I am definitely King of Catheters here, but not a proud title. I had open Prostate surgery in October 2008, and I am on my 15th catheter.
The first 9 were foley catheters for a total of 101 days. The last 6 have been suprapubic catheters, they exit just below to the left of my belly button. Surgery was performed on Oct 1 to install it, and there has one been in place continuous ever since.
My problem is that I have strictures or blockages caused by over-scarring in the bladder neck itself. I have had 2 emergency dialations and 5 corrective surgeries to "fix" the problem, but so far, the bladder neck keeps closing up in short time. I also under went a heavy dose of salvage radiation treatments in October and November of last year, which only has made the problem worse.
Here in the US, long term catheters have to be changed out in 4-6 week intervals, for sanitary reasons and to keep down urinary tract infections. I couldn't imagine any doctor here letting a foley stay in for 3 months at at time. It is generally accepted here, that a foley catheter passing through your urethra is more prone to infections than an SP catheter like I currently have.
What is this "level operated catheter valve" you mentioned? Haven't heard of that before.
Do you have trouble with bladder spasms, and if so, how are you treated for them in Norway? I have been on the drug ditropan since the start, but still have suffered literally thousands of bladder spasms over time.
Right now, I have too much radiation related damage to consider any more surgical appoaches to fix what is wrong with me, so I will remain on catheters on a month to month basis until a perm solution can be found.
You are not alone, that is for sure.
Please keep us posted of your situation. Did they every estimate how large your prostate was in cc?
David in South Carolina, USA
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29