ED shot and Pain

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stoshb
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 3/24/2010 7:39 PM (GMT -6)   
I am now at 18 months post DaVinci.  Trivial urine problems.  Zero level PSA.  No pain.
 
BUT, not just performance issues, but NO performance.  Pump - makes things bigger but can not figure out how to last long enough for "fun".  Pills - M&M's achieve the same results, taste better, and are a lot cheaper.
 
Doc finally talked me into trying a shot to see what would happen.  Gave me a small, 10cc I think, dose of a single medicine. 
 
Shot it self was no fun, but could probably live with it.  Even got a baby amount of swelling, though nothing that would work.
 
What was bad was the pain in the end of my penis.  Way past discomfort.  Good thing I did not have a knife available or I would have been even shorter.  Felt burning, and generally nothing good in that region.
 
Doc says next step is tri-mix, but I have to go buy a vial of it to try.   I would like to make something work, but, I am giving up. 
 
Can someone convince me to keep trying?  If nothing else, my wife would really appreciate somthing other than my fingers.
 
Age: 63 at Dx Aug 08
Had problems on DRE several years ago and went to "watchfull waiting"
Found new and different problems on DRE at annual physical
Even with PSA < 3 had biopsy
5 cores out of 12 were positive Gleason (4+3) and (3+4)
Robotic surgery performed 9/10/08 Dr Eric Smith, Baylor Hosp Dallas
Pathology report:
Basically one half was all Gleason 4+3
One nerve bundle removed,
No sign cancer had left the prostate
continent after removing catheter
So far no detectable PSA


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 3/24/2010 7:59 PM (GMT -6)   
Usually or in many cases the doctor or his PA administers the first dose in his/her office. Where it is injected and how it is folowed up after the injection are important. Many use a pump in conjunction with the injection.

You may want to seek help from someone who is more willing to help in this matter. Trimix is used very successfully by many on this site. I would find a urologist who has a better implementation plan if it were me.

I can only say that it will be worth it .

Good luck and welcome to HW. You are among friends !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/24/2010 9:45 PM (GMT -6)   
stoshb, I am going to guess here. Did the Dr give you Caverject in the office? If so the drug in alprostidal. In about 20% of the men that is pain and can not take this drug. At this point usually the switch is to Tri-Mix. The results have been very good.

I started with Caverject at 15 months and I was lucky that it worked for me. The down side is that Caverject is Crazy Expensive compaired to Tri-mix. Others that are on Tri-Mix will fill you in on the cost. It is much less expecsive.

I can tell you after starting the injections I have noticed that the pills are starting to work better. I guess is jump started the engine. :)

I would say...Go for it. What can you loose...about $100.. What you gain...WOOD!!!!!! and FUN!!!!!

If you have specific questions you can e-mail me.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 3/25/2010 5:46 AM (GMT -6)   
Did your Dr ever show you how and where to inject yourself ?

If not, NEVER go to him again

1st, there is a right way and many wrong ways of injecting yourself. I have been doing it for over 6 months now, NEVER any pain, full erection every time. BUT its more than the medication, its the location of the shots and the pre-shot and post-shot procedure that makes the Trimix effective

Its far far from a shoot and rise solution, you need to perfect the process

2nd, get an auto-injector, its far easier, accurate and safer than just jabbing in a needle. Your target area is precise, you need to get that part correct

Again ,, IF your Dr never showed you how you should be doing this, get another Dr, ASAP
Stats:
Age: 52, PSA (2008)=1.9
Biopsy on 01/09/09, Gleason Score = 3+3
One (1) out of twelve (12) cores was positive, plus external nodule found
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Post Op Path 3+3
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, <0.01 - 3 months post-op
PSA 1/10 undetectable, <0.01 - 9 months post-op
Trimix provides 100% erectile function


