Recurring Cancer

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Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 3/20/2010 11:55 PM (GMT -6)   
mad Well Im sorry to say it has raised it ugly head again
ive been gone for a while so here is a brief history
Prostate Cancer March 2007 Had radical prostectomy. Was  0.1 to 0.2 PSA till present march 2010 Last psl .04. Was a Gleason 7 4/3 at diagnosis. This march was my third aniversary of no cancer detectable and I got the news that it was now .04 and in the opinion of the urologist it is reoccurance in the bed where the prostate was before surgery. They had removed all the lymph nodes in area at time of surgerh and not cancer was dected in the nodes at that time. My margin at surgery were uncertian but they felt it was contained. Now they say a few may have escaped or there may be som tissue still there that is causing the increase in psa.. They have recommended i go to radiation therepy. I have a appiontment tuesday for consult. So here I am again all shook up concerned and like most of you all probably aprehensive and have to admit a little scared. I am very concernes as ill be 62 in june and still have lots of financial matters to clear up due to my earlier years of over charging and spending. Now Im concerned that i may not live long enough to get it all clear so my wife isnt burdened...  Yeah i know I was stupid :) But now I dont feel positive that my life expectancy will be long enough to clean it up :)   and Not sure what to look forward on the treatment. I was scared stiff of the surgery and this form was great you all got me through it and i can never thank you all enough. just wanted to check in and see if anyone has any good statistics on survival after reccurance and  radiation treatment so I can at least my my death to be more bearable for those i will leave behing.. Gee i sound morbid but im really confused... any way if  you feel like kicking me around a little id appreciate it.
 
thanks
 

Ricky2
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 3/21/2010 12:11 AM (GMT -6)   
I think you mean that your last PSA was .4 and not .04. The uro would not recommend IMRT if it was .04. There are some very positive things that you should consider. It has taken 3 years for reoccurrence to show up. That means the cancer is not very aggressive and can probably be caught in the prostate bed. (at least 50% chance and maybe better than that) If it does become a systemic problem there are many treatments available that can keep you alive to a normal life span. THINK POSITIVE!!!
Atitude is everything!

Ricky2
Age 70

PSA 5/2008- 3.6, PSA 7/2009- 6.1, retested 9/2009-5.1.
Biopsy 9/2009. 4 of 12 positive. Gleason 3+4=7
CT and bone scan negative.
Robotic De Vince Surgery 10/29/2009. 1 night in hospital. No pain. Cath out on 11/6
Pathology Report: Gleason score 3+4. Margins slightly involved <.1mm to .25mm. Perineural invasion present, stage pT2c. Tumor 18%. Seminal Vesicle - absent, Lymph Nodes 0 of 6.
Continence- first 4 weeks after cath out Dry at night, rest of time, bladder held nothing. 6-7 pads per day. as of 12/30 no pads most of time. almost dry except for a few drips. I keep doing Kegels.
ED. Started VED on 12/17/2009. Every other day for 15 min. Cialis .20 mm twice a week
PSA 02/08/2010 <.1
02/22/10 Trimex injection .2ml less than 50% just a little discomfort.


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 665
   Posted 3/21/2010 12:23 AM (GMT -6)   
Telstar, I am in a similar situation as you - except my PSA is still down at 0.2. I have looked into it, and as Ricky mentioned, the fact that it has taken this long to recur really helps your chances. Radiation is still a possibility (and decent probability) of a cure. There are quite a few here that have had the SRT (radiation after prostatectomy), and have had little side effects. Their PSA has dropped to undetectable afterwards. Believe it or not, your chances are better that the PC can be cured with the SRT if your margins are positive than if they are negative. If mine rises, I plan to do the SRT, and I also plan to survive. As Ricky said, Think positive. You may just have plenty of time to aggravate over that debt.
Best Regards (and prayers), Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09, 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
Mar 1, PSA 0.17


Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 3/21/2010 12:30 AM (GMT -6)   
Thanks Ricky2... and your right was a .4 not .04.. thanks for the encouragement

Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 3/21/2010 12:31 AM (GMT -6)   
oops... thank you 2 IM_Pateint...

skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 3/21/2010 6:33 AM (GMT -6)   

Telstar

Sorry to hear your news.

You have every right to feel morbid and confused.  I can remember my orginal diagnosis a year ago.  It is like you are getting that first diagnosis and going through that situation all over again.

Don't beat yourself up over the past as you deal with the present challenge.

