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A Confused WooHoo, but I'll take it!

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Posted 3/31/2010 2:39 PM (GMT -7)
Just talked to my nurse at the urologist's office and she reported that my latest PSA is <0.04, undetectable! 

It has been a little bit of a roller coaster year (see numbers below), but I'll take it! 

I feel pretty good with over 2 years as a member of the PCa Survivor club.

Thanks for your continued friendship and support.

Barry

 

Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04

Posted 3/31/2010 2:58 PM (GMT -7)
Barry - WooHoo to you for being part of the ZERO CLUB !

Here's to a lifetime of zeros!

hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............

Posted 3/31/2010 3:05 PM (GMT -7)
Barry: A big Yahoo to you for the big Zero. Congrats.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%

Posted 3/31/2010 3:09 PM (GMT -7)
Barry, this is great news to read this evening. I am so happy for you, keep em coming for years to come.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29

Posted 3/31/2010 3:58 PM (GMT -7)
Great news Barry. I hope you continue your membership in the zero club.

soggy johnny from rhody
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
three months -> .03 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston

Posted 3/31/2010 4:06 PM (GMT -7)
whoo HOOO here too! Congrats!

soulmate 101
Husband, age 57, diagnosed in December 09, after PSA velocity increase from 2.71 to 4.34 over one year prompted a prostate biopsy.
Gleason 4+3 = 7 stage T2c, laparoscopic nerve sparing Da Vinci robotic radical prostatectomy 1/13/10, clear surgical margins no lymph node or seminal vesicle involvement.
six weeks post op: leaking has stopped, no more pads, soreness in wounds has dissipated. ED: confusing

Posted 3/31/2010 5:18 PM (GMT -7)
Brother Barry, that is absolute good news, thanks for making my day..
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN

Posted 3/31/2010 5:50 PM (GMT -7)

Good news!!  2+ years in the Club.  That's what we love to see!!

Skeener 

Age:  63 

Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.

RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 

7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.

Pathology:  Unremarkable 

First followup PSA and Visit: Feb 11/10 - 0.0.

Next PSA May

Next doctor's visit in 6 months      

Posted 3/31/2010 6:10 PM (GMT -7)
Well done, Barry. Would love to join you back in the club.

Bob
 AGE:58

 Dx: October,27(the day after my birthday)

 Psa 14.5

 Gleason:(4+3) 7 T1c

 Bone scan:Negative

 Cat scan: Negative

 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.

 Confined to prostate.

 DaVinci Jan. 19th, No lymph node involvement, all margins clear.

 8 week PSa <0.01

 Gleason downgraded to (3+4)7

 6 month Psa , 0.1 

 9 month Psa,  0.2  Doubled! Criminy!

 Started RT 10/28...one year since diagnosis.  RT over 12/22.

 3 month post RT Psa 0.1.

Posted 3/31/2010 6:24 PM (GMT -7)
Nice Number, Barry. Hope you have more.

Dallan
Current Age 55, DX October 2005 PSA 50
Biopsy 11/15/2005 Gleason 4 + 3, High Grade PIN, Perineural Invasion, T2 NX MX Stage 2
Bone Scan Clear, CT Scan Negative
open RRP on 12/19/2005 Gleason changed to 3 + 4, Tumor estimated at 25% of prostate volume, Negative Margins,
Extensive Perineural Invasion, Lymph Nodes Clear, Catheter removed 1/3/2006 (holidays) Dry at night. moderate incontinence during the day.
1/25/2006 PSA .046, Moderate Incontinence
2/28/2006 PSA .027
6/22/2006 PSA .043 Just a little stress incontinence
9/08/2006 PSA .065
IMRT Start 10/12/2006 45 treatments 80 gy
1/4/2007 Almost Total Urinary Blockage, Cystoscopy performed, The next few days I had the Urinary tract of a teenager.
1/8/2007 Clogged up again, Catheter put back in. Removed myself (highly recommended) 7 days later No problems since with only occasional very mild stess incontinence since.
1/11/2007 PSA .03
7/26/2007 PSA .011
1/24/2008 PSA .027
5/22/2008 PSA .104
9/25/2008 PSA .383
2/17/2009 PSA 1.06
5/12/2009 PSA 1.5
8/25/2009 PSA 3.8 LHRH agonist (3 month Zoladex) started
11/24/2009 PSA .021
2/23/2010 PSA 0.99 another 3 month Zoladex

Posted 3/31/2010 6:35 PM (GMT -7)
Great news hope you stay in the zero club for now on Congrats wish i could jion hay but thats life I have to roll with the punches
Barry you are doing great!!!!!
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05

Posted 3/31/2010 7:00 PM (GMT -7)
Great news. I know you are feeling great hearing those numbers!
 

Age 48 at diagnosis

occupation accountant

PSA increased from 2.6 to 3.5 in one year

biopsy march 2008 - cancer present gleason 7

Robotic Surgery May 9, 2008 - houston, tx

Pathology report -gleason 8, clear margins

22 month  PSA <.04

continent at 10 weeks (no pads!)

