Benefits of PCa

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 4/6/2010 7:50 PM (GMT -6)   
When I was first diagnosed and started posting here I found someone that was in my area and had the same surgeon.His name is Roger, we developed an online relationship by email before my surgery, he told me about the the surgeon, hospital and what to expect in my local area. We get a lot of advice in general here on HW and that's great but there's nothing like following somebodies exact footsteps. He wanted to meet me after my surgery and that was to me an incredible act of brotherhood that we all share in this beast we call PCa. And so on Sat. morning there he was to greet me to the other side. So we have grown our relationship and a few weeks ago my wife and I went to there house for lunch and wouldn't you no it the two wives hit it off like Roger and I. So I am really greatful for Roger. We need to do it again soon.
 
I also made friends with another guy named Butch, although we have not met in person we share emails quite often, which reminds me I need to email you back Butch. He is from near the area that I grew up in. I would just like to thank both of them publicly. Thank you brothers. I would also like to thank Peter for HW, and our mods Tony and James. And everyone that posts here. I've made many friends here to and I don't want to leave you guys and gals out. I have not posted much lately but I check in everyday to see what is going on. For me I'm progressing fairly well, yesterday I was 8 weeks out and almost pad free except for a little stress incontinence, first psa undetectable and now get to wait 3 months for the next one.
 
I know many of you have also made some strong friendships. So I usally don't ramble on this much but it has been on my mind lately.
 
May we and our families keep up the good fight against PCa.
 
 
Neal
 
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
PSA 3/29/10 <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/6/2010 7:58 PM (GMT -6)   
Neal, I understand where you are coming from. I have made more reall friends here at HW since my PC dx, then I would ever have made in my "real" life. The common bond we share here is a real brotherhood, not just in words only.

WIth PC, there are so many men that are survivors, so many new men getting dx, and of course, sadly too many brothers we don't even know that pass away because of this disease. But there are a lot of us fighting this thing at any moment.

With my previous cancer battles, all 3 of them, it was so ultra rare, that there would almost be no chance of meeting anyone dealing with it, there were no support groups, no forumns like this, as at the time, I was one of only 38 known cases in American medical history, with less than 300 cases on the world. It was hard, and lonely, not even the people at the local American Cancer Society had even heard of it.

We are not alone, there's a lot of good men out there, that need what we have here.

And Neal, I consider you a real friend too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/6/2010 8:06 PM (GMT -6)   
Neal -
- a very lovely and caring letter. It is like the old Joni Mitchell song ... "you don't know what you got 'til it's gone..."

- one benefit of having PCa is that it can help put things in perspective and priorities. It is so easy to get angry at the wrong things and forget about what is good and wonderful in your life.

Wishing you a lifetime of zero's ( for you and the rest of the PCa HW bunch) - contentment - continence - and conquering PCa.

hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: to be announced - April 8, 2010
............


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 4/6/2010 8:14 PM (GMT -6)   
Hello fellows you could say where all in this fight together some know more than others but thats fine we can learn from each other to arm ourselve better in the fight against PC Ithink it does us good to make new friend along life way
Long life to all
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/6/2010 8:33 PM (GMT -6)   
Thanks for sharing, our minds must be in the same place:

http://prostatecancerat42.blogspot.com/2010/04/brothers-day_01.html
Dx'd 2/11/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th

Current (3-29-10)
PSA: 126
Treatment: Lupron, Zometa, DES+Cumadin
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com
Facebook Profile:
www.facebook.com/david.e.emerson


t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 4/6/2010 8:58 PM (GMT -6)   
Neal, you make a good point. I am somewhat of a loner and have never been much for sharing my trevails with anyone, but the commonality of experiences here is very comforting and makes me feel connected. This board has been a source of great comfort indeed. Tim
Dx at 50 in 12/09 Merry Christmas its cancer....
3 of 12 positive, right side only, psa at dx 2.6 free%14
gleason 3+3=6
routine physical, no symptoms
Da Vinci performed Feb 2k10 by Dr Marc Milsten [hes got mad skills]
99% continent from cath out, mr happy fully functional at 2 weeks out!
path showed same gleeson with no other blips other than one slight margin, organ confined 20% right, 5%left, 34grams
Hernia repair Mar 2k10, hernia was side effect of the surgery
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 4/6/2010 10:18 PM (GMT -6)   
Neal,
I share the same story. I guy that goes to my church had surgery 1 month before me with my same doctor. When I went in for my surgery he was already waiting for me at the hospital. We see each other every Sunday and share news about our PSA, incontinence and ED.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 4/7/2010 5:59 AM (GMT -6)   
Neal, what a lovely post! And yes, we have all made friends here and elsewhere along our individual journeys.

