After resting my bladder neck for a full week, as my dr. advised, I did as instructed and turned off the cath and went "natural", didn't make it even a full hour. Too much pain, and pressure, hurt terrible. So, quit, as dr. advised this time, and back on the cath 100%.
Sitting here, aching pretty bad down there, despite being on a pain tab. Very very disapointed, after having went through 2 surgical corrections 6 weeks apart, and 2 periods of recovery where I was wearing 2 catheters at the same time (no way to really explain how that feels unless you experience it, and I trust no one ever does).
I see my uro/surgeon next Monday, won't be any more testing in between. He is wanting to look up me again with the scope, under heavy sedation, but if hurt as bad as I do right now, that's not going to happen. I believe that most of the issue right now, is still post-radiation swelling and damage to the area. One version of what will happen is simply nothing. Swap out this SP cath for sanitary reason, of course, and not poke around or doing anything invasive down there for another 3-6 months to see if I can get some natural healing.
David in SC
April 1 will make six months on the SP, never would have dreamed of that.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days