What's the deal on these Cath. bags.

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Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 3/26/2010 1:59 AM (GMT -6)   
 Hey Guys
 
     Going in for the big Da vinci Hug, on the 14th of April, could you guys be so kind to describe to me how this leg bag works?
It's attached with vecro straps to what part of the leg? How big is it, how big is the nite bag and I guess you hang it on the bed when sleeping?
 
     I've heard that just as you start dealing with it, they remove it. Any tips
 
                                                                                                           Thanks again  Tim

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 3/26/2010 3:16 AM (GMT -6)   
Tim

I agree with your thought that just as you get used to it they remove it.

Before I left hospital one of the nurses gave me a thorough practical demonstration of what to do with the bags, pipes, velcro, tape, taps and hygiene etc. If nobody tells you what to do then ask.

You should have two types of bag. The night one holds about 1500ml the day one about 500ml. But remember you can empty it any time you like to keep it as light as possible.

The bags should have long pipes that you connect to the end of the actual catheter so that you can choose how far up or down your leg you want the bag depending on what is comfortable what your are wearing and what you are doing.
It is obviously important to keep the bag below the end of your penis to allow gravity to do its work. If you are sitting it is thus not so good to have the bag on your thigh. (I found it very easy to undo the velcro and move it up and down.)

Wear pants that that are not too tight and which make it easy to adjust things.

You should also be given a special sticking plaster that you attach to your thigh to which you can then stick the top end of the pipe to stop it flopping about and pulling on the catheter.

At night or when lying down for a rest you will also need to have the bag lower than you are. So what you do depends on how high off the ground your mattress is. I was given a special plastic hanger to whcih I could attach the bag and then hang it on the side fo the bed or the edge of a bucket. Other people have done something similar with an ordinary coathanger.
You may need to work out (with your partner) which side of the bed you need to lie to be able to have bag in the best place.

My mattress is also quite low so I was able to leave the bag on the ground sometimes when I was just having a short rest.

If you hang the bag onto something like the side of the bed, then remember to detach it before you move!!!!!!

You can also walk around holding the bag. (This is probably what you will do in hospital when you first get out of bed to stretch your legs after the robot and also when you do a bit of walking up and down the corridor.

If you have the bag as low down your leg as possible then if you go outdoors for a walk you can even empty it down a drain or in the grass by pretending to bend down to tie your shoe laces or adjust your socks

Have a look at a few of the comments in the thread at the top of the front page. The thread is called:
Prostate Cancer: The Really Useful List made by HW people for HW people.
I included a section near the bottom about people's thoughts about catheters and stuff.

Alfred

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 3/26/2010 4:46 AM (GMT -6)   
I had my cath in for five weeks. Luckily I wore it during the summer so I wore shorts. Was able to hike up the short pant leg to empty the cath with little effort.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/26/2010 4:57 AM (GMT -6)   
Timm, either bag needs to be below your penis to allow gravity to work in your favor...the night bag can lay on the floor next to the bed (that's what my husband did).

The leg bag straps around your leg just above the knee...remember, you want the tube to go down from the penis to the bag. The leg bag doesn't hold much...my husband's filled up on the drive home from the hospital which took about 30 minutes. The night bag holds alot more, and he didn't have to empty it during the night.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 3/26/2010 5:09 AM (GMT -6)   
E.Alf  explained this well and also we have bros' herein that have the record(s) for wearing and using these (experiences):

Purgatory (David)

Andrew(OhioState)

Two people that come to mind when talking about all the related issues of wearing, caring, using such.

"Don't drive a stickshift car with bag on, been there and done that...not fun".


Youth is wasted on the Young-(W.C. Fields)


Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 3/26/2010 8:51 AM (GMT -6)   
Timm,

When using the leg bag or the night bag, it's important to get the correct tension on the ten inches of rubber tubing that will be exiting your penis. You want some slack in this rubber tubing, and if you don't have the slack you're going to feel it.

A nurse at my hospital was kind enough to give me a yellow plastic plug for my catheter before I left the hospital. It looks like a golf tee, but larger in diameter and an inch long. It worked great for plugging the catheter when taking showers with the bag removed. It kept me from dripping on the bathroom floor. Ask for one before you leave the hospital.

I filled a house plant mister bottle with rubbing alcohol to spray the catheter connections before reconnecting. You don't want any bacteria in the system.

I used neosporin to keep the exit of my penis well lubricated while the catheter was in. It's one area that gets irritated easily and the neosporin worked well for me.
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/26/2010 10:23 AM (GMT -6)   
Timm
Can you stand one more?

I put my overnight bag in a diaper pail bucket with handles that I could carry around with me easily. I clipped the bag to the side rather than just sitting on the bottom. The bags have a check valve built in and I know from experience it can get pinched closed if the bag is casually tossed into the bucket.
I carried my pee bucket by wearing a computer bag strap around my neck and clipping a second between that and the bucket - not unlike the Ancient Mariner's Albatross.
Hopefully you will only have this miserable plumbing connection for 10 days.

