Today makes exact six months to the day, that I had the operation that surgically installed the SP (surpapubic) catheter into me.
That's 182 days I have now been with at least one catheter during that time. This is actually the 15th catheter I have had installed since my original open operation back in October - 2008. My total time on all the catheters is now 283 days of this total period.
This is a twisted journey that never could have been anticipated nor was it one I read in a PC related book. During this time, and not that I kept accurate track, but based on the normal daily average, I have endured probably 2,000 or more bladder spasms. And for those new to the term bladder spasms, there is no getting "use" to them over time. They all hurt.
Right now, we (my dr. and I) are waiting another month with #15 in place, to see if the radiation related swelling goes down and perhaps some of the radiation related damage finally heals. As there is nothing more productive we can do in between.
For me, it means another month of enduring this lovely tube exiting my belly, and worrying about tubes and bags and not snagging anything for another month, at least. Wearing the same boring black pants again and again if I go out, just in case I have another "accident" or if the tube came loose from the catheter (it does happen)
And get ready for today's spasms. Already had 2 this morning, and I havent even been awake for 30 minutes.
My biggest hope is that not a single other man have to follow this path of chronic strictures post surgery and SRT. Wouldn't wish this on anyone.
What I miss the most during this time, is rolling over in bed (can't be done with tubes), getting in our beautiful Spa ( a big no no for infection) or being able to take a nice tub bath. Showers are ok, but was always a bath person.
But today is another day. Sure I will get through all I have to do today fine in the end, just a little more difficult.
David in SC
I wish my Aflac Cancer Policy paid me $1,000 for each time I had a new catheter, I could pay off my car with the proceeds!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29