Almost ready for RT

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English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 3/23/2010 1:02 PM (GMT -6)   
An update

I'm due for radiotherapy, because my PSA is already up to 0.4, so what do I know so far?

I saw an RT doc for the first time today. (At the same place they did the da Vinci so it also involved another day trip to Amsterdam, but this time I went on my own as my wife had to work today - and was not even in the country)

I am to have 33 "shots" of 2Gy each: weekdays only so about six and a half weeks in real time.

I'm not going to have hormone therapy at the same time. (He says they only due that when giving RT when the prostate is still present.)

They have not yet fixed a date for me to start RT but it will be about 3 weeks from now. Before then they have to give me a CT scan to make a 3D map of my insides to work out where to aim the "rays". (Tattoo time and my wife will be able to be there; she wants to be there.)

They are going to send me my schedule and an info pack and are also going to give me details for a diet to help my bowels etc during and after the RT. They will also give me some medication to help protect my bowel etc.
During each week of treatment I will also have an appointment to speak to a doc about any queries, pain discomfort etc.

And...
There was a query a while ago about how many tattoos people had, well perhaps this explains why people had different numbers. He said that I will have three marks made on me left right and centre that the machine will use to make sure it is set up in the same place each time, but the actual beams will be aimed at five or six angles to direct them to the right place. So perhaps some machines need three marks to aim in six directions and others need six?

So it looks like in about ten weeks from now I might be finished with RT.

They have told me to expect the incontinence and ED situation to be worse in the short medium and long term.

Alfred

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/23/2010 2:48 PM (GMT -6)   
Alfred,
Sounds like a good plan of action. Not sure what meds they would give you for bowels other than Immodium or something similar. I ate light during IMRT as I did not want to experience loose bowels and constipation at the same time. But keep us posted as you get closer to tx. time. The best to you
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/23/2010 2:57 PM (GMT -6)   
It should go well and you will feel tired at some point and dragged down...but it does get back to normal and that goes away. They will probably have you drink a bunch of water before radiations to help extend bladder away from prostate is the concept. You may be asked to not move at all and breathe gently while under going radiations, you will be wearing a gown or maybe towel...modesty is naturally compromised..., atleast it is not a DRE with other people around.
You already knew this stuff, but good fortune to you and your post on what to expect for surgery etc....just an excellent writting and heads up article.

I didn't have surgery prior, radiations only, but no incontinence issues....glad that turned out so. Maybe you will do better on that front than you are lead to think.


Youth is wasted on the Young-(W.C. Fields)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/23/2010 3:35 PM (GMT -6)   
ALfred,

Sounds like a reasonable radiation plan, I think that since you are at .40, there's no point or gain by letting that PSA climb any higher. 66 gys is somewhat typical in dose.

Can only speak for myself, salvage radiation didn't change my continence situation at all, dry before dry after (even when testing off the catheters), and I had no ED before radiation, and still have no ED (at least for now).

This is a good pro-active curative step you are doing, so I hope only the best for you, and hope it stops the beast dead in its tracks.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/23/2010 3:46 PM (GMT -6)   
Alf, sounds like a plan. Hope you have an easy and uneventful treatment course.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 3/23/2010 4:53 PM (GMT -6)   
Alfred, best of luck!
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 3/23/2010 5:07 PM (GMT -6)   
Hi Alfred,
 
I had the same amount of SRT as you (66 Grys - 3 dots) over about 6 weeks. Had no additional meds of any kind. Had some anal discomfort and bleeding towards the end, but it was uneventful otherwise. Everything started to return to near normal about 2 month after the SRT. Hope it'll all turn out well for you. Best of luck.
All the best to you.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


bemis
Regular Member


Date Joined Feb 2010
Total Posts : 38
   Posted 3/23/2010 7:50 PM (GMT -6)   
Alf Good luck with your treatments. I to am starting soon, line up next thursday, then start treatments 4-13.I'm makeing little if any progress with incontenence [6 pads a day] and worry about starting RT before it improves,But I don't want to wait to start killing the potential cancer cells.I just hope the storys about no improvement after RT are false .DICK
age 55 /psa 10-09 5.4/biopsy 11-09 Gleson 3+3=6 3+4=7/ Radical prostateectomy 1/22/10/pathology positive margins and extraprostatic extension pY3a


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 3/23/2010 8:13 PM (GMT -6)   
Alfred hope everything goes according to plan good luck!!!!!!!!!!!
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05

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