On the bright side, you can buy 50 ft of tygon tubing and run your catheter directly to the basement sump pump. You can watch the games and drink beer as long as you like with no need to leave the couch. ;-)

Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23. Did I waste 6 months?
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/26/2010 11:19 AM (GMT -6)   
Tim:

Good questions. You got some pretty good answers so far. I am on my 14th catheter, and will be on my 15th next Monday. Not normal, so don''t worry. I have been on so many, I have become quite the conniseiur of catheter and cath accessories.

Don't know how far you have to be driven from the hospital, but its much easier to leave the hospital with the Night bag still on, or some call it the big bag.

The Night Bags come in sizes, but most common is 2000 ml or 2 liter. I had one I called the "clown" bag that held 4000 ml, it was way to big to drag around and looked stupid. The 2000 sounds like a lot, but I have filled them to the brim before on a night when I get a lot of sleep.

Always keep the bag below the natural level of your bladder. You don't want to have the contents back up to your kidneys. I have a dresser that runs along one side of the bed, so I pull the bottom draw out just a tiny bit, and hook the hook on top of the bag along the top of the drawer. It acts just like a little monorail, and as I move and wiggle, the bag can move back and forth on its own.

Most men with surgery only have the catheter in for 7-15 days, so by the time you figure it all out, they take it out of you.

When you take a shower, you can leave the big bag on and run the tube under the shower curtain, so the bag is outside of the shower, or you can detach the bag, and shower without worrying about the bag, it you drip a little in the shower, who cares, or you can plug the end of the cath after the bag is removed. PS, I don't like plugs, because taking them off and putting them in, can cause nasty back pressure pains up the catheter, doesnt fill good.

Leg bags, never lay down and fall asleep with one, it will back up inside. Leg bags are typical 400 ml, had one that 1000 ml. The smaller ones better, easy to empty. Usually step up to the toilet, bend down, open the tap, let it empty. Or if outside, not near a bathroom, do the bend down to tie my shoe trick, and let it empty discretely. I have gotten good at that part.

Some men use lubes or creams on the tip, I have never done that in the entire time of using catheters. Personal choice.

Bladder spasms - some get them, some not, some like me, all the time. Most dr. will prescribe ditropan, a cheap generic drug, that helps some with spasms. If you are having a foley cath, like most men, it exits your penis, a hard enough spasm will make you leak around the tip. I have a SP suprapubic cath in right now, almost 6 months straight, and it has never ever leaked a drop, sometimes I wish it would so it would relieve the pain of a spasm.

The bags should be cleaned out once in a while, unless you are on the cath a week or so. Wife usually does white vinegar and water.

Leg straps - lot of time elastic with velcro. Thats my 2nd choice, when the bag gets heavy, it can pull down. I like the elastic leg straps with buttons, they stay good and tight without hurting.

The device that hold the exit end of your catheter to your thigh is important. You will come out of the hospital with one in place. Make sure you have 1-2" min of slack in it, to compensate when you are lying flat or walking. Got to have some wiggle room. The one you come home will uusally last your time on the cath.

Stalock Stabilization Device is a brand that is good, they have a plastic swivel, so the "Y" end of the catheter can move naturally with you as you walk. Some hospitals used them, I am getting them now from a medical store in Tampa FL on the net. They can last up to a month. They also make cheap disposable holders, but the f irst time you take a shower, they are toast.

If you have any other questions, feel free to ask. I don't know much, but I sure know too much about catheters. Good luck.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 3/26/2010 11:43 AM (GMT -6)   
End of thread! David and Ohio are the undisputed experts.

I will add something that you won't find in the text books. When you are finished with it, don't just toss it in the trash. Have a ceremony and send it on its way with a bang.
You can fill the bag with Oxy-acetylene (cutting mix) and set it off with nichrome wire and 4 AA batteries.
It will rock the house.

I think pieces of mine are still in orbit. Good riddance.
Jeff

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/26/2010 3:00 PM (GMT -6)   
Last minute tip when you go to get it removed, this is a technique I have only seen my uro/surgeon do.

He has me stand up completely, not lying back or down. He pushes some cleanup material under my feet so there is not mess. He slowly release the fluid in the balloon holding the catheter in place, then the catheter all but slides out on its own to the floor below. No pulling or tugging. The real trick is to release the balloon slowly, some nurses are in a big hurry, and whey they withdrawl all the fluid at once, it can create a weird hurt or back pressure feeling. It reached the point with as many as i have had, that only my dr. himself does the removal.

