Met with the VA today to discuss PCa

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 3/24/2010 12:12 PM (GMT -6)   
My meeting and exam at the VA facility here in Orlando went well this morning. Almost well.

They are a huge facility and extremely busy. I had a lab appointment for 9:45am and a Dr. appt for 11am. Since it was my first time here I showed up at the lab at 9:20. They finally called me back for the blood and pee work at 10:47. Didn't take long once I was back there so I made it the docs office right on time at 11am.

She was waiting on me and I went right in. Very nice doc and very thorough. I took my complete medical history with me from the PSA test that rang the first bell through the PSA test I had done on Monday. She really thanked me more than once for having everything and said it made the job so much easier. Basically said that YEP you still have PCa, you are still being treated for active Pca and we'll see you in a few years when the VA ask for a re-evaluation.

She said she would get her report off to the VA by tomorrow and felt based on her experience, it was a slam dunk, no thought process required and I should see some checks shortly. Whatever shortly means in the world of VA time frames. She concurred that actively being treated for PCa is automatic 100% disability. The percentage would only decrease based on the PCa being taken care of and then I would be evaluated on continued ED and continence issues. I can live with that.

So it looks like "The Check is in The Mail", and Lynn and I and the RV will hopefully be on the road soon.

Much better day today than yesterday. YeeHaw!!!

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/24/2010 12:19 PM (GMT -6)   
Great news Sonny. I seem to remember you saying you were in the Navy during Nam. Were you stationed incountry some place? I spent my time aboard carriers with only a couple of days "on the ground". Was just wondering how Navy people came in contact with Agent Orange. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream.  Unfortunately, incontinence back to post surgery level.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/24/2010 12:25 PM (GMT -6)   
Sonny, good going. I am still in the no news is good news stage, VA hasn't asked me for anything else since early Jan, so hopefully my next step will be right behind yours.

Good going.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 3/24/2010 12:43 PM (GMT -6)   
Squid, I was stationed at NAS DaNang from Feb 67 through Feb 68. During that time did a few months on River Patrol Boats up at the DMZ. I was at the DaNang airport waiting on my flight out of country the night they launched the TET offensive. Luckily made it out the next morning.

David, you can't be far behind. However, the way your luck runs you better follow up. Would not be surprised for you to find out the person doing your stuff up and moved and the file fell behind their desk and nobody has found it yet. Would kinda be the norm for you the way things go. LOL.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 3/24/2010 12:58 PM (GMT -6)   
Hi Sonny,
Good news on the dosh front, enjoy it.
But I hope the cheques dry up in the future due to PSA reversal.

Mike


Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/24/2010 1:00 PM (GMT -6)   
Sonny, I'm glad the VA has linked cancer to Agent Orange and is compensating vets. Since no agent orange was launched off my carriers, I guess I would have to link my PCa to overindulgence in San Miguel beer and exposure to other "diseases" in the Philippines. Hope the checks start flowing soon so that you can take that beautiful RV on some long road trips. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream.  Unfortunately, incontinence back to post surgery level.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/24/2010 1:26 PM (GMT -6)   
Actually Sonny, my county VET's office is the example of efficiency and being on top of things. Plus a much tinier county than where you live in Florida, think there about 90.000 people in the county. If I don't get a new letter from the VA by the 10th of April, I will contact my local office again, but right now, they are the ones that said no news was good news, and that all my dr's had cooperated with the VA so far without any problems.

Can't wait till you annonce when you get that first juicy one that back pays you to the start.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 3/24/2010 2:01 PM (GMT -6)   
Sonny,
With a back date to last October you might be able to buy yourself a new car to tow on your trips. You will be 6 months out in a few days. Take care.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 3/24/2010 3:38 PM (GMT -6)   
Sonny,

Glad something is going right this year.

Had friends of mine who were missionaries killed in that TET offensive. They were brutal. Shot one dead while he had a white flag, threw hand grenades in a bunker killing 2 more, and wounding his wife.

What a mess that war was.

Glad my government is giving you something.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


Oldvet
New Member


Date Joined Oct 2007
Total Posts : 6
   Posted 3/24/2010 10:27 PM (GMT -6)   

For everyone information, today Thursday March 25, the VA will publish the proposed rules that will make Parkinson's disease, ischemic heart disease, and B cell leukemia presumptive service connected for in country Vietnam Veterans and others exposed to Agent Orange and other tactical herbicides.  

They will be published in the Federal Register.   If you want to know more about the Parkinson's email me at oldvet@aol.com


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 3/25/2010 5:25 AM (GMT -6)   
Oldvet,

My father-in-law has Parkinson's and I filed his initial claim for him in November 2009. WE have submitted all of the paper work and medical info and he has received the normal back and forth flow of letters from the VA and the process is moving along. We anticipate his approval in the next couple of months.

It is great to see the govern. step up and recognize the ever growing list of those things that have been the outgrowth of Agent Orange Exposure.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


landcrab
Regular Member


Date Joined Feb 2008
Total Posts : 25
   Posted 3/25/2010 5:27 AM (GMT -6)   
Sonny
 Glad to hear your good news,  I'  in a similar position to yourselve and I wonder what will be your next treatment.
diagnosed pc Nov 2007 after small lump
found during routine examination
gleason 7 (3+4 ) psa 4.6.
Da Vinci Jan 2008.
post op pathology report gleason 7 (4+3)
positive margin right side nerves spared.
no incontinence problems.
ed is a problem.
psa 3 weeks post op .5
psa three months post op .3
wait and watch possible rt.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 3/25/2010 5:33 AM (GMT -6)   
Landcrab,

Haven't gotten that far yet. Just received the word that the IMRT doesn't look like it got it all. A lot depends on the meeting with the Medical Oncologist and the outlook and plans for the treatment of my wife.

It boils down to my just plain taking a break from this stuff for a little while. At present the battles my wife is facing have to take a little more priority.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


landcrab
Regular Member


Date Joined Feb 2008
Total Posts : 25
   Posted 3/25/2010 7:58 AM (GMT -6)   
Sonny
All the very best to you in whatever you decide to do. I can understand you wanting to take a break for a short while. Sometimes it seems we are either having treatment or waiting to take a psa test.
diagnosed pc Nov 2007 after small lump
found during routine examination
gleason 7 (3+4 ) psa 4.6.
Da Vinci Jan 2008.
post op pathology report gleason 7 (4+3)
positive margin right side nerves spared.
no incontinence problems.
ed is a problem.
psa 3 weeks post op .5
psa three months post op .3
wait and watch possible rt.

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