Still no better--infection symptoms--nothing showing

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compiler
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Date Joined Nov 2009
Total Posts : 7205
   Posted 3/19/2010 10:51 PM (GMT -6)   
Went to doctor Thursday due to burning/bladder pain and constant discomfort. I urinate and then have to go back 5-6 times within 15 minutes, repeated an hour later,etc.  Very much like an infection. Just to review:  This started 3 weeks ago and cleared up quickly on cipro. In fact I was totally continent at that point. I only took 3-4 days worth of cipro. Was told to stop it as culture showed nothing although urine showed blood and WBC.
 
Unfortunately, this problem came back about 6 days ago. Anyway, Thursday we did another urine test and nothing showed. No blood or WBC. Great but my symptoms persist. Incidentally, these symtpoms are accompanied by queasiness, nausea, and lack of energy. This is another reason I think it is an infection.
 
Also compounding this was my suspicion that viagra could be causing this. It started 3 weeks ago a few days after I started the viagra. When I took the cipro I stopped the viagra. A few days before it started again I had restarted the viagra. However, I stopped the viagra a few days ago but these symptoms continue.
 
Doctor did prescribe cipro, although he is skeptical that there is an infection there. I will start it on Sunday if things don't improve (we want to give the viagra theory a chance). Also, I am cutting out cranberry juice and pomegranite on the advice of a P/T who specializes in incontinence. She says they are very acidic and could inflame the bladder. My doctor said the PH of the urine was 5.0, which is within normal range but on the acidic side. I am trying to drink more water. I'll reintroduce those juices when this clears up.
 
So far, none of these things are working. I hope it does, but I suspect I'll be on cipro soon.
 
Incidentally, I am allergic to sulfur antibiotics, so that's why they do the cipro. That drug has generally worked for me. Hope I haven't fostered some resistent critters to it.
 
Very frustrating. I've still managed to go to work and I've been busy, but took a break from HW for a bit.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent!

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in late May.


zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 3/20/2010 4:02 AM (GMT -6)   
Wonder if you have 'chronic prostatitis' a snipet of info here the rest you can read at www.marinurology.com

Urinary Tract Infections of the Prostate

This is an abbreviated version of the complete article.*
Basic Facts
Prostatitis is an inflammation of the prostate gland.
Inflammation is a result of an infection or nonbacterial processes.
Acute prostatitis usually responds to 14 days of antibiotic treatment.
Chronic prostatitis usually clears up in 12 weeks with antibiotics. It may not resolve, however, and require other medication to eliminate the symptoms. 

Not claiming to know or have answers for you, but this website is very good for explaining alot of issues on urinary and prostate things.

Hope things get better for you with something or over time. (added after posting:  Prostatitis could go undetected by doctors I have heard this said by Dr. Strum and others, acute vs. chronic versions listed above, there might be one more type of prostatitis too, I remember reading about 3 types).


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 3/20/2010 8:57:05 AM (GMT-6)


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 662
   Posted 3/20/2010 6:58 AM (GMT -6)   
Mel
It sounds very very frustrating for you. Best of luck
Hero

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/20/2010 7:06 AM (GMT -6)   
Mel, you said what the dr. thought it wasnt. What did the dr. think was going on?

Also, after surgery and during the time of trying to overcome incontinence, all juices are on the no no list. THey can and will irratate the bladder walls and can cause urgency problems, the same as any beverage with caffine, or any thing carbonated. Since I only drink water 95% of the time, it was no sacrifice for me. I did find that I could still drink my fave Italian Mineral water with no problem, as its not artificially carbonated, the brand Pellegrino.

Good luck, there has to be something going on with the other general feeling of malaise you mentioned.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 3/20/2010 7:29 AM (GMT -6)   
I hope you get some relief soon. I recall your didn't have the standard foley after surgery. Do you think that may be an issue if it was a new process. My doctor kept my catheter in for 14 days. When I asked to have it removed aftetr 9 like most folks, he said he didn't believe the bladder healed that fast.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
20 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/20/2010 8:54 AM (GMT -6)   

zUFUS:

I assume it's not prostatitis since I don't have a prostate.