Recently, he had my wife remove a foley at home, she did it his way, while I stood in the shower stall, and the nasty slimy snake just dropped out without even a hint of pain.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/26/2010 3:37 PM (GMT -6)   
David, that's the method my uro used to remove mine- standing- slowly and letting it slide out on its own. Took less than 3 or 4 secs. to drop out, just a silly tingling sorta weird feeling as it did.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 3/26/2010 4:22 PM (GMT -6)   
Thanks all
 
   I take it you cut a hole in your pants to get the cath. tube out for the big bag, or where shorts?
 
   I picked up some hospital scrubs bottoms they were real cheap, so figure I can cut them up.
 
   Question: Can you feel yourself urinate?
 
 
                                                                                   Thanks Tim

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/26/2010 4:44 PM (GMT -6)   
Tim, not at any time with any of my caths can I feel or detect if I am urinating, as quick as it drops from the kidneys to the bladder, as long as there is enough to enter the entrance hole above the balloon holding the catheter in place, it simply comes through the cath, down the tube, and eventually in the bag.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 3/26/2010 7:35 PM (GMT -6)   
Tim,

So much good advice. I wore basketall pants that snapped up the side. I wore convertible pants when I wanted to dress up a little, these are the ones you change from pants into shorts. Just open the zipper a little and you have clear access to the bag. Sporting goods stores have them.

I put my bag in a bucket next to the bed. I slept like a baby. No problems with the bags at all. My abdominal muscles needed most of my attention and tricks. I attached a rope at the base of the bed and used it to help pull me up. That helped alot. I went to the local Mall and walked with the other walkers. Funny thing , they were dressed like me too.

Good Luck,

Frank
Currently 55, surgery at 54
Normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008, University of Chicago.
Catheter out in 7 days normaly expected leakage
Post Pathology T2C, Gleason 7, (3+4) 10 % of both portions of prostate
Seminal vessels clear, fat tissue clear, single positve margin at apex measuring less than 1/2mm. 
PSA Six week < 0.1 4 month PSA <.05 6 month PSA<0.01,9 month<0.01,12 month <.008, 18 month .010, 03-21-10 (24) months .010 undetectable
Watching PSA @ 6 months for 2 years,  will do salvage radiation if necessary.
Fair to Good results with Viagra,  side effects are bothersome at times. Tried Levetra about the same as Viagra.  Tried Cialis, think I will stay with the Viagra at 50 mg.  Side effects worse at 100 mg.  
 
 
 


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 3/26/2010 9:31 PM (GMT -6)   
I kept mine in a bucket at night also
One good thing about the cath is you can sleep all night without getting up...
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 3/27/2010 1:59 AM (GMT -6)   
This thread has produced good advice so I've added some of the comments to the "really useful list"
Alfred

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 662
   Posted 3/27/2010 8:20 AM (GMT -6)   

First off, best of luck with the robot.

Second, I never used my leg bag, I was told to drink, drink, drink, I would have filled up the leg thing in about 15 minutes. I change my big bag out on day 5 for another big bag that the hospital discharged me home with. I was walking 4 miles a day with the big bag, I fashioned a system to hang if from my waist. As others have said never let the urine in the tubing get higher than your bladder it has a back flow problem. In the shower I had a plastic suction hook that I hung my bag on. At night and during the day I had a wooden folding TV tray and I used a 1 inch wood dowel across the top of the ( X ) leg’s and hung the bag on it. I removed my cath on day 10 at 6am . Position myself on my side. Removed the fluid from the balloon and the darn thing just fell out. I think the most important thing is to be able to keep the cath very clean at the point it goes in to you. It accumulates a little gunk at that point that can be irritating. I just used soap and water and then some type of cream/ointment.

Again Best of Luck

Hero


Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. involving up to 75%
da Vinci at Wash U, Barnes on 11/02/09
Modified Pathology, Gleason 4 + 3 = 7. Gleason 7 present throughout Prostate.  Negative surgical margins
4 of 4 periprostatic Lymph Nodes Negative, 10 of 10 pelvic Lymph Nodes Negative. Seminal Vesicles tumor free. No prostate extension
Post-op PSA 12/10/2009, Undetectable
12/12/2009, Pad Free and Started jogging.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 3/27/2010 11:42 AM (GMT -6)   
I was also a "single bag" patient. Hero has some good points. The nurses convinced me that swapping / washing out bags were risk points for infection, and the time period was short. Since I had a few extra days in the hospital for other issues, I got used to the big bag (2 liter aka Night bag). The snap-up pants are a great solution. I wasn't able to find any locally, so ordered them online from adidas. They call them "100 G pant". Several friends who have had long term catheters for other cancers made the suggestion to me initially. You may find them in school basketball uniform departments - I found that the sales people on the phone couldn't make the association. I would not have cared if they had a team logo on them -

I was given a spare big bag with instructions to change if the valve started getting blocked (it did, but I was due for the Drs. appt. to have it removed that day, so didn't bother once I got it flowing again).
They gave me the leg bag as well, but never felt the need to use it. They did NOT give me a longer tube for the leg bag, so put that on your check list before going home - I would have wanted it on my calf, and could not have done that with the parts I had. That was part of the reason I never used it.

