11 month meeting with my uro

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 3/30/2010 1:51 PM (GMT -6)   
With my most recent PSA at 0.00 this was a pretty much no-stress visit. I still use 1 light pad a day but have never had to change it even with an 18 hour trip to NYC; museum, theater, dinner, and back. He said that improvement was still possible and suggested a moderate number of kegels daily.

My ED is still pretty severe and he mused that how the nerves are going to respond after surgery was still unpredictable. He talked about how it was frustrating to have two patients for whom he thought he had spared the nerves identically and have one who returned to function in months while the other took years. He said he would feel better even if all he could do was predict that the one patient would have a rougher time.

He went on to explain that the nerves are a complex bundle and that some of them “turn on” an erection and that others in the same bundle seem to “turn the erection off.” Current thinking is that something about the surgery gives the upper hand to the “turn it off” nerves, at least for a while. He also said that there was no clear pattern to the return of function – some guys wake up one morning suddenly ready to go, while others show slow improvement over many months.

I'm ready to wake up!
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day
9 mo. PSA 0.00 -- 1 light pad/day ED remains


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 3/30/2010 2:00 PM (GMT -6)   
Geezer, still sounds like a pretty decent report, glad to hear that. Interesting remarks from your doctor on the nerve bundles. Could explain the wide range of results we see here even at HW.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 3/30/2010 2:24 PM (GMT -6)   
My surgeon says at the 2 year mark - what I got is what I got. I still have three months to go so  having my fingers crossed is something I continue to doscool
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/30/2010 3:16 PM (GMT -6)   
geezer, ditto the ready to wake up! smilewinkgrin Congrats on the zero and here's wishing for a quicker recovery of the rest...
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 3/30/2010 9:03 PM (GMT -6)   
Geezer,
That is a great report. You can wait on willie to wake up as long as the zeroes keep coming.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 3/30/2010 10:14 PM (GMT -6)   

Geezer

Zeros are nice and I hope they continue.

Like you I am ready to wake up.  Everything about my operation went so well.  The recovery was so uneventful.

Sure hope I don't have to wait another year and a half for action.

Skeener

 

 


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/30/2010 10:19 PM (GMT -6)   
Geezer,

Great on the zeros and you seem to be generally healthy. Good for you!

I hope you find a good avenue to deal with the dreaded ED issues.

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 3/31/2010 6:54 AM (GMT -6)   
Wake up!! Wake up!!!! I think my Dr. hit the snooze button one too many times. I still have 6 months to go for my wake up call. In the meantime Caverject is keeping me and the misses happy! It is also helping to move that wake up button just a bit closer!.


Geezer. That is a good report and like you this has been an easy ride for me with the exception on the ED. I guess I should not complain.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 17, 2018 8:26 PM (GMT -6)
There are a total of 2,972,659 posts in 326,004 threads.
View Active Threads


Who's Online
This forum has 160832 registered members. Please welcome our newest member, Barbara D.
400 Guest(s), 7 Registered Member(s) are currently online.  Details
Canada Mark, trekkar, pasayten, Mercy&Grace, Pratoman, WalkingbyFaith, elvin