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keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 3/24/2010 10:25 AM (GMT -6)   
I get to have one this afternoon, steam has been getting slower and slower since surgery. Is there any pain involved with this event? I sure don't want things to completely close up. Any info would be appreciated.
 
 
Thanks  Neal

 


age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes

Post Edited (keysailfisher) : 3/24/2010 3:45:25 PM (GMT-6)


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/24/2010 11:32 AM (GMT -6)   
I would say more discomfort than pain. Lidocaine gel is inserted into the penis first, then the scope. My technician was gentle with the gel and it wasn't too bad. The only pain I experienced is when I already had a blockage and the doctor used dilation to free it up. Again, more discomfort than pain, not as bad as I had imagined. But, I could be happy if I did not have to get another one. You will be fine. It is better to take care of the blockage problem as soon as possible. I ended up getting surgery done under anesthesia to finally open up the blockage. So far so good. The longer you let it go, the harder it is to fix. David and I don't want any new members in the "plugged up club". Good luck and don't worry about it. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream.  Unfortunately, incontinence back to post surgery level.


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 3/24/2010 11:51 AM (GMT -6)   
Neal,  I had a problem with a bladder neck stricture about six months after surgery.  Squid covered the procedure very well.  The cysto itself was a non-event.  The flexible dilating sounds used to open things up were somewhat uncomfortable.  If you have to use the larger dia. metal sounds, they will curl your toes.  The good news is that the procedure works well most of the time.  Complications like David, kbars, and squid had are not the norm.  Google "dilating sounds" for some pictures. 
 
Carlos

Diagnosed 2/2008 at age 71, Gleason score 5+3=8, stage T1c, PSA 9.1. 
Robotic surgery 5/2008, nerves spared, All margins, SV and lymph nodes negative. 
Staged pT2c, Gleason score 5+3=8.  PSA <0.1 at 20 months, Jan. 4, 2010.


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/24/2010 12:25 PM (GMT -6)   
The "curl your toes" description brought back some wonderful memories. LOL. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream.  Unfortunately, incontinence back to post surgery level.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 3/24/2010 1:30 PM (GMT -6)   
I have had 5 scopings so far, I only ever had one, that didn't hurt me. Had one under emergency conditions that was traumatic and terrible, would never want to go through that again. The pain jell needs to be in there at least 15-20 minutes, so don't let the doctor rush that part, I am suppose to have another one next Monday, but based on current post radiation pain, not sure its going to happen. You can be asked to be sedated locally ahead of time, my dr. uses 100 mg of demoral administered in the hip, and allows 30 minutes for it to do its job. It helps, but doesn't cure that whole issue.

Hopefully your slowing down will be a "one fix" procedure, and not a chronic condition. Good luck.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 3/24/2010 7:02 PM (GMT -6)   
If i had to rank cystoscopy biopsy and the robotic surgery in order, the cystoscopy was by far the most uncomfortable.  Perhaps it was because it was the first and I didnt know what to expect but it really was not fun.  No much pain afterwards but definently not a fun procedure.
 
Hope it went well
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night
 
ED - yes but seeing some improvements - levitra 10 mg 2x week
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 3/24/2010 7:11 PM (GMT -6)   
In the "old" days, they use to do with a rigid scope, that hurts too much to think about. Now, they use the flexible scopes, with enough numbing gell, once it gets into the urethra, not as bad. Also, its easier for the doc when one is circumsised. Always more difficult with us guys that are still covered.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 3/24/2010 7:21 PM (GMT -6)   
Yea I think the cystoscopy was the worst of the 3. That was the first thing I asked was it flexible. He said he had never seen this before. But once he got the scope in he said everything looked good. He gave me meds for the burning called Prosed DS makes urine blue not orange. I guess I should of posted the update in this thread.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 3/24/2010 7:24 PM (GMT -6)   
Now you will have Smurf piss instead of orange juice piss, lol. Not sure which is better.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/25/2010 9:23 PM (GMT -6)   
I may be a bit late on this but I had a couple of flexable scopes done.  I also had a few colligen injections into the sphincter using a rigid scope!!   The flex scope was nothing but a little pressure.  I would not worry about it much!
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691

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