Hope all goes well for you. We will be watching for news.

Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 3/28/2010 8:29 AM (GMT -6)   
Hi Tim!.....sneakin in a lots of party time smilewinkgrin Don't know what catheter setup you will be going home with. Henry Ford Vattikuti sent me home with just the pubic catheter, one large overnight bag and two leg bags (or a spare). While the leg bag is a pain about the time you get the hang of it you no longer need it. I (and others reporting in this forum) feel just staying on the big bag the first couple of days home is far easier then screwing around with the leg bag. Night time I used the elastic with Velcro straps to secure the tube and valve to my upper thigh, over the side of the bed leaving the big bag in a pail. Don't worry about having to empty the bag during the night as one doesn't put out as much urine during the night. First shower (2nd day home) you will need the leg bag. I used the two velcro straps and attached the bag just above the knee (you will really enjoy that shower). When you feel like wearing the leg bag and walking further I suggest positioning it just above the knee (the bag has slots at the bottom and top the straps are threaded through to help keep the bag in place. I had zero problems emptying either bag and doing the vinegar / water flush. Used the laundry sink. My catheter was in a total of eight days (three extra due to a leak at the bladder / urethra connection (my BPH required altering the bladder neck a tad). By the time you get the hang of BAGS they will be gone. My five week PSA just came back undetectable and first post op appointment is this Thursday. Off topic but judging from what my 25MG daily dose of Viagra is doing the games will resume WEDNESDAY! smilewinkgrin Had been using 50 MG Viagra prior to MY date with the robot.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 3/28/2010 9:31 AM (GMT -6)   
I had an experience with filling up the bag overnight. I had at least 1200 -1500 ml every morning (1.2-1.5 liters), some even more, so more than the leg bag holds (I think most of us agree it is not an overnight option).
One good reason to put the bag upright in a bucket - you will have some debris in your urine, and it clears the valve better when everything is upright. You may have a clog - I did one night - an the tube will back up (really ugly). You'll wake up quick. The solution was to flex the top of the bag a few times to clear the debris out.
I took the bag in the shower - got a very large hard plastic suction hook for the wall ($1.49 at the local store), and hooked the bag on it to keep it upright, but low. Obviously your movement is limited. I've always had a hand-held / bracket type shower massage, so it wasn't too big a deal. Looking back, if I had been faced with a fixed shower head, it would have been more problematic.

Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 3/30/2010 11:00 AM (GMT -6)   
   
It always amazes me how much great information you guys come up with. I'll print this thread and put it in my already bulging folder.
 
                                                                                                                              Thanks again Tim
 
 
    58 yr.
    PSA  6.58
    Gleason  3+4
    8 of 12 cores positive
    Da vinci  4/ 14

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/30/2010 11:11 AM (GMT -6)   
Adding to 142's comments.

Never go to bed with a leg bag on, it will back up into your bladder real fast, and remember, urine is sterile, but only when it is in the bladder, the moment it comes out, it is not sterile.

The big bag, or night bag, will fill easier and evenly if hung on something. When I go to bed, I happen to have a dresser that runs parallel close to my side of the bed, So the bottom drawer is slightly pulled out. I hang the bag on it like a little monorail track. It keeps it off the floor, and as I make minor sleep position changes, the bag can slide along the "rail" as I move.

At home, I almost only keep the big bag on. I only use the leg bag if I am leaving the house for any reason. Being a long term catheter wearer, I have less pain issues with the big bag. The big bag tends to equalize the pressure between the contents of the bag and the bladder, whereby the leg bag, is just a simple gravity fed collection point. Not sure from the engineering side of either, but that's how it works for me in practice.

When on the leg bag, even though it holds 400 ml, I empty often as I can get away from it. If you let it fill up, geez, I can feeling it pulling down on my leg, and sometimes the fluid is quite warm.

My doc gave my wife a sterile irragation kit and a half liter of sterile water, for emergency use only if the cath became clogged. My clogging yesterday was the only time that has ever happened in all 15 caths I have been on so far. If the dr. hadn't been changing it out yesterday anyway, my wife would have opened the irragation kit. She has done it many times as a nurse.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 3/30/2010 5:27 PM (GMT -6)   
Tim,
 just make sure you are not allergic to rubber or latex, not trying to worry you but I had some kind of reaction to the rubber or latex. My urethra almost completely closed and the Uro had to use what are called sounds (thanks to carlos for telling me what they are called) to gradually open things back up. Best of luck with the robot and recoverey. Keep us informed.
 
Neal
 
 
 
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
PSA 2/29/10 <0.01

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