From what I have read about extensively, with your stats, you should be around for years and years.

Please keep us posted.

Skeener 

 


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 3/21/2010 7:22 AM (GMT -6)   
You still have a "cure" card left - SRT. Sloan Kettering has a nomogram that predicts probability of success with SRT. As others said, it is usually 50%+. In my case (I am doing a combination SRT+HT) it is over 65%. So, you have decent odds to beat this beast.

Should that fail, you are stll not at the end of the road. You probably have several years where you can manage this disease quite well. There are many who manage it for 10-15-20 years. So, you are still more likely to die from a heart attack.

Finally, I remember my first coherent thoughts after being diagnosed were about providing financial security for my family. I have written myself off. Don't do it! You have many years of living to do and while you should not ignore the financial side, please focus on living.
Father died from poorly differentiated PCa @ 78 - normal PSA and DRE
5 biopsies over 4 years negative while PSA going from 3.8 to 28
Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8
Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere + Avastin)
PSA prior to treatment 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60
RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins
PSA undetectable for 8 months, then 2/6/2009 0.10, 4/26/2009 0.17, 5/22/2009 0.20, 6/11/2009 0.27
ADT (ongoing, duration TBD): Lupron started 6/22/2009
Salvage IMRT to prostate bed and pelvis - 72gy over 40 treatments finished 10/21/2009
PSA 6/25/2009 0.1, T=516, 7/23/2009 <0.05, T<10, 10/21/2009 <0.05, T<10


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 3/21/2010 8:25 AM (GMT -6)   
Telsatr,
You got some great feedback from the group here, so not much that I can add. Do think positive even though we all have down moments.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/21/2010 10:22 AM (GMT -6)   
While your news is exactly what a PC survivor never wants to hear, it happens. It has happened to more than a few of here at HW. The fact that it has taken 3 full years to reccur with you, works better in your favor. We have brothers here that have had instant recurrance, or at 3 months, etc. Mine was declared at 9 months.

What another said above, is that you have used up only one of your two "possible cure" cards with your surgery. Thank goodness you still have your "salvage radiation" card to use in the first place. You should be meeting with a good and experienced radiation oncologist, preferable one highly experienced with lots of prostate cancer patients. You should discuss having radiation done with or without adding HT to the mix. There are good arguments on both sides of that issue, and I have personally spoken to very experienced radiation oncologists that can make a case for not adding HT, and for adding HT. Would depend a lot on their experiences and your particular case.

And as others have pointed out, even if that second card ultimately failed, you are not at the end of your rope or life for that matter.
Our brothers that are in advanced case situations, many are doing quite well on their chosen protocals.

So, at this point, the news sucks, I know, been there done that, but you still have choices and more paths ahead. Good luck, and keep us posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/21/2010 10:50 AM (GMT -6)   
Hi Telstar, rotten news, yes, but I'd not be surprised that Geebra is right, you should be more worried about dying of a heart attack. I've told the story here before of my friend who was, like you and David, and many others here, given the news that his PSA was rising and he needed to be zapped. His doctor said, "We've knocked it down, not out. Now we knock it out." That was 18 years ago, he was about your age then, now 80 and goes to the office everyday when he's not traveling the world. Right now he's in Palm Springs. And his PSA is zip.

If my next PSA is up, I'll be terrified too. I don't suggest your reaction is wrong. But, I hope after a few days when the kick to the stomach eases you'll come round to seeing that it's a problem, yes, but very likely a manageable one.

Anyone who has the guts to dig themselves out from under a credit/cash mountain has the gumption to smack their PSA back down too. Go for it!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 3/21/2010 12:52 PM (GMT -6)   
Telstar,
Good advice from everyone so far. I won't repeat what they've said, but I will point you to a short layperson's guide I put together on the topic of recurrence and salvage radiation. Some of it repeats what others have told you here, but perhaps you will see additional information or find the links useful. You can find it here:
http://knol.google.com/k/salvage-radiation-for-prostate-cancer#.

I also kept a blog before, during, and after my own IMRT after rising PSA. There's a link in my signature if you're interested.

Don't despair.

G.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 5/21/2010 7:29 PM (GMT -6)   
thanks everyone... i couldnt find my post so sorry for not responding... just found it by accident when i started a new on {)  so igonore the other on lol.  Will i did my dry run today start the radiation monday " nervous yes,  Scared not really, hopeful remains to be seen. "
more concerened to side effects than other stuff ... and finding out from real experiences and not the text book stuff the docs throw at you ... thanks a gain guys.
 

