Metastatic Prostate Cancer Quality of Life Study (Moderator Approved)

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New Member

Date Joined Mar 2010
Total Posts : 2
   Posted 3/31/2010 12:23 PM (GMT -6)   



(Moderator Approved by PW 03/31/10)

New Metastatic Prostate Cancer Study

Have you been diagnosed with metastatic prostate cancer? You may be eligible to participate in a research study that would involve completing one telephone interview lasting approximately 1 hour. During the interview, you will be asked about your experiences with metastatic prostate cancer. You will be compensated for your time.

If you are interested, please contact Shadi at or

Call 240-482-0034 x 25.



The research team at Oxford Outcomes will screen interested participants and brief them on confidentiality and then schedule eligible participants for a 1-hr phone interview, for which they will be compensated. All information provided by patients will remain strictly confidential and will not be shared with anyone other than the study researchers from Oxford Outcomes.


Ultimately, our research team hopes that the patient interviews will increase our understanding of the ways in which metastatic prostate cancer and its treatments impact patients' lives and what symptoms or side effects patients find the most burdensome. The findings will inform the development of a comprehensive picture that illustrates the impact of the disease and treatment from the patients perspective.

Regular Member

Date Joined Dec 2008
Total Posts : 59
   Posted 4/19/2010 4:43 PM (GMT -6)   
Hello to all the good people on this board....and all the others who visit every now and then,
I completed the survey and will be receiving $50.00 for my time. This is a good survey that takes about 30 minutes to an hour. The only requirement is that you have been diagnosed with Metastatic Prostate Cancer. This is a legitimate deal. You will be asked questions about the medication and its effect on you and how you are doing. I would encourage anyone who qualifies to contact these people, verify it on the internet and participate. It could benefit us all.

Veteran Member

Date Joined Oct 2008
Total Posts : 3197
   Posted 4/21/2010 10:02 AM (GMT -6)   

I called these guys up to take part in the survey. I was told that they were getting a lot of calls from persons under the age of 50 and they thought it was because they solicited on the internet rather than with conventional means. They were concerned that the high percentage of younger men might skew the survey. I asked if they had perhaps thought that maybe the high percentage of men under 50 with mets had to do with the fact that at 50 Doctors begin screening for PCA and thus catch it in the early stages of the disease before it has a chance to spread. Is it just me or do people who are doing these surveys have a difficult time seeing the forest for the trees. DUH!!!!


Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

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