3 months after daVinci

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Bedelia
New Member


Date Joined Nov 2009
Total Posts : 18
   Posted 3/26/2010 3:08 PM (GMT -6)   
Haven't posted in a while but I've been lurking occasionally.  I'd like to update you on my hubby's progress at the 3 month mark of surgery.
 
The great news is PSA is 0.03.  Thank God for that.
 
It was pretty rough after the cath came out.  Pee literally poured out of him for a couple of weeks, and he was quite depressed.  The doc had him go to PT at 3 wks, where he found out he was kegeling incorrectly.  He went a few times and learned other exercises including using an exercise ball.  Today, he's at one pad/day with squirts here and there (as he says).  He's running about 4 miles and working with weights, and on those days, it's a little worse.  He's in a much better mood, and tells people he's 90% there.
 
As far as ED, not so much progress.  Got the Augusta pump (insurance paid for most of it), and uses it as therapy almost every day.  So far it hasn't helped much with a workable erection mad  but it's getting better.  Insurance pays for viagara and cialis (also got samples of Levitra), and taking that along with pumping works a little better.  He is starting to feel a little something down there he says.  The doc said he's still healing and it can take up to 18 months to completely heal.  Who knew.  Anyway, we're like kids experimenting in the bedroom.
 
He's back to working part time, although we both took February off to to go south for a month.  It really helped both our spirits.  We spend a lot more time together now than before PCa.  It was a wake up call for us.
 
I hope to drop in more and give support to other members.  This site has helped me so much.  Thanks to all of you.
 
 
Age 60, no symptoms
Hardness found in DRE during physical
PSA 1.84 (up from 1.5 last year)
Diagnosed 10/27/09
Left Mid and Apex: Adenocarcinoma, GS 3+3,
cancer in 2 of 10 cores occupying 40%
daVinci 12/11/09 Strong Memorial Hospital, Rochester NY
Path showed 3+3, Pca contained to prostate at 10%
Clear margins, lymph nodes clean
3/26/10 PSA 0.03 Yippy skippy! 1 pad/day; more leaks when exercising
ED:  still working on it
 
 


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 3/26/2010 3:38 PM (GMT -6)   
Excellent news Bedelia...thanks for keeping us posted.

Yeah...a diagnosis of cancer changes how you look at each other - it did for John and me (not that we were having problems before, just that we see things in a whole different light now).

Hope you come back and visit often.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/26/2010 3:52 PM (GMT -6)   
Bedelia, that's an excellent report on your husband, great on him getting into our Zero Club. The ED part, some would say its too early just 3 months so far, but good news on the incontinence part. Glad you two are "redescovering each other". That can be good for a relationship.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 3/26/2010 4:52 PM (GMT -6)   
Congrats Bedelia on your husbands psa....may he continue forever with those zeros.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 3/26/2010 5:08 PM (GMT -6)   
Great news, always good to hear it
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 3/26/2010 5:21 PM (GMT -6)   
Excellent report and I wish you and your husband continued improvement in all things.

I was surprised to hear the pump and the pills were covered by insurance. Is this typical of decent health care plans? Since my wife and I are paying close to $17,000/year perhaps I could get a pump and some pills. Lord knows I need something.
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
three months -> .03 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 3/26/2010 5:23 PM (GMT -6)   
Bedelia,

Great news all the way around. The most important is membership in the Zero Club. The rest will come with time. Glad to read his spirits are up and you two seem to be having a good time and renewing some of the old experimental things that we too soon forget about as we settle into marriage.

It is fun, isn't it?

Drop by and visit more often, your voice and positive attitude are missed.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.1---CARRRP --waiting for the next test.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 3/26/2010 7:19 PM (GMT -6)   
Bedelia,
That is pretty good news all the way around. Sounds like everything is progresing well, but maybe not on the timetable you would like. Also glad the two of you have become closer and that month in the south sounds like a big winner. Keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/26/2010 7:27 PM (GMT -6)   
Bedelia:
-congrats on hubby's ZERO CLUB membership - here's to a lifetime of zero's !!
-congrats to you having fun with hubby and "experimenting like kids" - that is what intimacy and the love you share is all about - being together and learning about each other and how each other works (and for a time being, doesn't work) - sometimes a cigar is just a cigar... it is not about just poke and run, but being together as one.....

enuff said

wishing you all the best.

hugs
BRONSON & STEVE
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: 3-5 pads/1-2 clothes changes/day- finally seeing improvement - March 3, 2010 - week 14 after surgery -
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/26/2010 8:28 PM (GMT -6)   
Hi Bedelia,
Great to hear from you again.  Keep checking in and thanks for the update.
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


soulmate 101
Regular Member


Date Joined Jan 2010
Total Posts : 57
   Posted 3/27/2010 10:09 AM (GMT -6)   
Hi Bedella,

My hubby is about 2.5 months past Da Vinci, and I can sympathize with where you are at right now.
Congrats on the negligible PSA.
I can relate to what you say about rediscovery in the bedroom.
Meds have given us mixed results, we are going to try trimix this week as per the urologist.
Sometimes it feels more like a science project or therapy than making love.
Onward and upward, as they say.

soulmate101
Husband, age 57, diagnosed in December 09, after PSA velocity increase from 2.71 to 4.34 over one year prompted a prostate biopsy.
Gleason 4+3 = 7 stage T2c, laparoscopic nerve sparing Da Vinci robotic radical prostatectomy 1/13/10, clear surgical margins no lymph node or seminal vesicle involvement.
six weeks post op: leaking has stopped, no more pads, soreness in wounds has dissipated. ED: inconsistent results with Viagra, just started using Manly, with some promising results. In good spirits. (thanks to you folks)

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