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 5/21/2010 7:56 PM (GMT -6)   
Telstar,
Good to hear from you again and glad you are going to get started with the needed treatment. Mine went fairly well with no major side effects. So hang in there and count them down and just take it day to day. keep us posted on your progress.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 5/22/2010 6:42 AM (GMT -6)   

Telsatr,I am sorry to hear that pc is back.I just want to tell you that we have a great group group here

and you need to have the faith that you will be it God bless you.

 


DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 5/22/2010 7:36 AM (GMT -6)   
Thanks all and i apogize for the wrong post due to my forgetting how to find this one ( the correct one lol ) Guess that tellse me to log on more :). I thinki ill be ok not so much aprehensive of the treatment itself as to the side effects. I really want to be active an continue with my normal routing but fear that side effects can stop me. Im a natural hypochondract so can dreeam up stuff :). I try not to read too much into side effects but do need to know what will happen not what may happen :)
if i know it will happen i can at least prepare for it.. but so far it seems the common factor is some naseau and some bladder pain .. As of for the rest they are not so comon... ill try to post at least once a week during the proceedure so if any one is following they can follow my progress.... It is people like you all that help make the trip a little better. and of course i do believe God will be following the case too :)
thanks again for your responses...

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6980
   Posted 5/22/2010 11:01 AM (GMT -6)   
I put my comments on IGRT in a post on your other thread (others have posted on it as well, so go back and have a look) - so won't duplicate them here, but I do wish you the best.

Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 5/24/2010 12:25 PM (GMT -6)   
Well made it to my first treatment today.. Was nervous and a little aprehensive but got throuht it ok. Found out im not getting proton but conventional radaiation in a focused area... Hmmm now I have to consder what ive learned about proton and Conventional... I hope it is effective. Was told i would feel nothing and the process took only about 2 mins 15 sec at Top bottom and each side... Im not sure on the not feeling anything... True did not feel nothiing from the radiation but after it was done and i stood up did feel a little queasy in the radiated area... sort of a full feeeling or needed to take a bowel movement feeling... but was not bad. Is this normal or am i imagining it :).
any day one of 35-38 done :)
thanks for all the help people

Hope and Prayer
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 5/24/2010 3:44 PM (GMT -6)   
Good luck Telstar! BF was queasy/nautious with RT. Dr. prescribed Zolfran that you can take before RT. He only took it a few times since the symptoms lessened. His treatments are in the morning and he has a ritual of eating a muffin/banana before going in. Something in the stomach helped.
Boyfriend dx at age 44 with Stage 4 PC on 11/09. Gleason 4+5, 11 of 12 cores +; PSA 51.34
DaVinci surgery on 12/09

Gleason 4+5 confirmed. Lymph and vesicle invasion, right nerves spared.

HT: Casedox and Lupron started 1/10

PSA 1/13/10 23.15 2/8/10 .37 3/18/10 <.05 5/14/10 <.02

Bone metastasis

Radiation: 42 sessions ending 6/10


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/24/2010 4:02 PM (GMT -6)   
tel, glad you got your first one done. radiation treatments are all about an endurance contest, just getting through one day at the time, then one week at a time, until you get through it. your nausea probably wasnt related to that first "zap", but its possible. i had a real hard time with my salvage radiation, and i started getting nausea before the end of the first week. every body reacts different to radiation poisoning, so it can vary. most guys feel nothing at all. i wish you luck as you continue on your path.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 5/24/2010 9:51 PM (GMT -6)   
Maybe im being a big baby :) but i dont like being sick... just found out about the BRAC diet. bananas rice apples and cheeese any one else heard of it ... supposed to help fight diarehea and nauseau... as of today was my first treatment not sure if the nausea and slight stomache ache was readiation or just in my head ... was pretty nervous and wound up tighter than a rubber band airplane...
61y/o radical prostectomy 2007 gleason 7 4+3 7. Prostectomy completed March 2007
1st Psa 0.02 5 weeks after surgert 2nd psa 90 days out of surgery 0.01 stayed at 0.01 for 3 years
the 3 year 3 months .02 6Monts still .02  till march 2010 psa .04... recomended for SRT treatments started  24 May 2010 Psa Unknown not tested pre treatment. Scheduled for 37-38 treatments do not know gry level.
 