ED is still an issue

Posted 3/31/2010 7:37 PM (GMT -7)
Thanks to all for the well wishes...

My heart, thoughts, and prayers go out to those who continue fight a courageous battle for remission.

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04

Posted 3/31/2010 7:43 PM (GMT -7)
Congratulations on the <0.04, I have been on a little coaster myself. Hope yours stays that way.
diagnosed sept 2006 @ 54 years old, live in Georgia, gleason 3+4=7, (r) lobe only

psa 4.7 (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern. If I can find out about PSA velocity, why didn't he know!)

Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT

RP Emory Atlanta December 2006. Path-negative margin, negative lymph nodes, negative SV, both Lobes involved, 40% gland involved
multifocal perineural invasion, Gleason 3+4=7

1st psa April 2007-<0.04, 6 mos-<0.04, 9 mos <0.04, 1yr <0.04, 21 mos <0.04, 2 yr 0.04 (rising?) 26 mos-0.05, 27 mos-0.04, 29 mos 0.06 Sept 09 ,<0.04 3 year <0.04 39 mo. 0.07 (rising again)

Posted 3/31/2010 7:59 PM (GMT -7)
I know that there are those who will argue that the ultrasensitive causes you needless worry, because all of your readings have been less than .1, but I think that it would make me feel much better to see even the small increases and decreases.

Congrats on the zero's. You give us guys hope.
Goodlife

Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9

Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.

0/23 lymph nodes involved  pT3a NO MX

Catheter and 2 stints in ureters for 2 weeks .

Neg Margins, bladder neck negative

Living the Good Life, cancer free  6 week PSA  <.03

3 month PSA <.01 (different lab)

5 month PSA <.03 (undetectable)

6 Month PSA <.01

1 pad a day, no progress on ED.  Trimix injection

No pads, 1/1/10,  9 month PSA < .01

Posted 3/31/2010 8:14 PM (GMT -7)
Congratulations from another Idaho boy.  Keep those Zeros rolling.

Allan

Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7

Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2

Bone scan and cat scan showed hot spot on hip bone.

Oct 05- bone biopsy, ouch.  benign , no cancer in bones.

Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.

ED appears to be perminant but doing great with Trimix.

PSA remains undetectable.

Posted 3/31/2010 9:35 PM (GMT -7)
Way to go Barry. Now go for a ride, feel the wind in your face and be free.

Jim
Age 75. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06. Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + .05 cc Trimix = Excellent Results
PSAs from 1/3/07 - 7/17/09 zero.
Next PSA - July/2010
Lung cancer dxed on 5/16/08. Surgery on 6/25/08 T1N1M0 - Stage IIA Finished 4 cycles of chemo on 11/7/08.
CT scans on 12/2/08 - 12/22/09 - in remission!!!
Next scan in June 2010.
Biker90's Journey
http://www.caringbridge.org/visit/jimrobinson
"Patience is essential, attitude is everything."

Posted 4/1/2010 5:58 PM (GMT -7)
Thanks to all for your kindness.  You guys are great!

Biker... I just finished that ride on my moto... 43 degrees outside,  but sunny and it felt great!  Thanks for the poetic suggestion.  I did want to ride all the way to Spokane, but alas, I only have a 250cc.  tongue

'Wishing all success in our common battle.

Barry

Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04

Posted 4/1/2010 7:24 PM (GMT -7)
Great news Barry.  Keep going.....
Currently 55, surgery at 54

Normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)

10 cores, 1 positive and at 1% of that one core

PSA @ surgery 6 

Bone and Ct scans negative

clinicaly Staged at T1C - Gleason 3+3 = 6

Robotic Da Vinci performed March 27th, 2008, University of Chicago.

Catheter out in 7 days normaly expected leakage

Post Pathology T2C, Gleason 7, (3+4) 10 % of both portions of prostate

Seminal vessels clear, fat tissue clear, single positve margin at apex measuring less than 1/2mm. 

PSA Six week < 0.1 4 month PSA <.05 6 month PSA<0.01,9 month<0.01,12 month <.008, 18 month .010, 03-21-10 (24) months .010 undetectable

Watching PSA @ 6 months for 2 years,  will do salvage radiation if necessary.

Fair to Good results with Viagra,  side effects are bothersome at times. Tried Levetra about the same as Viagra.  Tried Cialis, think I will stay with the Viagra at 50 mg.  Side effects worse at 100 mg.  

 

 

 

Posted 4/1/2010 7:58 PM (GMT -7)
Hi Barry,
Congratulations to your continued membership in the Zero Club!

Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Five PSA tests undetectable, latest Feb 5 (Whew!)

Posted 4/1/2010 11:36 PM (GMT -7)
Hi Barry,
We take the blessings when we get them. Love ya buddy!...Keep the low numbers coming...

Tony
Prostate Cancer Forum Co-Moderator

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