A True Reality Check - An Update On My Lovely Wife "Lynn"

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 3/24/2010 5:24 PM (GMT -6)   
DISCLAIMER: THIS IS NOT about PCa, IT IS about DEALING WITH PCa AND BEING A CAREGIVER AT THE SAME TIME.

Earlier today after my visit with the VA, I posted that today was a much better day than yesterday.

Also on many, many occasions I have posted that I can deal with my PCa, because while I know the seriousness of it, I constantly say that my wife is going through much worse than I.

This afternoon was a real dose of reality and confirmation that I can't complain, at least not in my household, about anything I might be going through.

The supportive nature of you my friends here at HW is one where you are always asking about Lynn and including her in your prayers and well wishes.

It is because of your caring that I thought I would update you on Lynn's status. As most of you know she is dealing with Multiple Myeloma, a cancer termed "a wet cancer" because it is cancer primarily of the blood and bone marrow.

I picked up the latest results from her most recent MRIs, Scans and Skeletal Surveys today. These are the things that are for the most part new to her condition since November 2009;

Metastatic lesions in the thoracolumbar spine posterior element
There are L1 and L2 vertebra body lesions
An acute compression fracture at L1
There is a L1 posterior element lesion as well

MRI brain
There is a metastatic disease with lesions in the clivus, C3
Chronic white matter ischemic demyelination

Skeletal Survey
Vague lytic permeative changes affecting the anterior ribs 4 though 8
Numerous small lytic lesions are seen throughout the iliac wings, pubis, sacrum and proximal femora
There is an L1 compression fracture also likely pathologic
There is a T7 compression fracture
There are lytic defects in the mid and proximal left humerus

MRI T Spine
There is a near complete chronic T7 body pathologic fracture
Multiple metastatic lesions are seen in the thoracolumbar spine
Multiple small lesions are seen in particular involving T3, T5, T6, T9, T10 and T11 as well as L1

Almost all of this is new and a result of the aggressive nature of her cancer. Her hospitalizations this past year kept her off of the maintenance chemotherapy from April until just recently. In that small amount of time the cancer has taken a foot hold and run fairly rampant. She is back on the maintenance drugs now and we hope to slow this thing down. In the meantime we have to deal with the spinal fractures and are meeting with a new doctor on Monday. The recommendation is to perform a kyphoplasty (laymans terms- cementing of the spine) in the fracture and compressed areas to strengthen the spine and keep her back from breaking.

This was not meant to overburden you with information, or meant as a cry for sympathy. You folks have been truly caring and loving towards both me and Lynn. I just thought you should know.

Her strength is so much greater than mine. Her positive nature is so much stronger than mine.
It is always with these thoughts in mind that I truly believe "EVERY DAY IS A BONUS".

Thank you my friends for allowing me to share ( and maybe vent) just a little.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 3/24/2010 5:31 PM (GMT -6)   
Sonny,
I am always a bit hesitant to ask how Lynn is doing, knowing that she is fighting for two. Having been pretty much alone through the PCa experience, I can really understand how much she contributes.

All my best wishes and prayers are with both of you.

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 3/24/2010 5:38 PM (GMT -6)   
142,

Thank you. But please remember, you are not alone, we are all here for you and each other. We who have found our way to HW are truly blessed. This is the most compassionate and caring bunch of folks that it has ever been my pleasure to know.

You are not and you will never be alone. Check in anytime for a visit and allow us, your friends and comrades to share with you.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.

Post Edited (Sonny3) : 3/24/2010 6:29:50 PM (GMT-6)


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/24/2010 6:15 PM (GMT -6)   
Sonny, your post gave us all a dose of reality but, at the same time, your honesty in revealing Lynn's situation was quite beautiful.

No words can convey to you how much my heart is hurting after reading your post. Tonight's prayers will be dedicated to Lynn and to you...two wonderful people.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/24/2010 6:56 PM (GMT -6)   
Sonny,
Thanks so much for the update on Lynn. What a lovely spirt she must have. Over the years I have told many people that the hardest thing that I have ever dealt with was my wife's cancer and that remains true to this very day. Being wounded in a war or having PCa doesnt remotely come close to what I exeperienced with her illlness. Glad the two of you have each other and I just hope that someday I get to meet the 2 of you.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/24/2010 7:21 PM (GMT -6)   
Sonny, you update broke my heart and my wife's too. She explained most of the medical specs to me. I ache for the both of you, you are a great guy, and friend to me, and she is a wonderful woman, and I know a great wife to you.

