20% right, 5%left, 34grams
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/17/2010 4:11 AM (GMT -6)   
Tim,
I had a mesh installed to fix my hernias 10 years ago. Before the repair, when I was doing something physical, my guts would pop out and hurt. I would sit up straight and push the bulge back in with my fingers. I did that for 3 months before finally going to the doc to have it fixed. By then there were so many holes the mesh and titanium staples were the only solution. Idiot. I'm perfectly fine now with my bionic abdomen.
The Uro had to plan out his path below the mesh to grab my walnut.
Get it fixed.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11 5 months: Still 3 pads per day. 400-450ml/day
2/26/10 7 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 3/17/2010 4:15 AM (GMT -6)   
As you mentioned - it ain't going to fix itself...
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


crewa2
Regular Member


Date Joined Jun 2009
Total Posts : 43
   Posted 3/17/2010 5:21 AM (GMT -6)   
Hey T-Dog,
I have the same bump on the right side since the robot. I've had some pain there for the last ten years when I lift or stand for a long time. It never really stuck out until after the robot surgery. Now when I wake up in the morning it's fairly flat, but shortly after getting up the bulge pops out. It doesn't cause much pain, so I'm in in the AS type mode. It's been about 6 months since I had surgery and I'm not ready for another one yet, maybe next year.

crew
Age 44 (43 at diagnosis)
5/6/2009 1st ever PSA 4.3
Referred to Urologist
DRE: Nodule felt on left side
6/19/2009 Biopsy done, 10 samples
6/25/2009 All 5 left side positive Gleason 3+3=6 40-60%
RRP performed 9/17/09 Catheter out 9/22/09
Final path: Tumor involved 20% of gland, PT2c Nx Mx, Gleason 6, Organ Confined, Clear Margins
Continence since cath out, viagra works pretty good for ED
6 weeks post OP PSA <0.1


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/17/2010 6:28 AM (GMT -6)   
Hey Crew,
I waited too. It would pop out and I'd shove it back, over and over. i thoght exercise would fix it. Nope. When I finally had it done there wasn't much left of the wall. It won't go away.

There is a side benefit to getting it fixed. I am an in reasonable shape. Now, if I eat too much I will get a "pulling" sensation down there and that prevents me limits me from pigging out during holiday seasons. No need for intentional dieting. And my pants always fit.
Jeff

Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 3/17/2010 6:41 AM (GMT -6)   

I have one right next to the "main" hole where they pulled out the prostate during robotic. There was a slight bulge right from the get-go, and at the time, my surgeon's PA said it was scar tissue that needed to be massaged, which I did. It never went away. During my 1-yr check-up, I mentioned it again, and upon exam, they deemed it a small hernia. I'm fortunate that it doesn't bother me at all right now; it's just a little unsightly when wearing certain shirts. I could go anytime to get it addressed surgically, but's it's not on my front burners at the time........Seems like this might be a little more common of an issue than I thought.

Arnie in DE

 

 

 


Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/17/2010 6:46 AM (GMT -6)   
Sorry to hear that.

That's all you needed was a new issue

But better to fix it soon then to let it get worse,good luck to you
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 3/17/2010 7:29 AM (GMT -6)   
And we won't mention that part about your guts getting pinched/caught and turn gangrene.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


brainsurgeon
Regular Member


Date Joined Jul 2009
Total Posts : 137
   Posted 3/17/2010 7:40 AM (GMT -6)   
I did not look this up, but I think umbilical hernias are more prone to strangulation than ingunal hernias. That mey be only in kids though. Ask the doctor. A strangulated bowel will be less than a picnic.
70 years old (1939) USA citizen
Prostatic carcinoma dxed June 2009 by PSA (7.0) and then Bx
PSAs yearly since 2001 ranged 1.52 to 7.0. Doubled from 3.5 to 7.0 in one year.
Neg. CT and Bone Scan
4 of 8 biopsies positive (all right side) Gleason Score 3+4=7
Robotic assisted total prostatectomy and node excision July 2009 in Luzern, Switzerland by Dr. A. Mattei in the Kantonsspital. New Gleason was 4+4=8
pT2c G3 pN0 (0/14 nodes +, Margins, etc. clear
Catheter out in 5 days (home in 3 days). No incontinence
Positional neurpraxia in hip and knee resolved 90+% in 5 months.
Potency: beginning tumescence??? at 3 weeks post-op. Still happens at 3 months PO. Nearly usable one month later. At 5 mo. with 100 mg Vitamin V, pretty good. Now beginning 5 mg Cialis daily.
3month PSA less than 0.01, 6 month PSA less than 0.01


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 3/17/2010 7:46 AM (GMT -6)   
umbilical hernias are more prone to strangulation-> which is what I had repaired a year before PC surgery...
 
I was trying to motive T-dog with fear taticsshocked
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


RCS
Veteran Member


Date Joined Dec 2009
Total Posts : 1247
   Posted 3/17/2010 4:15 PM (GMT -6)   
t-dog,
 
I think I have weak core muscels, and exercise (i.e. crunches, etc. don't seem to help)...  Maybe something genetic.  Anyhow, I had three ingunal hernia repairs (two left side and one right) before I was the DiVincied.  All three of these had the symptoms you described ... each of the  repairs were done differently ... the laproscopic repair, with the mesh, has worked well ... however, it did cause the DiVinci surgeon to do some fishing around the mesh.
 
about three months after the DiVinci surgery, I developed a poouch next to my navel incision ... it was an incisional hernia ... when I sat down it felt like I had a tennis ball tucked in my stomach. I had it repaired last week, as it seemed to be getting worse (bigger).  
 
The DiVinci surgeon passed me along (I belong to an HMO) to another surgeon who specialized in hernia repairs.  I made sure he had experience and that he would install a permanent mesh (based on advice gained from this site).... it was done as an out patient in about one hour.  All of my ingunal hernia repairs were also done as an out patient. 
 
You'll probably need a week plus to recover ... less time than for the DiVinci.
 
Good luck,
Bob
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