Questions about MUSE

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/29/2010 5:46 PM (GMT -6)   
Spoke with surgeon about implants and went for preop last week. While speaking with the phys assist, he said I was a little young for implants just yet, even though I'm 4 years post RP.  He discussed med I have tried and noted I had not yet tried MUSE.  An hour later a nurse instructed me and I did it there in the office.  Thirty minutes later I had a "raging" erection, but it was VERY PAINFUL.mad  Instead of using a titration method, he had me do 1000 mcg.  Three hours later on the way home it started to subside.
 
First: With a smaller dose, will this likely be less painful.  It was pain similar to trimix but much worse.confused Second:  If used fairly regular, will my body adjust to the med, making it less painful.confused
 

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 3/29/2010 8:40 PM (GMT -6)   
I tried MUSE and never got much out of it. Maybe half an erection but with the Alprostadil pain. I would stay with the Trimix or continue the route to an implant.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/29/2010 9:55 PM (GMT -6)   

MUSE  did nothing for me except for Pain....Dr. had me get a script filled 6 units.  I have tried 3 and have the other 3 in the frigde!.  Moved on the Caverject which is the same drug but in injection form...No pain for me.  Just Fun!

Cajun Jeaa


9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 3/30/2010 8:30 AM (GMT -6)   
Justus,

I've used MUSE on an off for the last 6-8 months (but mostly depend on The Pump for any meaningful erections -- a lot cheaper too!).

When I first used MUSE at 1000 mcg dose it too gave quite a bit of ache and I did not like it much.

Then I went down to MUSE at 500 mcg dose and that was better with less ache and about the same 80-90-100% erection.

Have you been doing VED pump therapy all along? If Willy has been just languishing for long periods then, yeah, any fullness-hardness level is going to cause some pain.

Now when I use 1000 mcg MUSE it does not ache all that much, so yes I think your body parts do adjust to it over time.

See also my post about Trimix Gel + MUSE. That is working for me at 100% levels -- but I think the boost is a little too much since the ache is back somewhat.

Ask your doc for a 500 mcg MUSE prescription so you can experiment a bit. (but remember your Insurance will probably only fill 6-shots each month -- even if you have two scrips -- not both. That is the way my insurance works it).
Age 59, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
11/2008 Biopsy: 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery ,Nerve sparing, 1 day in hospital.
02/18/09 Cath out -- passed 1 cm oblong bladder stone (not kidney!).
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- (some tumescence 02-03/2010).
04/01/09, 07/07/09, 10/01/09, 01/15/10 PSA <0.1
08/09-09/09,02-03/10 MUSE@1000mcg (very little ache ) 80-90%
10/09-11/09 TrimixGel@(500/300/100mcg): 60,70,80%,
02/10-03/10 TrimixGel@1000/300/100mcg - 80-90% - (with cialis) - just @ usefulness.


justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/30/2010 11:31 AM (GMT -6)   
Thanks for the info everyone.
I am well aware what some of you are going through with insurance companies and the lack of. Stupid as it seemed for many years, I did 15 active years in the Army and got medically retired...if you are not a paperwork kinda person, never try to fly a desk. I have three choices: Ft L. Wood hospital, TriCare or the VA. The VA and the Army no longer prescribe Viagra, which is the only pill that works much at all; but TriCare does.

Hopefully, somewhere along the line; this insurance crisis will get leveled out. Best of luck to all.

Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 3/30/2010 12:49 PM (GMT -6)   
I'm also covered by Tricare. Are all the ED meds covered by Tricare? I haven't completely decided on my primary treatment yet (leaning towards robotic assisted surgery), but I figure I should start gathering everything I'll need. Should I get some sort of pump?
Bill
Age 52, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%


justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/30/2010 1:45 PM (GMT -6)   
Bill,
First off we chose NOT to do radiation.....being military we all know about any type of radiation is not a good thing. We also chose NOT to do CHEMO....NO WAY! Got second opinion from the VA and counseled with surgeon at U of M Columbia, MO. The choice is yours.

Any coverage from VA? TriCare pays for 6 Viagra but the VA got me bimix injection. The combe works nicely, but I do hate needles. BUT! Speak with you doctor NOW about erection therapy aftrer surgery. You may not be thinking much about sex for 2 weeks after surg, but you will want to know WHAT will be done for YOU. TriCare will probably pay for a pump also....check it out first. I have seen places on line to buy the pumps less expensive then the medical places....because Medicare and insurance in general pay WAY to much. $150 to $300 a shot. You may be able to find for around $100 for the same pump.

Any more Q's just ask.

GIT-ER-DONE!!!

Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 3/30/2010 4:02 PM (GMT -6)   
Justus,
I know what you mean about the military and radiation thing having served at one time as a commander of a tactical nuclear weapons site.
 
I should have VA coverage since I'm rated at 50% disability (never used the VA, so I'll have to check with them). I'll be sure to talk to my Doc now about post surgery therapy.
 
What pumps are recommended?
Bill
Age 52, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.


justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/30/2010 5:31 PM (GMT -6)   
One tip to remember Drums! Never let the VA or TriCare know what the other is doing for you. Why? TriCare would only allow one med for ED. So they do my Viagra (costs me copay) but VA does my bimix....which I happen to tolorate very well. My Uro said to use half of each and boy does it work. She can play with it for up to 2+ hours.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 6:28 AM (GMT -6)
There are a total of 2,974,458 posts in 326,177 threads.
View Active Threads


Who's Online
This forum has 161278 registered members. Please welcome our newest member, centerfield.
339 Guest(s), 7 Registered Member(s) are currently online.  Details
Dahlias, sandyfeet, RobertC, Sherrine, RobLee, straydog, duke68