My doctor does not really have an answer. We are testing the viagra theory, but so far no improvement. I'll start cipro tomorrow, probably.

Discomfort, burning, pain, and spending lots of time in the bathroom seems to be happening 95% of the time now, so it is very frustrating. I do remember after the cipro it got better very quickly last time, so hopefully this will get better after I start the cipro.

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent!

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in late May.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/20/2010 8:59 AM (GMT -6)   
I don't know if it is possible to have the bacteria from prostatitis linger throughout the body after prostate is removed?? Didn't say I knew what was going on, but wish you well.
Youth is wasted on the Young-(W.C. Fields)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/20/2010 9:26 AM (GMT -6)   

David:

 

I did not know that about juices. I was drinking pomegranite every day, OJ every day, and other juices. I am now sticking to 80% water. I generally don't drink caffeine or carbonated beverages. I did have some grape juice and some apple juice yesterday.

This situation gets worse as the day goes on.

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent!

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in late May.


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/20/2010 9:39 AM (GMT -6)   
MEL- the doctor at the lecture stated that apple/grape/cranberry juice was fine for incontinence - but citrus juices (orange juice) is a main No-No as is carbonated caffeine beverages like colas and pops and coffee and tea
- decaf tea and coffee is supposed to be ok -
-prior to surgery I would use green tea to flush my system out - it is healthier tea and post surgery - did not affect my incontinence much...

BRONSON

p.s. keep in mind that extra stress can create a acidic release in your body - like extra acid in your stomach - which is converted into fluid that is flushed out ...
p.p.s. for the time being, my reaction would be to drink water only until this is resolved ( or otherwise directed by your doctor)
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 3/20/2010 11:39 AM (GMT -6)   
Mel - a glass of OJ in the morning is the best way to completely ruin an otherwise marginal day for me. Over 21 weeks, I've tried a few times to put it back in my diet, each time followed by one or two days of several extra pads and problems.
I do drink alternating 100% cranberry & 100% cherry juices in the mornings - no more than 8 oz. a day total - the cherry helps my gout. Two glasses - sometimes too much.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/20/2010 11:54 AM (GMT -6)   
for 142 - note: glad to see the black cherry juice is helping your gout ( part of your all around health) - my cousin is using that too for his gout... the bioflavinoids help break down the protein crystals that cause the inflammation and pain
- a good add on to that daily routine is Vitamin C with Rosehips - a natural bioflavinoid ...

hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5823
   Posted 3/20/2010 1:32 PM (GMT -6)   
I had something similar happen. At 2 mos post op, was recovering nicely and then got sick, with a fluctuating fever from 100 to 102.7. Urine culture negative, bloodwork negative for infection. plus pain and pressure in the bladder and pubic area. They are lymphocels( google}. Most will self-resolve, mine did. However that still didn't explain fever. I was on anti biotic levaqua [sp], but was taken off cause fever persisted. Both gp and uro couldn't figure it out. Any way it lasted 3 weeks and resolved itself. Like you I worried alot about it. I feel great now, 5 mos post op. So much is going on down there post op, that and our negatively thinking minds create a lot of havoc that is unnecessary. I bet and hope yours is already resolving. The farther out fm surgery you get, the better it gets. The psa anxiety is real, wish I could master that one, next one in May.
But if I have 2 choices in how to think about all this, I choose the one that will make me feel good, rather than the other. Does this change what is really happening? No, but up untill, my positive thoughts are proven wrong, Im Happy, those around me are happy. I don't think Im being Pollyannish, but it works for me. No matter what negative news develop, there is always a positive involved, thats the one to focus on right up to the end, and there is an end for us all, isn't there!! Its more than, dont worry be happy, or maybe not. I hope for and expect the good and when it doesnt happen , I still expect it from that point. I don't like to call it a " good attitude ", too simplistic. Im not glossing over the truth, I guess, if you will, in a way, Im transcending it . You can't change the reallity of what is, tho some would argue that point, me included. Sorry for the rambling, hope it helps. They say hope is a good breakfast but a lousy supper. It tastes good to me whenever I eat it
age 66 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
11% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 4+3 with tertiary 5. That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
8 week psa 0,0


