prostate cancer

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ridgewalker
New Member


Date Joined Mar 2010
Total Posts : 7
   Posted 3/30/2010 8:49 AM (GMT -6)   
Hello,
I am a new member interested in undergoing nerve sparring robotic prostatectomy.
Any info on this experience is greatly appreciated.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 3/30/2010 8:55 AM (GMT -6)   
Welcome Ridewalker,
You can start by Googleing it and Web MD has some info on it as well. I would also suggest looking at Dr.'s in your area that offer robotic surgery to see if they have any info on their services. Good luck and there are some good books out there as well. Welcome to HW.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/30/2010 8:55 AM (GMT -6)   
Ridgewalker, welcome to the forum, That name makes me think you may be a southern mountain man? We got lots of ridgerunners, and such around here as nicknames. In answer to your question, theres lots of stories of individual journeys in the permanent link second line down from the top of the page. Clcik it and scan down to find them. That's a start. There's also tons of info all over the internet, so using Google to search should wrok for you. If you wish personal stories and info, just ask and I'm sure there's lots of guys here willing to show you their scars... smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 3/30/2010 9:49 AM (GMT -6)   
Ridge
Email me if you want my story of Davinci. I am fine and kicking... dx in my 40's. None of it is easy, but it's nothing you can't handle.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 3/30/2010 10:07 AM (GMT -6)   
I hope you take the time to consider all treatment options. Robot sounds sexy, but the side effects can be a little ugly.

Welcome to HW, and I hope you read some of the general info available on the firs couple of posts on this forum.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 3/30/2010 11:01 AM (GMT -6)   
Welcome Ridgewalker. I went robotic with nerve sparing...had some minor complications, but here 18 months out seems like a distant memory now. If you opt for surgery, regardless of open, robotic and nerve sparing or not...make sure your surgeon has lots of experience. Others will tell you, it is not the procedure that makes the difference, it is the skill of the surgeon.

Also, make sure that this is the direction (surgery) you really want to go. There are several other treatment options that will work just as well and maybe better suited depending on your stats and preferences.

Good Luck and I will be happy to answer any questions you have.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/30/2010 11:18 AM (GMT -6)   
Welcome Ridge, to our corner of the world.

When you get a chance, how about posting the specs on your cancer so far, i.e. your biopsy report info, etc. Help us better understand your situation.

I had open surgery (first it was by choice, and in the end, it would have had to have been open regardless), we have many men here with the robotic surgery experience.

As far as nerve-sparing or non, you have to get it in your head, if you go for surgery (open or robotic), you indeed need to find the most experienced and qualified surgeon you can get your hands on. Any good surgeon will tell you, that its cancer first, incontinence second, and ED thirdly. While the goal of nerve sparing is important to the sex life of any man with PC, even that isn't a guarantee that you won't have ED issues. You get one shot at surgery, and your doctor has to make the ultimate call once they are inside you, as to whether it is safe to do nerve sparing or not. If they have to cut wide margins to best get the cancer, then you must accept that reality.

Please post whatever stats you have on yourself, i.e. your biopsy info, etc. You may have many other, less invasive choices than surgery, or you may be fortunate enough not to have to do any immediate primary treatment.

We are here to help, please keep us posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29

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