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In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/28/2010 6:48 AM (GMT -6)   
This was mentioned in another thread.  Although I have read about it in Walsh's and Mulhall's books, I know many who read these posts have not so I thought we  could use some wisdom from "the brothers".  Causes, cures, is there hope for erections after this?
Thanks everyone,
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 3/28/2010 7:16 AM (GMT -6)   
And for those just tuning in:
 

Definition

By Mayo Clinic staff

Peyronie's disease is the development of abnormal scar tissue, or plaques, in tissues inside the penis. When a penis affected by Peyronie's (pa-ro-NEEZ) disease is erect, it's usually bent and may be painful.

Peyronie's disease may prevent a man from having sex, and men with Peyronie's disease often experience stress or anxiety related to this disorder.

Research about the effectiveness of nonsurgical treatments for Peyronie's disease is limited. Surgery to correct a curved or bent penis is usually recommended if the deformity is severe or prevents satisfactory sexual activity.

http://www.mayoclinic.com/health/peyronies-disease/DS00427


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 3/28/2010 8:14 AM (GMT -6)   
Peyronies is sometimes a result of RP. I am 2 years out from surgery and have developed a slight bend. It has not progressed. There is another conditin called Kelami's (urethal manipulation syndrome) which has a similar bend. This can happen from a catheter after surgery or the actual reconnection of the uretha after RRP. I am also on bimix injections which can also produce scar tissue if done incorrectly. Hopefully, some other guys will chime in about their own experiences with it. I am currently taking about 400 units of Vitamin E daily. Seems to help. You can also get an ultasound to determine where the scar tissue is.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 3/28/2010 12:58 PM (GMT -6)   
You might want to visit www.forum.peyroniessociety.org/. A buddy from the CancerForums.net prostate cancer board, Hawk, is the administrator there. I think you will find a lot of help on that board.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 3/28/2010 2:32 PM (GMT -6)   
Hi
 
I have had PD for about a year. It started showing up in May of 2009 and I have the real common upward curve. Mine was not caused by Injections but by too long a use of the constriction rings with a VED. The Plaque appeared right where I used to have two rings on for about 30 minutes.
 
I have never had the pain or nodules that some men get. It's just a curve and if I didn't use a VED daily without the rings, I would also be shorter. There are many suggested treatments, Vitamin E is the most common. I have been taking it since June of last year. Also tried Trental 400 or Pentox but it didn't seem to make a difference for me. So I quit that prescription.
 
Using a VED daily for 15 to 30 minutes actually seems to be the best non-surgery treatment.  The ultimate solution is a penile implant. I may go for one in about a year if the PD doesn't go away. 
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.

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