Motorcyclists on HealingWell.

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JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 3/22/2010 9:31 AM (GMT -6)   
Monday Morning Ride to the top.
======================
 
I know many of us on this board are motorcycle riders or at least motorcycle enthusiasts but we also share the beast that can make our lives and family members, oh so miserable.
 
So . . . . . . . . . . . .
 
I have started a new Facebook for us bikers and hope you will join us at:
 
 
Jerry in Canada.
.


Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
 
First PSA test since surgery on March 18th.
with the results of 0.03 !!!
 
Next appointment with the surgery Doc is April 13.
 
Started a Facebook page for bikers with prostate issues at:
 
IMRT to start approx. April 26.
 
.

Post Edited (JB71) : 4/7/2010 11:00:03 AM (GMT-6)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 3/22/2010 12:52 PM (GMT -6)   
I'd ban this guy. ;-)
Jerry, Just kidding. I couldn't resist.
Jeff

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 3/22/2010 4:20 PM (GMT -6)   
Does an old Honda 550 count as a motorcycle or is that a scooter to you ?
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 3/22/2010 5:52 PM (GMT -6)   
Definately, that's a motorcycle. Is this a 550 Four?


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 3/22/2010 6:01 PM (GMT -6)   
Yes, I've had it for years !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 3/22/2010 6:05 PM (GMT -6)   
I ride a 1995 Red Honda Nighthawk 750.

Patriot Guard Rider since 2006.
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
three months -> .03 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 3/23/2010 5:13 PM (GMT -6)   
Goodlife and Red Nighthawk,
why not post a picture or two of your bikes on our facebook ?


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/23/2010 5:44 PM (GMT -6)   
Had a sweet Honda 550/4 in NH years ago, someone put 4 into 1 expansion pipes on it, sounded like a grand prix bike at the time. Ended up trading it off for 5 cords of firewood one winter.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 3/23/2010 5:50 PM (GMT -6)   
Dang, The Hell's Angels have taken over the board. I knew it would all come to a bad end.

Men, guard your women and children.!


I WANNNA GO on a motorcycle....everyone has one but me.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 4/7/2010 10:01 AM (GMT -6)   
A 'bumpy' ride back to the top.

Post Edited (JB71) : 4/8/2010 11:40:45 AM (GMT-6)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/7/2010 2:47 PM (GMT -6)   
the last time I saw a bunch of motorcyclist was at the country style donut shop on the main highway out of town ... a tough looking bunch .. until we got close and overheard their conversations... they were all dentists !

hog-envy hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 4/8/2010 12:44 PM (GMT -6)   
tatt2man,
 
CONGRADULATIONS on your PSA numbers.
 
You and Steve should celebrate by buying a pair of scooters and then you can join our Biker's club.
 
I hear Vespa's are the choice for many artists.
 
Jerry.
.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/8/2010 1:09 PM (GMT -6)   
Thanks Jerry - I do appreciate your support - and yes, I do like Vespa's - it's the European lines and flow...

- but would have to find something with a sidecar since Steve doesn't drive ( he had very bad vision since his 20's - now after cataract surgery he can see better than me !)

vroom-vroom hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
............


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 5/1/2010 3:21 PM (GMT -6)   
Weather here is great so I'm going for a ride.
 
This is your "May Day Bump"
 
Jerry in Canada.
.
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