Hope and Prayer
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 5/25/2010 3:20 PM (GMT -6)   
Nervousness can definitely do a number on the stomach!! I've read that cold drinks v. hot drinks help the nausea as well as, the BRAC diet, salty foods like pretzels/crackers, ginger whether ginger ale, ginger candy. You can also get a prescription for Zolfran for nausea if it becomes intolerable. For diarrhea, BF took a half to one pepto tablet every day. He also maintained his workout regimen along with running/walking. I think the exercise helped him. After today, he has 5 more treatments to go. All in all, he faired well considering and hope you do as well!
Boyfriend dx at age 44 with Stage 4 PC on 11/09. Gleason 4+5, 11 of 12 cores +; PSA 51.34
DaVinci surgery on 12/09

Gleason 4+5 confirmed. Lymph and vesicle invasion, right nerves spared.

HT: Casedox and Lupron started 1/10

PSA 1/13/10 23.15 2/8/10 .37 3/18/10 <.05 5/14/10 <.02

Bone metastasis

Radiation: 42 sessions ending 6/10


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6980
   Posted 5/25/2010 3:47 PM (GMT -6)   
I'm at #24, and nausea has not been an issue for me. I can't say that I have had the sensation of feeling anything at all during the treatments other than discomfort in my back (I have some disc damage). That has me taking an ibuprophen before hand some days, but stopping the Cialis helped more.

Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 6/6/2010 7:28 PM (GMT -6)   
I all thanks for the replies. You all make me feel a little more confident as the doctors act like its a sin to give you information :)
well I have made it for the first 2 weeks so fare with mostly symptoms i create myself :) Have had one spell of stomach upsets and diahreea but I dont think it was due to radiation but someting i ate on memorial day. I still cant seem to get information on my exact stituation from the doctor... If im dead tell me lol. < kidding. Im mostly concerned about the after long term of radiation... but again doctor just says every one has a different road... .Like you 142 I have some back problems but the pain i get from treatment is mostly due to lying on the slab not radiation... I cant seem to get good info on long term prognosis from medical staff and they tell me im in a sort of catagory that no real studies have been done.... As I had the surgery 3 years ago and was cancer free till this year and at time of reoccurance was only at .04 Psa my pathology i had a t1 tumor contained ( or so they said ) margins unknow... so i guess they were wrong on contained.. they said it is possible the tumore was conataiend however a "few" cells may have been left behind.. I also had the nerve sparing proceedure so am curious if the cells could have escaped to the nerves. Any way back to the bs they are feeding me. They are radiating the prostate bed to kill the escaped cells and feel it will probably be a possibe cure... BUT < the old "but" as not long term study can predict if i ll have another reoccurance. According to th e study i saw people with worse cancer reoccurance have a better chance of recovery than i do So i wonder did i just waste my time... If im still only going to survive for a few more years then i want to get out my bucket list and go enjoy the time i have left not spend it on cold tables and strange medicines...I know i can still have chemo and hormone but I dont want to go through that as they wont tell me any stats on it either... Ive been very lucky the Lord has given me the time i have had so far so not going to waste what is left. Any way ive vented and feel better :) Hoppe is all that is left and you all do give me HOPE thank you so much


61y/o radical prostectomy 2007 gleason 7 4+3 7. Prostectomy completed March 2007
1st Psa 0.02 5 weeks after surgert 2nd psa 90 days out of surgery 0.01 stayed at 0.01 for 3 years
the 3 year 3 months .02 6Monts still .2 till march 2010 psa .4... recomended for SRT treatments started  24 May 2010 Psa Unknown not tested pre treatment. Scheduled for 37-38 treatments do not know gry level.
 

Post Edited (Telstar) : 6/6/2010 6:36:21 PM (GMT-6)


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 6/6/2010 9:06 PM (GMT -6)   
Don't fault your doctors. The ethic of medicine is " don't believe it until you are very certain that it is true. " In most cases this means that 95 out of 100 patients would be cured. So if your docs think that there is an 85% chance of curing you they are going to follow the rules and waffle.

Know that what you are doing does make good sense in terms of outcome -- the fact that the docs can't predict which patients will have those good outcomes keeps them silent, But if you could get odds like this in a casino, your money problems would be over.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day
9 mo. PSA 0.00 -- 1 light pad/day ED remains
12 mo. PSA 0.00 -- still one light pad and ED


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5868
   Posted 6/6/2010 11:43 PM (GMT -6)   
U keep saying .04, when u mean .4, the decimal points mean a lot in this business
age 66 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.

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