THanks for posting this, its important to me, and I am sure to most of the brothers and sisters here, you are one of us, and this is on your plate, and we care deeply. God, wish I could do something, anything, to help you guys directly. You know Im but a phone call away.

Bless you brother, and give my very best to Lynn from Peggy and I.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/24/2010 7:33 PM (GMT -6)   
Sonny - you are so fortunate to have your Lynne in your life.
Lynne - you are so fortunate to have Sonny in your life.
No one is better or stronger or whatever it takes to get through each day, and as you put it yourself - "each day is a bonus"
Thank you for sharing your day with us. We are enriched and better by it even though it makes us sad that we cannot often do more other than give you a hug or have you in our thoughts and prayers.
We are fortunate to have Sonny and Lynne in our lives.

hugs
BRONSON & STEVE
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 3/24/2010 7:34 PM (GMT -6)   
Sephie, Michael and David,

Thanks guys. Your posts mean so much to the both of us. I am printing them out as they arrive and taking them in to Lynn to read. She remains ever thankful for the outpouring of support for both of us.

She told me a few minutes ago that today for the first time ever since her diagnosis, when I was not around, she said "it".

I asked her what "it" was and she said "IT SUCKS, IT JUST PLAIN SUCKS".

Kinda speaks volumes, doesn't it.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 3/24/2010 7:35 PM (GMT -6)   
Bronson and Steve,

Thank you guys so much.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 3/24/2010 7:40 PM (GMT -6)   
Yes it sucks for all of us. You both are in my prayers.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 3/24/2010 7:46 PM (GMT -6)   
Thanks for the prayers Neal. We are real big believers in their power for healing and perseverance.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 3/24/2010 7:49 PM (GMT -6)   
Sonny, so sorry to hear about Lynns test results i know both of you feel truely blessed to have each other and you are both in our thoughts and prayers.
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 3/24/2010 7:58 PM (GMT -6)   

Dear Sonny,

Just reading your posts over the last several months have touched my heart. Your positive attitude is something I envy.  I wish the very best for you and your wife.  I have added both of you to my prayer list.  God bless.


Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/24/2010 7:59 PM (GMT -6)   
Makes us feel blessed even with our lousy PCa scenario's (for some of us), in comparison to your situation. My brothers wife has multiple myleoma detected over a year ago now, they just got back from New Zealand (she was well enough to travel), she had alot of reversal of symtoms and health improvement months ago now using real very high doseages of D3 (believe it or not). Her white blood cell count is not good enough still and that is a threat also. They went to numerous docs and got multiple opinions and tried a few expensive drugs, that may have helped too. One doc down in the Cayman Islands is supposedly a specialist in this...told my brother straight up probably could not do anything for them (no money wanted) but suggested ultra high doseags of D3 as being useful. (this might be useful for others depending upon where they are at in this disease). One reknown place(I won't mention so as to keep it cleaner herein) wanted to do a kidney transplant, as at one time they were doing seriously bad, but it reversed back towards normal...go figure. So, you can imagine my brothers opinions on some the care, treatments and opinions and thousands of dollars spent already...self insured until recently getting back on Blue Cross at high prices. But, you know this is not even comparable to PCa issues, even though they can get bizarre. I guess there are little known protocols for this, the one known one is bone marrow transplants (you would know)? Sometimes that shows success I guess??? You have probably already done a bunch of these things. I am about totally ignorant of this disease, so pardon anything I mention as I know about zero on it. We can put both of you into our thoughts, and prayers.
Youth is wasted on the Young-(W.C. Fields)


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 3/24/2010 7:59 PM (GMT -6)   
Sonny,  I am so sorry to hear the bad news about Lynn.  My wife Ana and I talk about you and Lynn and just hope that something will start working for you two.  Please keep us updated.
 
Carlos and Ana

Diagnosed 2/2008 at age 71, Gleason score 5+3=8, stage T1c, PSA 9.1. 
Robotic surgery 5/2008, nerves spared, All margins, SV and lymph nodes negative. 
Staged pT2c, Gleason score 5+3=8.  PSA <0.1 at 20 months, Jan. 4, 2010.