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/20/2010 1:51 PM (GMT -6)   
logoslidat - that is a very good approach to life - we are often so eager to embrace the bad when it is so much better to embrace the good ( which prepares us for the bad)

optimistic-pessimistic hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


phillycheese78
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 3/21/2010 2:49 PM (GMT -6)   
I've had almost identical symptoms as yours. I've done three rounds w/ cipro, one for 90 days and it still hasn't cleared up. It goes away for a while, but comes back. I'll continue to go to the Dr. to figure out what it is so we can find the root of the problem, but for a temporary fix and immediate relief, I've found some things that really help:

- Stay hydrated. I mean really well hydrated. I can always feel it coming on if I've drank a lot of coffee, had some alcoholic beverages, or just dehydrated. Proper hydration and avoiding the drinks I just mentioned go a long ways in prevention.

- If the pain/frequent urination comes on, I go drink as much water as I possibly can until my stomach almost hurts. I know it seems counter-intuitive to drink more water to make you urinate more, but by drinking a large amount of water, it helps dilute whatever is causing the acid in your bladder. If you drink the water and then hold off going to the bathroom as long as you can (typically 10-20 minutes), it will go away. It has worked every time for me since I started doing this.

This is by no means a cure, but it works well for immediate relief. Just make sure to stay hydrated more than most people. I go to the bathroom a lot more than anyone I know, but it's all in an effort to stave off the pain that is caused by whatever this is.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/21/2010 6:55 PM (GMT -6)   
pHILLY:
 
Thanks for the advice. Did the cipro help at all?
Are you on Viagra and did that perhaps bring on the symptoms?
What about various juices (cranberry, pomegranite, etc
 
i'LL HAVE TO try the water. I have never had much thirst.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent!

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in late May.


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/21/2010 6:55 PM (GMT -6)   
pHILLY:
 
Thanks for the advice. Did the cipro help at all?
Are you on Viagra and did that perhaps bring on the symptoms?
What about various juices (cranberry, pomegranite, etc
 
i'LL HAVE TO try the water. I have never had much thirst.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent!

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in late May.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/21/2010 8:18 PM (GMT -6)   
Mel, I hope you get some relief soon, and an answer to your current situation.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


phillycheese78
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 3/21/2010 9:31 PM (GMT -6)   
The cipro did help, but it was always just a temporary fix. The burning and pain always came back. I haven't taken Viagra and I've yet to notice a big difference with trying any of the juices. The water for me was the best immediate fix when the problem came on.

As for preventative, I haven't figured that one out yet and would love to know if anyone has found out how to prevent this in the future. I'll do whatever i need to keep this from happening again. It's quite painful as you well know.

Post Edited (phillycheese78) : 3/21/2010 9:37:03 PM (GMT-6)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/21/2010 9:59 PM (GMT -6)   

Philly:

Just a thought: it might be the anti-inflammatory aspects of the antibiotics that helped.

Have you by any chance tried ibuprofin?

I will try that before I try the cipro again.

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent!

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in late May.


phillycheese78
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 3/21/2010 10:52 PM (GMT -6)   
You know, I've taken ibuprofen before but usually at the start of an onset, and then do my "water" cure and it goes away, so I'm not sure I've given the ibuprofen a fair shake. You're right, it could be something that helps. I'll give it a shot w/out the water if it happens again and I'll post the results. Thanks for the insight.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 3/22/2010 7:05 AM (GMT -6)   

Philly:

Maybe we can also chat by email. Yours is not shown, but drop me an email and I'll get back to

you. When you try your high water intake, I gather it stops the pain/irritation. But does it help regarding the need to be chained to the bathroom (I would think not, but...?).

Also, I find I am often better in the morning but get worse as the day goes on. Do you find that too? That aspect is also typical of some of the garden variety incontinence.

I may again consult a P/T. We have one that specializes in incontinence. I saw her once. Her tests seemed to indicate decent muscle strength/tone and that I was doing my kegels correctly. She was also suspicious of an infection.

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent!

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in late May.

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