The Beers are on Me

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defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 3/19/2010 2:04 PM (GMT -6)   
I hereby submit my application for the "ZERO" club! I had my 6-week follow-up with my doctor today in his Richmod offices. I was escorted in and had some blood drawn, then waited in the exam room and spoke with an intern for a few minutes. Dr. Morgan came in, shook my hand and told me my PSA was undetectible, being less than 0.1 (apparently their lab is right on site so they do the testing right away). Of course I was elated! We spoke for a awhile and I asked about the more exacting exams that provide potentially better visibility on a rising PSA and doubling times. He was frank and told me he does not use them because of PSA anxiety and that their value may not be what many people believe. He continued by saying my pre-op stats and findings during surgery, combined with my post-op pathology report are all postivie indicators and that he believes my PSA will remain undectable. I will go back in 3 months for another PSA.


I couldn't close without saying a big hello to all here and "thanks" for the information and support. My prayers and good wishes are with all who have passed through these hallways and those who will someday cross into our world. I'll still be here trying to lend supprt in any way I can.



John

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/19/2010 2:14 PM (GMT -6)   
Congratulations, and a big welcome to the Zero Club. Celebrate for all of us, and plan on staying there for years to come.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/19/2010 2:32 PM (GMT -6)   
Thanks for the great news, and congrats. I hope you will continue to keep us updated as you move further from recovery.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
Gonna Make Myself A Better Man: www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
32 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 3/19/2010 2:36 PM (GMT -6)   
Great News.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/19/2010 2:39 PM (GMT -6)   
Great to hear Mel. Hope that you have a lifetime of zeros.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 3/19/2010 2:52 PM (GMT -6)   

Congrats!!-----here's to many more down the road.

Arnie in DE

 


Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/19/2010 2:57 PM (GMT -6)   
Hoorah! - always good to hear of an expanding ZERO CLUB - great news for the stats and post-op pathology - as well as having a doctor you can talk to and who listens !
congrats - here's to many many years of zeros...

hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 3/19/2010 3:11 PM (GMT -6)   

John

Yours is the kind of news we love to hear.  Welcome to the Zero Club.

Here's a toast to your current zero and many more to follow!!

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Ricky2
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 3/19/2010 3:35 PM (GMT -6)   
Congrats John! My uro told me the same thing about an ultra sensitive PSA. He also said they wouldn't do anything anyway unless it got over .1... may you have a lifetime of ZEROs...

Ricky2
Age 70

PSA 5/2008- 3.6, PSA 7/2009- 6.1, retested 9/2009-5.1.
Biopsy 9/2009. 4 of 12 positive. Gleason 3+4=7
CT and bone scan negative.
Robotic De Vince Surgery 10/29/2009. 1 night in hospital. No pain. Cath out on 11/6
Pathology Report: Gleason score 3+4. Margins slightly involved <.1mm to .25mm. Perineural invasion present, stage pT2c. Tumor 18%. Seminal Vesicle - absent, Lymph Nodes 0 of 6.
Continence- first 4 weeks after cath out Dry at night, rest of time, bladder held nothing. 6-7 pads per day. as of 12/30 no pads most of time. almost dry except for a few drips. I keep doing Kegels.
ED. Started VED on 12/17/2009. Every other day for 15 min. Cialis .20 mm twice a week
PSA 02/08/2010 <.1
02/22/10 Trimex injection .2ml less than 50% just a little discomfort.


hopenchange
New Member


Date Joined Dec 2009
Total Posts : 19
   Posted 3/19/2010 6:25 PM (GMT -6)   
Great news, congratulations!!smilewinkgrin
 
Scotty
  

Age 66

Routine physical at PCP office, with DRE and PSA Test. PSA 2.5, small growth felt on right side 

