Six Month Anniversery on The SP

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/1/2010 8:48 AM (GMT -6)   
Today makes exact six months to the day, that I had the operation that surgically installed the SP (surpapubic) catheter into me.
That's 182 days I have now been with at least one catheter during that time.  This is actually the 15th catheter I have had installed since my original open operation back in October - 2008.  My total time on all the catheters is now 283 days of this total period.
 
This is a twisted journey that never could have been anticipated nor was it one I read in a PC related book.  During this time, and not that I kept accurate track, but based on the normal daily average, I have endured probably 2,000 or more bladder spasms.  And for those new to the term bladder spasms, there is no getting "use" to them over time.  They all hurt.
 
Right now, we (my dr. and I) are waiting another month with #15 in place, to see if the radiation related swelling goes down and perhaps some of the radiation related damage finally heals.  As there is nothing more productive we can do in between.
 
For me, it means another month of enduring this lovely tube exiting my belly, and worrying about tubes and bags and not snagging anything for another month, at least.  Wearing the same boring black pants again and again if I go out, just in case I have another "accident" or if the tube came loose from the catheter  (it does happen)
 
And get ready for today's spasms.  Already had 2 this morning, and I havent even been awake for 30 minutes.
 
My biggest hope is that not a single other man have to follow this path of chronic strictures post surgery and SRT.  Wouldn't wish this on anyone.
 
What I miss the most during this time, is rolling over in bed  (can't be done with tubes), getting in our beautiful Spa  ( a big no no for infection) or being able to take a nice tub bath.  Showers are ok, but was always a bath person.
 
But today is another day.  Sure I will get through all I have to do today fine in the end, just a little more difficult.
 
David in SC
 
I wish my Aflac Cancer Policy paid me $1,000 for each time I had a new catheter, I could pay off my  car with the proceeds!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 4/1/2010 11:33 AM (GMT -6)   
David, not much of an anniversary to celebrate. Hope this all ends soon for you. Everytime I see the word spasm, I cringe. There just isn't any relief. So far so good on my srtricture surgery. Heavy stream, but stress incontinence. Seems like we just can't win. Get my six month PSA end of this month and consult again about radiation. Your ordeal will really make me think about the radiation and it's possible bad effects a lot more than I would have in the past. Hang in there, Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream.  Unfortunately, incontinence back to post surgery level.


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 4/1/2010 11:46 AM (GMT -6)   
Dave, very sorry about your plight. Hope it ends soon and you can get on with a normal life. Can't imagine what you are going through. I was on a chatheter for only 12 days, and couldn't wait to get rid of it. The only pain I had was the discomfort of wearing it. Keep a positive attitude, your body will heal itself. BB
Dx with PC Dec 2008, PSA 3.4, Biopsy: T1c, Geason 7

Robotic Surgery March 2009 Hartford Hospital
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Junl 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/1/2010 2:32 PM (GMT -6)   
Subic, so glad to hear that your fix is still working for you. A good stream still is great news, the urgency can improve over time, hope that comes for you soon too.

BB, thanks.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/1/2010 2:55 PM (GMT -6)   
David -
May this be the LAST anniversary with the catheter(s) and the beginning of a new round of anniversaries - free of snakes and tubes and over-scarring - and especially FREE of cancer.
major Easter hugs
BRONSON & STEVE
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/1/2010 3:19 PM (GMT -6)   
Thank you Bronson, you have become a good friend to me.

Best holiday wishes to both you and Steve.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 4/1/2010 8:08 PM (GMT -6)   
Hi David,
 
I'm going to recognize this 6-month anniversary with the fact that you are still with us as a PCa survivor.  None of us can fully appreciate what you've gone through. 
 
Like others, I'm hoping you'll have several good things to celebrate during the next six months!
 
Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 4/1/2010 8:39 PM (GMT -6)   
David,
I can't imagine going through what you have endured. I hope that this is your last catheter and that you will have normalcy in your life.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/1/2010 10:13 PM (GMT -6)   
Barry, thank you, that was a good way of looking at it. Always appreciate your concern and care.

EdC, same sentiments go for you too. As long as I have an SP in me, it will always at best, be the 2nd to last catheter I will need, when and if this can ever be removed, it would always require a shorter period of wearing a foley catheter, to give the bladder wall a chance to heal once there is no longer a tube shoved through it. This one is scheduled to be replaced April 26th, still so sore from Monday's swap, it hurts to think about that, lol.

As a general update:

Today, woke up sore, which is unusual, as I usually start a day feeling fine down there, and then it goes downhill by mid afternoon, or sooner depending how active I am being, i.e. walking, standing on my feet, etc..