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/25/2010 6:22 AM (GMT -6)   
Don't know if you already know this or not, but just in case I will mention it.  We have found that with the pills we have to follow a routine, such as NO food or drink two hours before, a hot bath during the hour after taking pill helps blood flow to pelvic area, one hour after taking Viagra is peak time and takes a lot of stimulation to get any results.  This is not "doctor's orders" just what we have found to work for us.
Keep trying, each day is different and a new day.  Kind of like being newly married all over again have to learn what works.
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 3/25/2010 7:49 AM (GMT -6)   
I have been on injections three months out from surgery. It is difficult at first but well worth the results. There are sites that give specific intructions on injections. Check them out. Also, there is a poster here, "Piano" who has compiled a detailed account of his experiences with injections. Hopefully he will see your post and chime in.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00


stoshb
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 3/27/2010 8:16 PM (GMT -6)   
I should have asked, but I am assuming that the drug I had was the caverjet. Dr did mention is was EXPENSIVE. He did show me the procedure, and actually did the shot.

I think I am going to invest in a vial of the trimix and see what happens. :)

What seems to be the best place to get this stuff by mail? I know of two compounding pharmacies that make up the stuff here in Dallas. Anyone using the pharm's in Dallas?
Age: 63 at Dx Aug 08
Had problems on DRE several years ago and went to "watchfull waiting"
Found new and different problems on DRE at annual physical
Even with PSA < 3 had biopsy
5 cores out of 12 were positive Gleason (4+3) and (3+4)
Robotic surgery performed 9/10/08 Dr Eric Smith, Baylor Hosp Dallas
Pathology report:
Basically one half was all Gleason 4+3
One nerve bundle removed,
No sign cancer had left the prostate
continent after removing catheter
So far no detectable PSA


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 3/27/2010 8:21 PM (GMT -6)   
unfortunately, trimix has to be refrigerated so it can't be shipped by mail - you would have to go to the compounding pharmacies and get it from them - all the best - BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/27/2010 9:12 PM (GMT -6)   
stoshb: Did the Caverject work for you? You may want to check with you insurance. It is covered by some insurance. If it worked for you there are a couple of benifits to caverject. My understanding is there is less chance of scaring with the caverject over the tri-mix.

You Dr. will have to write you a script for Tri-mix as well.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Ricky2
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 3/27/2010 11:04 PM (GMT -6)   
Injections seems to be a matter of experimentation to see what works the best. I started using Trimex a few weeks ago and only got a partial. Kept increasing the dose and using a pump before hand with ring to hold blood in penis. Got up to a 65 ml dose before it really worked. Found out that my trimex was only half strength. (.5mg phentalamine, 10 MCG of prostaglandin.) Uro gave me new prescription doubling the strength of those ingredients. Have yet to get it and try it out. I feel that injections are better for rehabilitation just because the penis looks better red after injections than purple after being pump with VED. A Dr. Mulhall from Sloan Kettering advocates only injection to keep the penis in shape until something natural happens, if ever.

Ricky2
Age 70

PSA 5/2008- 3.6, PSA 7/2009- 6.1, retested 9/2009-5.1.
Biopsy 9/2009. 4 of 12 positive. Gleason 3+4=7
CT and bone scan negative.
Robotic De Vince Surgery 10/29/2009. 1 night in hospital. No pain. Cath out on 11/6
Pathology Report: Gleason score 3+4. Margins slightly involved <.1mm to .25mm. Perineural invasion present, stage pT2c. Tumor 18%. Seminal Vesicle - absent, Lymph Nodes 0 of 6.
Continence- first 4 weeks after cath out Dry at night, rest of time, bladder held nothing. 6-7 pads per day. as of 12/30 no pads most of time. almost dry except for a few drips. I keep doing Kegels.
ED. Started VED on 12/17/2009. Every other day for 15 min. Cialis .20 mm twice a week
PSA 02/08/2010 <.1
02/22/10 Trimex injection .2ml less than 50% just a little discomfort.

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