An Unpleasant day and doctor's visit - Pain City

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/29/2010 5:08 PM (GMT -6)   
The past few days ,been feeling a lot of back pain, like you do when you have an urinary blockage, but the catheter seemed to be draining, just not as much as "normal".  Starting this morning, lots of bladder neck/rectal/penile pain, along with back aches.  Early this afternoon, seemed to be not draining from the cath, instead, massive painful spasms, that forced itself through the urethra despite having the cath in place.
 
My wife came with me for the 4 oclock appt.  Glad she was there.  Place was packed, as my uro/surgeon had had an emergency surgery today.  While we were waiting, had another mega spasms, basically pissed my pants from crotch to toes, even pooled up on their carpet.  Never felt so embarassed or humiliated in my life.  No warning, just happened.  My wife went up front, and insisted they get me into a room.
 
While in a room, waiting for the doc, had another mega spasm, but this time, made it useful and filled a sample cup, because they wanted to test for UTI and run a culture.
 
After examining me, dr. agreed that I was too swollen and sore already to make any kind of scope or dialation attmept.  He was encouraged that I had not closed up yet (bladder neck), since under force, urine could make its way out.  But, its only been 4 weeks since the last surgery.
 
He agreed that it was time to change the SP catheter.  For one thing, 4 weeks with this one, and second, it appears that it was blocked or blocking up, something I haven't had happen in all my caths.  Getting it out started easy, and near the end, pure pain from hell  (8-10 pain) as he said it was heavily crusted, which made it painful coming out.  Knew what that meant.  He deadened the best he could with lydacaine jell, and went to install the new one.  With an SP cath, the dr/nurse has about a 2 minute window taking an old one out and installing a new one, or it will close up.
 
The first half went in easy somewhat, not too bad, then all hell broke loose, the rest of it was a pure 10 pain, and he said the hole was tightening around the cath making it even harder.  When it made it through the bladder wall  (and I was lying on my back), there was this huge spray of urine that shot way in the air, all over the doctor too and floor.  I was begging him for it to be over with, and he quickly filled the balloon, completing the task.  I did not expect this change out to be bad, neither did he.
 
I lay there a while, and he had to help me up, as it was hard to sit up let alone walk.  New cath is in place, I believe this is #15.  He told me to take 2 Loratabs  (something I have never done before), and he even helped me get re-dressed.  Wants to see me in 4 weeks, and we wil re-evalute the situation.  He said next time they change the cath, he will inject lydacaine all the way down the tube so to speak, and let it sit a few minutes.
 
He said that this is one of the worse cases he has seen of radiation burn/damage in that area in his experience, and that after almost 4 months after SRT, it still has that much swelling and damage going on.
 
Home now, freshly showered, took the extra pain med, and trying to un-traumatize myself.  This is why I only ever wear black slacks out in public, at least it covered most of the wetness.  The dr. told me not to worry about that part, as he sees that all the time, but you guys know how it would feel in a public waiting area.
 
Geez, the bizzare and  twisted journey goes on and on.  Thanks for bearing me out on this one.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/29/2010 5:16 PM (GMT -6)   
David, I am speechless at your continued journey of agony and disappointment. What a road to have to travel...You're in my prayers.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 3/29/2010 5:21 PM (GMT -6)   

David,

So sorry to hear another tale of torture you have endured. Seems there is no end. I'm gald you detailed everything on a daily basis back when you were going through your radiation treatments. I recall you repeatedly saying something was not right as you were receiving your radiation. Each day, your journal pointed out that something was "burning". As an IMRT grad myself, I cannot begin to relate our two experiences. Mine was a Sunday picnic compared to yours. Not sure if I'm implying malpractice, but you deserved better than you received.

You continue to amaze me with your fortitude and endurance.

Bill


Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/08) (3/09) (7/09) (1/10): all <0.1


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 3/29/2010 5:36 PM (GMT -6)   
David,
Bill and James said it better than I can. Thanks for keeping us in the loop, and I'm terribly, terribly sorry to read about your ordeal.

Wishing you health and healing -

G.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 3/29/2010 5:38 PM (GMT -6)   
David,
  sorry to hear about the day that you just described, I really do pray that somehow this would all end for you. It has to be embarrassing in a croweded waiting room for something like that to happen to anyone. I can can only wish you the best for the outcome of all this.
 
Neal

 


age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 3/29/2010 5:56 PM (GMT -6)   
David,
Phew, what a day eh?
It must be horrible but keep on, there must be a light at the end somewhere,
wish you the best.

Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 312
   Posted 3/29/2010 5:58 PM (GMT -6)   

You have more patience and resilience than I ever will.

