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pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 3/24/2010 8:30 PM (GMT -6)   
15 months after surgery I am finally able to go without pads. In the beginning I used around 10 to 12 pads per day. about a year ago I started using the Afex Incontinence System which made the incontinence more manageable.

When I started using the Afex I had to empty the collection bag about every 2 hours. Gradually over time I emptied the bag less and less until I was able to go the whole day with just one emptying.

In December 2009 I switched back to pads. I used one per day until now when I dropped them altogether.

My surgeon explained that it took around 6 hours to complete my surgery because of extensive damage to my bladder. He told me I should become fully continent but at the time I really didn't feel confident that I would.

The healing process was gradual, no sudden improvements. I did a lot of kegal exercises that I think were helpful. When I got the urge to relieve myself I would try to hold it until it got very uncomfortable. My thinking was it would help stretch my bladder and tone the sphincter muscle. I don't know if that was helpful or not.

Best wishes,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Five PSA tests undetectable, latest Feb 5 (Whew!)


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/24/2010 9:10 PM (GMT -6)   
Congrats!!! Wish I could make the same report. I think the main thing is optimism and patience. I was down to just a few squirts a day until I had to have stricture surgery to open up the bladder neck. Now I am back to several pads a day. Hope to join you in being dry in the near future. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream.  Unfortunately, incontinence back to post surgery level.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 3/24/2010 9:22 PM (GMT -6)   
Woohoo!! Wonderful news! Thanks for giving hope to so many that take a little longer to lose the pads.  I know it took my father quite awhile to finally get rid of them and it was an amazing day when it happened!!!  Congrats!!!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/25/2010 9:01 AM (GMT -6)   
Great news, and one that should provide comfort for others behind you on the road to recovery. Love to hear of the successes. smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/25/2010 11:57 AM (GMT -6)   
Bob,
Thanks for the update. As far as I can tell, you are the only person here who has improved after a year without intervention. (Please someone here chime in if I am wrong.)
That is great news!
I am almost to the point of giving up and throwing in the (wet) towel. But I am only at 8 months. I'm willing to wait if there is a chance.
Hope is good thing.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23. Did I waste 6 months?
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 3/25/2010 2:22 PM (GMT -6)   
Hi Bob,
 
Congratulations and welcome to the, Zero Pad (ZP), club.  It will also give hope to those brothers that are struggling with continuing leakage.
All the best to you in your dry future.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 3/25/2010 5:22 PM (GMT -6)   
Bob,


It does my ole heart good to hear your story. Especially today. I had an appt. with my Uro this PM who barely found time to tell me my incontinence is hopeless and there is nothing more to be done (I'm five months out of surgery) before he dashed off to see another patient.



I am happy for you.



Steve

pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 3/25/2010 9:08 PM (GMT -6)   
Hi Squid, sorry to hear about your setback. I'll be looking forward to hearing about your progress on becoming dry.

Doting Daughter, I'm happy to hear your father has reached the dry spell. It certainly is a good feeling.

James C., Thanks for the response. I enjoyed the video, I'll check it out again since it certainly is worth watching.

Jeff, hang in there! There's still time for healing. I couldn't believe how long it really takes.

Magaboo, I'm definitely trying to instill some hope in those of us that still are experiencing leakage.

Steve, I'm sorry to hear your Uro doesn't spend the time with you that you need. I've had the good fortune to have a doctor who says he'll spend all the time with me that I think I need. He really follows through with that and he has an incredible bedside manner.

All, thank you so much for listening. I spend a lot of time reading this forum but maybe not enough time responding. I rejoice when I read about the successes and feel sad when I read about the setbacks and failures.

Regards to all,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Five PSA tests undetectable, latest Feb 5 (Whew!)

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