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 3/24/2010 8:14 PM (GMT -6)   
Bless both of your hearts.  Hold each other close...we'll say the prayers.  I'm sure you both have done that, but several more wouldn't hurt.
 
Bob
 AGE:58
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 348
   Posted 3/24/2010 8:28 PM (GMT -6)   
Sonny,
So sorry to hear about Lynn's condition, lucky she has you and vice-versa.
Please pass my best wishes on. I'm not a praying person but said one for you both.

Peace,
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 3/24/2010 8:40 PM (GMT -6)   
Sonny-
My heart breaks for the two of you having to go through this. I'm glad yo have each other. Please keep us posted. We will continue to pray.
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 3/24/2010 8:44 PM (GMT -6)   
Hi Sonny, and Lynn,

I don't pretend to understand the medical lingo except I understand it's not what you want to hear, and it sucks big time. Really big time.

We know each other only through the internet and yet I count you, and Lynn, as true friends and I hurt for you tonight as I would for any good friend. Amazing the bond this place provides. You both are always on my prayer list.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 3/24/2010 8:48 PM (GMT -6)   
Sonny,

There are times when words fail us. They are not adequate to express what is in our hearts.

We can only assure you that our hearts are with the two of you. There are many praying people on this forum who have added you guys to the top of the list.

I am embarassed that I feel like I got a raw deal because my pants get wet once in a while or I don't have the same erotic capabilities that I once had. If it does suck, it certainly is with a very small font compared to what you and Lynne are going through.

Thank you guys for your transparency. It makes me much more thankful for each hour and day I have with my wife and family, and makes all my troubles seem small.

God Bless you guys. I too will double my prayer efforts on your behalf.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 3/24/2010 9:11 PM (GMT -6)   
Sonny,
Thanks for the update and Sorry for what you and Lynn are going through. I can understand the anxiety and fear of what is happening to your lovely wife. I lost my first wife to Leukemia when she was 28 years old and a mother of 2 young boys. It is something and don't wish on anybody. I will pray for you and your wife. May the Lord be with you both.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


polfred
Regular Member


Date Joined Dec 2009
Total Posts : 62
   Posted 3/24/2010 9:18 PM (GMT -6)   

Sonny,

You were one of the first to respond back in November when my husband was diagnosed. I am so grateful that you directed me to this site. You and your wife have been such an inspiration to me. I so admire your strength, your committment and the love you have for each other. Your words of encouragement have been such a blessing. I am so sorry to hear about your wife.  You'll are always included in my daily my prayers. Best wishes

Jan


Age 59
PSA 9 on-08-09
Given antibiotics for 1 month/
PSA 10 on 10-09
Biopsy 11-18-09-Results 10 of 12 cores positive
CT and Bone scan negative
Diagnosed on 11-20-09
Lupron injection/ 7 dys of casodex on 11-20-09
Markers placed on 12-15-09
Planning scan scheduled 1-18-2010/ 8 wks radiation to follow
 


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 3/24/2010 9:42 PM (GMT -6)   
Sonny,

There isn't much I can add to what's already been said. I've been following both yours and Lynn's journeys hoping to hear that you're both beating this beast into the ground.

I'm saying a prayer for both of you,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Five PSA tests undetectable, latest Feb 5 (Whew!)


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 3/24/2010 10:32 PM (GMT -6)   
Sonny: You are my brother in PC and we have not had the chance to visit eye to eye but I could not be closer at this point. You are such a trooper with such wonderful insight. So many of us forget to look at the big picture and take time to look at the good when there is so much pain around. "Each Day is a Gift"

It is times like this that we find out how very much our friends mean to us. We also know who our true friends are. I agree with you . I have met some of the most wonderful people on HW. Sunny you are top on the list.

My prayers go to both you and Lynn.

You Cajun Bud.
Jeff T
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/25/2010 5:21 AM (GMT -6)   
Hi Sonny,

Our thoughts and prayers are with you and Lynn too across the miles. It is a reality check as you say - hope the support you have here helps in some small way. You have contributed so much yourself. I remember you both had some very creative t-shirt slogans going for a while. Will be keeping Lynn in our thoughts as she continues treatment. Best wishes for now, Lana & CJ
Creed_three (Lana) - with husband "CJ" now aged 52 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. Next PSA April 2010.

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