Urologist performed TRUS biopsy 9/17/09,samples sent to Bostwick Labs

Results received from lab indicated PCa 9/24/09

3 of 12 samples 80% Gleason 3+3+6 on the right side

1 of 12 samples 70% Gleason 3+3=6 on the right side

2 of 12 samples 60% Gleason 3+3=6 on the right side

2 of 12 samples 50% Gleason 3+3=6 on the left side

1 of 12 samples 5% Gleason 3+3=6 on the left side

3 of 12 samples benign on the left side

CT scan and bone scan negative

Consultation at Johns Hopkins with Dr. Alan Partin 10/20/09

Open RRP at Johns Hopkins by Dr. Partin 11/06/09, right nerve bundle removed, left spared

One night in hospital, back to hotel room for three days before flying home

Foley catheter removed 11/16/09

Post-surgery pathology shows PCa was organ-contained, lymph nodes negative, seminal vesicles negative, negative margins Gleason score 3+3=6, stage T1c

First post-surgery PSA first week of February 2010. Using one pad during day and one at night as of 1/28/10

Pad-free 3/3/10

No luck with the erectile dysfunction.  Taking 50mg Viagara 3 times a week.  Doctor prescribed 100mg daily beginning 6 weeks after catheter removal, but I can't put up with the headaches and congestion. 

2/4/10 First post-surgery PSA - <0.1

 

 

 

           


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/19/2010 6:41 PM (GMT -6)   
John, Wonderful news for you. Sounds like a brilliant (person-orientated) system with being able to get the blood drawn and analysed there and then with any questions clarified at the time with the Doc. Glad it was such a good result for you. Take care and thank you for your words. I can relate to the "passing through hallways" on a Pca journey - its a lovely, peaceful analogy I think (and will have me "pondering" on this, for the rest of this sunny day - thanks). Wishing you may zeros in the future. Lana & CJ
Creed_three (Lana) - with husband "CJ" now aged 52 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. Next PSA April 2010.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/19/2010 6:44 PM (GMT -6)   
John: What a what a great report. I'll have a draft in a frozen mug please!

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/19/2010 7:39 PM (GMT -6)   
Yippee thanks for sharing.
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/19/2010 7:47 PM (GMT -6)   
John,
Called you Mel earlier but hope you both have a lifetime of zeros.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 3/19/2010 7:56 PM (GMT -6)   
Cheers! Keep 'em coming. May you have a lifetime of them.

Bob
 AGE:58
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.


TaurusBull
Regular Member


Date Joined Jan 2010
Total Posts : 91
   Posted 3/19/2010 8:03 PM (GMT -6)   
Congratulations and celebrate!
Dx: in 6/2005 at age 49
PSA tests 3/2005: 3.8 ng/ml, 4/2005: 4.1 ng/ml, Stage: T1c
TRUS biopsy: 2 out of 10 cores positive, Gleason 6 (3+3), bone scan: neg.
daVinci Robotic Prostatectomy 8/2/2005
Post-surgical Path report: upgraded to Gleason 7 (3+4), pT2c, NX, MX.
neg. surgical margins, neg. seminal vesicles, neg. vasa deferentia
Perineural invasion: present
prostate capsule: tumor focally invaded into, but not beyond prostatic capsule.
Post-surgery PSA tests, all <0.1 ng/ml for about 4 yrs.
Then on 7/23/2009: 0.1, 10/16/2009: 0.2, retested 10/23/2009: 0.1, 1/22/2010: 0.2.
Switched to more sensitive test on 2/5/2010: 0.14 ng/ml.


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 3/19/2010 8:14 PM (GMT -6)   
John,
How wonderful !!!!
Hero
Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. involving up to 75%
da Vinci at Wash U, Barnes on 11/02/09
Modified Pathology, Gleason 4 + 3 = 7. Gleason 7 present throughout Prostate.  Negative surgical margins
4 of 4 periprostatic Lymph Nodes Negative, 10 of 10 pelvic Lymph Nodes Negative. Seminal Vesicles tumor free. No prostate extension
Post-op PSA 12/10/2009, Undetectable
12/12/2009, Pad Free and Started jogging.


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 3/19/2010 8:37 PM (GMT -6)   
Hi Defender
 
Great news may you have a lifetime of zero's
 
Mika
age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's
Retired again after 36 years February 1, 2010

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