Well I did about 3 hours consulting working downtown, and when I was invited to lunch, that was cool. A beautiful warm spring day, got to 88 here today btw. The restuarant was a bit out of my walking distance and was downhill all the way. I should have known better, but off we went on foot. Had a nice lunch, but the walk back was uphill all the way, geez, I was cramped up and hurting by the time we got back to the office building. I ended up having to leave in minutes, and had a difficult time bending or walking and driving home. Needless to say, it made for a miserable rest of the day. You have to know you limits, I did, and didn't listen to myself, my fault I suppose.

My uro called, good news was no UTI, glad for that, but at least that would explain why I have had a lot of pain the past week and a half. So no antibiotics needed. The culture showed "nothing significant"

They reminded me of my next important event, on Tuesday, they will be drawing my blood for my second post SRT PSA test. This one will be about 4 months and a week post SRT. Sure could use a little good news there.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 4/1/2010 10:24 PM (GMT -6)   
David,
 
Your trial is beyond anything I could have imagined.   And yet you keep posting and supporting the rest of us with far fewer issues.    You are a true blessing and inspiration to all of us on this forum.
 
I am praying that next weeks PSA test will show a good drop and be the turn around for you.   You truly deserve it. 
 
God Bless,
 
pasayten
After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment started
                  32 sessions for 64 gys total.
3/12/2010 Finished 32 sessions...  No side effects to date except a little
tiredness.  Slight changes in bowel movements the last week...   Would feel like I did not empty completely and get a little blood once in a while.  Also maybe aggrivated by a little constipation caused by cholesterol medicine simvastatin that I started in November and when I do not drink enough water. No change in frequency for bowel or unination though which was a blessing thru the whole process.
 


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 4/1/2010 10:48 PM (GMT -6)   
David: I know this has been a long journey. You sound better that last wk. I am pleased that you have a bit of relief.

Happe Easter my frined.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 4/2/2010 6:38 AM (GMT -6)   
David at lest you got out I 'am at Greer working on a free standing Verizon store for REALITYLINK it was hot to us outdoor people but it has been some beatiuful days this week maybe it help you some being outside in the sunlight this week there nothing like a day outside when its pretty makes you think God made another one for us
praying things get better for you!!!!
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/2/2010 9:09 AM (GMT -6)   
pasa, thanks for your kindness.

jeff, my friend, reminds me of that old sound title, the long and winding road, never quite sure what is around the next bend. parts of me would like to look ahead, and the other part doesnt, right now, its one step at a time, one day at a time, and try to keep being thankful for what i do have going.

deerhunter, if you are in greer, sc, you are just up the road from me. yes, it was hot yesterday, 88 here, suppose to be as warm today, and then cooler and nice all through the weekend. that always helps the spirits when you are in good weather
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/2/2010 5:24 PM (GMT -6)   
Well David "happy anniversary" certainly is not appropiate in this case. "Catheters be gone" would be nice. Here's hoping that things settle down over the next month and we'll read that you're rolling over and over in your bed with gay abandon shocked and looking like an old prune after spending many hours in that tub.
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/2/2010 6:33 PM (GMT -6)   
thanks for the good wishes, billy. one would have to imagine that perhaps in my lifetime, i can finally be free of these endless caths and the troubles that come with them. today was a lot of pain day today, kept feeling like something was stabbing me in the bladder neck area, wasnt a lot of fun. back home now trying to chill. hope you have a good Easter holiday.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 4/3/2010 8:48 AM (GMT -6)   
Sorry to hear about your ordeal. I can't imagine what you are going through. I just hope and pray that things will work out and your next PSA will be fine. As you can see from my stats, my first post-SRT PSA didn't go down as expected. It took 6 months for it to finally go down. I guess it takes time for it to work. Have a Happy Easter.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/3/2010 9:13 AM (GMT -6)   
Thanks for your input, boot
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 4/3/2010 9:26 AM (GMT -6)   
David, thanks for posting the update.

You remind me of my maternal grandmother who would say, "this is the day the Lord hath made. Let us rejoice and be glad in it!" And, the more troubles she had, the more joy she put into saying this. She wasn't in denial, and she'd have her down times, but she'd always bounce back saying, "This is the day ...." It not only strengthened her, it strengthened the rest of us.

You, David, like my grandmother, are not in denial, but you always bounce back and bring me strength too. Thank you.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/3/2010 3:10 PM (GMT -6)   
Thank you Sheldon, I am starting to look like someone's grandmother, lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29

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