Zen9


No family history of PC.  PSA reading in 2000 was around 3.0 .  Annual PSA readings gradually rose; no one said anything to me until my PSA reached 4.0 in September 2007, at which point my internist advised me to see a urologist.   
Urologist advised a repeat PSA reading in six months = 4.0 .  Diagnosed May 2008 at age 56 as a result of 12 core biopsy.  Biopsy report by Bostwick Laboratories = Gleason 3 + 3. 
Interviewed two urologists - the one who did the biopsy and another - the latter had the biopsy slides re-examined = Gleason 3 + 3. 
Then went to M. D. Anderson Cancer Center in Houston in July 2008 and met with a urologist and a radiologist.  Biopsy slides re-examined yet again, this time by MDA's internal pathology department = Gleason 3 + 4.   
Chose da Vinci surgery over proton beam therapy; surgery performed at M. D. Anderson Cancer Center on August 15, 2008.  Post-operative pathology report = four tumors, carcinoma contained in prostate, clean (negative) margins, lymph nodes clear, seminal vesicles clear.  Gleason = 4 + 3. 
Minor temporary incontinence; current extent of ED uncertain due to lack of sexual partner; refused treatments for ED as being pointless under the circumstances. 
PSA readings: 
November 2008 = <0.1 ["undetectable"]
June 2009 = <0.1   
December 2009 = <0.1
 


afterglo
Regular Member


Date Joined Mar 2008
Total Posts : 72
   Posted 3/29/2010 6:09 PM (GMT -6)   
I am so sorry to read about not only the pain of the spasms and the removal of one and the insertion of another catheter, but also the humiliation of the flow of urine in the doctor's waiting room. The humiliation for me would be negligible as the other waiting patients will soon get over it, it's the utter HELL of the painful procedures that seem to plague your very being.

You are a hero even though that word is not usually used in this type of scenario. You are documenting every twist and turn prostate cancer treatment has taken for you, and in my mind, that is praiseworthy.

I wish the miracle of a pain-free existence and a return soon to a more acceptable quality of life.
 
Isabel

t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 3/29/2010 6:17 PM (GMT -6)   
I will say it again, You are one of the toughest sob`s i have ever met! Your perserverance is truly inspiring. I too will keep you in my prayers to the big man. Rock on brother!
Dx at 50 in 12/09 Merry Christmas its cancer....
3 of 12 positive, right side only, psa at dx 2.6 free%14
gleason 3+3=6
routine physical, no symptoms
Da Vinci performed Feb 2k10 by Dr Marc Milsten [hes got mad skills]
99% continent from cath out, mr happy fully functional at 2 weeks out!
path showed same gleeson with no other blips other than one slight margin, organ confined 20% right, 5%left, 34grams
 
 


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 3/29/2010 6:26 PM (GMT -6)   
David I was praying, that things would be better this time as for excuseme peeing on the floor forget it!!! you coudn't help it that was one of those things that happens with this crap sorry about the terrible ordeal you endure today I think I would tell him to put me out but not completely so you could be in lala land while he's fooling around in there.
PRAYERS!!!!!!!!! DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/29/2010 6:26 PM (GMT -6)   
James, thank you, I must admit, I am starting to feel at times like a totally defeated person, but I know we just have to keep going, working through the problem. After I wet myself, I was absolutely going to leave the dr. office, but my wife insisted, and of course, if I had gone home, would not have solved the problem, and probably would have been in the ER later this evening.

Bill, thanks, but not thinking a malpractice of anything, I went into radiation knowing and warning the others, that it was quite an ordeal for me based on the previous radiation years ago. I still really appreciate having a dr. that really cares in these traumatic situations. For most men, and if you are newly dx man reading this saga, what I am going through is not normal or regular, it does happen in rare cases, and unfortunately, Im it. For most men, radiation is unpleasant at times, and more of an endurance contest, but doesn't usually end up complicating matters and causing so much pain.

Galileo and Neal, thanks my friends, yeah, that wetting myself was just a normal guy reaction, would have been a million times worse if I were not wearing black slacks.

Mikes, thanks my friend.

Zen, I am really not as patient as my journey would lead one to think, in most of these unpleasantries , I don't have alternatives other than to endure and deal, and work through the problems. I wish I had never known about PC, let alone all this mess.

afterglo, yeah, the embarrasment part definitely normal human nature there at work. Once the spasm started, there was nothing I could to stop it, and since the cath was seemingly blocked, the pressure in the bladder had to be relieved one way or the other.

I never want any of my events to scare off any man here for treatments, but what I am dealing with, rare or not, is still a possibilty of what can happen when you are a PC surgery patient. I am thankful that most men come and go with their treatments, and they get to move on with good post PSA numbers. I would love to be one too, trust me, not a glutton for punishment. Each painful traumatic episode, like todays, just makes me more gun shy for whatever lies ahead.

For the newly dx man, or woman that is researching for her guy, we say it often here, and will continue to, if the PC dx is very minimal, low gleason, low % of cancer in any cores, and assuming no strong family history of PC, then slow down you rush for immediate treatment.

All primary and secondary treatments have risks and side effects. I am just one man of many here, and you can see the unpleasantness I have and still dealing with. And I am not alone. I don't like to compare stories from man to man, each journey is unique to that person ,as well as the decisions that have to be made along the way.

If you are newly dx, learn all you can, from here and elsewhere, make sure you understand what you are getting yourself into, there is no rewind button or re-do.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 3/29/2010 6:34 PM (GMT -6)   
David, sorry to hear your saga continues without any relief. The rest of us having problems post surgery have nothing too much to complain about after reading about your troubles. Hang in there and don't be afraid to take the pain meds. And to think that today I was down a little bit because my incontinence is not improving as fast as I would like. Hope they get you some relief soon. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream.  Unfortunately, incontinence back to post surgery level.


