Getting used to life after PC surgery - 3 months out.

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kendo
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 3/19/2010 2:48 PM (GMT -6)   
I just thought I'd summarise my situation 3 months post-prostatectomy and see what other think.
1. My energy level is just about back to "normal" for my age and fitness level.
2. I have some stress incontinence (= an occasional squirt) especially late in the day/evening.
3. There is some soreness where I sit down and where one of my abdominal incisions was made once in a while.
4. I still start to feel physically tired after about 4:00pm daily.
5. I have little indication of potency (= erections), have no need of it, but it would be nice for it to work again a bit better.
6. I get a bit down a couple of times a week, but know things I can do to get back up again.
7. I seem to have become more outgoing/gregarious - I find myself more inclined to talk to people.
8. I feel glad to be alive and more thankful to God and for the skills of modern medicine.
9. I am more sympathetic towards people who are ill and/or disabled, or who have lost loved ones in death.
10. I am more inclined to make numbered lists :-)

There is probably more I could say, but do any of these ring true with anyone else? I'd like to think my situation
is not too abnormal!
Diagnosed from biopsy July 28, 2009.
12 cores - all positive 100%
Stage pT3a Gleason 3+4=7, with tertiary component 5
Clear bone scan, CT scan, MRI scan
Robotic-assisted prostatectomy Dec. 11, 2009
Practically pad-free after 6 weeks.
Pathology disclosed Feb. 4, 2010 - tumour volume 9.6cc with perineural invasion present.
Nerves spared on one side.
First post-op PSA - none detectable (down from 8.2 pre-op).


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 3/19/2010 2:57 PM (GMT -6)   

#8 is my favorite: I feel glad to be alive and more thankful to God and for the skills of modern medicine.

 

 

Lets toast our glasses of lemonade that life gave us.


Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


kendo
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 3/19/2010 3:03 PM (GMT -6)   
I'll drink to that! Gotta watch that lemonade though - too much upsets the bladder! :-)
Diagnosed from biopsy July 28, 2009.
12 cores - all positive 100%
Stage pT3a Gleason 3+4=7, with tertiary component 5
Clear bone scan, CT scan, MRI scan
Robotic-assisted prostatectomy Dec. 11, 2009
Practically pad-free after 6 weeks.
Pathology disclosed Feb. 4, 2010 - tumour volume 9.6cc with perineural invasion present.
Nerves spared on one side.
First post-op PSA - none detectable (down from 8.2 pre-op).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/19/2010 3:13 PM (GMT -6)   
kendo,

i found your list honest, and most of us here have felt many of the same points as you. Your recovery so far sounds pretty decent, and hope it continues in a positive way to you. Thanks for sharing.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 3/19/2010 3:15 PM (GMT -6)   
Yep.......could have been talking about me at that same stage..........however, I didn't notice I was prone to list-making. The rest are spot-on.
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 3/19/2010 3:20 PM (GMT -6)   

Kendo

Like your numbered llist!

On March 23 at 11:45 a.m. I will be five months past surgery.

I can agree with every item on your list for the three month point.  At 5 months you will notice even more improvement.  I would say we are both normal!!

I particularly like #8 and would add:  isn't spring the most beautiful time of the year!!  Last spring I was told I had PCa and missed the season completely.

This spring I am going to take the time to smell every flower I see!!smile

Skeener

 



Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/19/2010 3:30 PM (GMT -6)   
Skeener, I loved your last line in your post.

Here in SC, spring has sprung almost over night. Dogwoods are starting to bloom, was 75 degrees today, suppose to be warmer tommorow. Spring represents new life in the cycle of the seasons. It is nice to reflect on that. I missed all I love about Fall last year, because I spent all of that season in Radiation, and the worse part about post radiation. Looking back, I regret that.

When I am on the road tommorow with a family trip, going to think about what you said and for the list above.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/19/2010 7:46 PM (GMT -6)   
Skeener: Great list...Don't think I could add much more to it. Thanks for posting. I think I will copy the list and post it by my dest just as a reminder when I hit thos down days.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/19/2010 7:50 PM (GMT -6)   
Kendo,
That is a good list and I could relate to a few, but had more pain than I wanted so wasnt outgoing and still dont do numbered list but once or twice a year. Sounds like you are on target for a good recovery.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael

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