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5868
   Posted 3/29/2010 6:42 PM (GMT -6)   
I mean this with all respect. " that which does not kill me, can only make me stronger " Frederique[ sp ] Nietche. Your strength is phenomenal and will serve you well!
age 66 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
8 week psa 0,o

Hypocrisy is vice's homage to Virtue


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 3/29/2010 7:31 PM (GMT -6)   
Hi David.
 
 I wish that I had the words to give you strength and make things a bit easier for you, but I don't. All I can do is tell you how sorry I am that you have to go through all of this and I hope that soon the Doctors will find a solution for your problem.
Hoping and wishing that things will get better for you soon.
 
Your friend, Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/29/2010 7:33 PM (GMT -6)   
tdog, thanks man.

deerhunter, actually he wasn't going to be fooling around down there, that had already been decided, this was suppose to be a fairly routine catheter change out, but turned ugly.

logo, thanks, but starting to feel my strength tokens are beginning to run out

thanks much, brother squid, the battle and saga continues.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/29/2010 7:39 PM (GMT -6)   
Thanks Magaboo
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 3/29/2010 7:45 PM (GMT -6)   
Hello David,
 
You have my absolute sympathy on your ordeal. I fervently hope that you will soon find some relief from this affliction. I follow your posts routinely but do not always reply but felt that today you needed some extra sympathy and support. As someone said earlier you are one tough cookie.
 
Best to you,
Don 
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
 
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/29/2010 8:05 PM (GMT -6)   
Thanks, Don. Tough, not sure about that part, perhaps I am just stubborn in a stupid way. lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 3/29/2010 8:10 PM (GMT -6)   
You are hanging tough. You should never feel humiliated or embarrassed! I am thinking about you and hoping you get a good night sleep. Hope the pills are working.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 3/29/2010 8:18 PM (GMT -6)   
David - words escape me - and I am usually not at a lost for words - you are truly blessed to have so many people pulling for you
- wishing you a quiet, peaceful sleep tonight
- tomorrow night is a full moon - maybe a good night to bay or howl at the moon ( this March moon is called a Worm Moon) - works better if naked I am told....
quiet hugs
BRONSON
.................
Age: 54 - gay - with spouse, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/29/2010 8:36 PM (GMT -6)   
a big thanks, rob and bronson.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 3/29/2010 8:51 PM (GMT -6)   
David, as I read your post I find myself with my hand over my mouth and shacking my head in disbelief with what you have had to endure. You are in my prayers for a solution to this terrible ordeal. You are stronger and tougher than I could ever hope to be.

john
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
three months -> .03 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 3/29/2010 8:52 PM (GMT -6)   
David,
I hate that you have to keep going thru a long painful ordeal. I can relate to the dark color slacks and not sure I have any humility left. Seeing myself in the mirror the first time with a Depend was only the start of months of humbleness. Sometimes I still dont recognize myself. But I will. Sleep well my friend, and here is wishing for you an end to the suffering soon.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


turner
Regular Member


Date Joined Jan 2010
Total Posts : 119
   Posted 3/29/2010 9:14 PM (GMT -6)   
David, Just logged in after finishing up my IMRT last wed.& was so sadend to her of yet another painful set back fo you. My heart just aches for you. As you recall, my last post about 4 wks ago, i referred to you as THE IRON MAN!! your strength and endurence continues to amaze me. I hope and pray for your situation to improve,Very soon. Your strength  continues to inspire us all. Hang tough......turner
 diag 2/09 @ 3 wks before 50th bday and 2nd wedding :(
 psa 4.5
 t2b
 5 of 6 cores pos....5,20,50,25,5 %
gleason 3+4
 N/S RALRP 4-20-09
 Path: lymph node -
          seminal ves -
          margins -
          EPE -
          preineural inv-
          gleason 3+4
          stage pt2c
          tumor vol 40
Continence- 99%- @3-4 months post op
ED-gradual work in progress w/meds
       psa 7/22/09  0.1
      10/23/09  0.3
       11/23/09 0.5
       01/05/10 1.1
 Met with raidioligst 12-28
 Meeting prostate oncologist @Uof M 1-11
 Not like'n where this heading.  Surgery was and still is a walk in the park compared to what lies ahead :(
 01/26/10 scans all clear.Met w/Onc. at U of M. She has convinced me to go with Radation only at this time starting Mon feb.1. at St.Marys in saginaw.68.4 Gys @38 days What have i got to lose?
 Let the games begin...again 
 
 
 


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 3/29/2010 9:18 PM (GMT -6)   
David, I am shocked that in the 21st century a man should have to suffer so much.  This is just nuts.  I hate it for you.  I read your post earlier and couldn't respond because it upset me too much.  I don't have the words to tell you how much I grieve for your misery.  I can not imagine. 
 
Best,
 
Bill
I first came here in fall of 2006.  Did radiation.  Am fine.

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