When John was first diagnosed, he asked a priest at our church to pray for him as he just found out he had prostate cancer. The priest - Fr. Bernie - said "yeah...me too - who's your doctor?" Found out they both were going to the same uro/surgeon! Fr. Bernie was not able to have surgery due to the location of his prostate (it was too far behind the pubic bone for the surgeon) so he had radiation which was successful. Sadly, Fr. Bernie passed away on March 1 - not from PCa but from a heart condition.

As I have said before, the friends John and I have made here at HW are very special to us, and we hold you all very close to our hearts.

xxoo
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 4/7/2010 6:26 AM (GMT -6)   
Benefits of PCa for me:

I can pee like a racehorse. Nice.
I was exposed to technical areas and resources I had no idea existed.
I met some great guys and had discussions I could never have before.
I learned about the GFMPH trick - and am not ashamed to use it.
I now have a perfect excuse to get out of doing anything I don't want to do.
I now read this site instead of the paper when eating breakfast.

Jeff

Post Edited (Worried Guy) : 4/7/2010 5:31:17 AM (GMT-6)


JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 4/7/2010 6:40 AM (GMT -6)   
Where else, outside of our wives and perhaps are best friends, do we share our deepest thoughts? We are brothers with a common bond and I am thankful that we are able to share with each other. Otherwise, the journey would be quite lonely and fearful.
Age -57; Diagnosed 10/05 PSA 13.4 GS 7 (4+3) Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09)
Doubled to 1.5 (2/10) YUCH!
Hoping to qualify for salvage cryo or radiation


t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 4/7/2010 8:26 AM (GMT -6)   
Ahhh Jeff my brother, I must admit i too have shamelessly used the GFMPH trick to its fullest advantage. A good benefit indeed.
Dx at 50 in 12/09 Merry Christmas its cancer....
3 of 12 positive, right side only, psa at dx 2.6 free%14
gleason 3+3=6
routine physical, no symptoms
Da Vinci performed Feb 2k10 by Dr Marc Milsten [hes got mad skills]
99% continent from cath out, mr happy fully functional at 2 weeks out!
path showed same gleeson with no other blips other than one slight margin, organ confined 20% right, 5%left, 34grams
Hernia repair Mar 2k10, hernia was side effect of the surgery
 


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 314
   Posted 4/7/2010 12:11 PM (GMT -6)   

I am very much a loner - long story, but I learned early in life not to trust people.

I would never in a million, billion, trillion years have guessed that I would someday post on a chat board like this and discuss some of the things I have discussed here.

Life sure is strange that way.

Zen9


No family history of PC.  PSA reading in 2000 was around 3.0 .  Annual PSA readings gradually rose; no one said anything to me until my PSA reached 4.0 in September 2007, at which point my internist advised me to see a urologist.   
Urologist advised a repeat PSA reading in six months = 4.0 .  Diagnosed May 2008 at age 56 as a result of 12 core biopsy.  Biopsy report by Bostwick Laboratories = Gleason 3 + 3. 
Interviewed two urologists - the one who did the biopsy and another - the latter had the biopsy slides re-examined = Gleason 3 + 3. 
Then went to M. D. Anderson Cancer Center in Houston in July 2008 and met with a urologist and a radiologist.  Biopsy slides re-examined yet again, this time by MDA's internal pathology department = Gleason 3 + 4.   
Chose da Vinci surgery over proton beam therapy; surgery performed at M. D. Anderson Cancer Center on August 15, 2008.  Post-operative pathology report = four tumors, carcinoma contained in prostate, clean (negative) margins, lymph nodes clear, seminal vesicles clear.  Gleason = 4 + 3. 
Minor temporary incontinence; current extent of ED uncertain due to lack of sexual partner; refused treatments for ED as being pointless under the circumstances. 
PSA readings: 
November 2008 = <0.1 ["undetectable"]
June 2009 = <0.1   
December 2009 = <0.1
 


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 4/7/2010 7:59 PM (GMT -6)   
It is amazing how something so terrible, tragic or whatever you want to call this disease we  have, that so much good could come of it. I'm sure there will be many more relationships made through PCa here at HW and other places. I think when you share a common bond it puts you more at ease, because I am also a very quiet person. Nice to hear how others feel.
Thanks,  Neal

 


age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
PSA 3/29/10 <0.01


Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 4/8/2010 7:18 AM (GMT -6)   
Neal,
I am touched by your post, and thank you for it. I am very grateful and proud to call you my friend. I love you, man.
All the best.
Roger

 Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.

2/6/09              Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro

4/20/09            TRUS  w/needle biopsy

4/23/09            Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.

                        CT scan and Bone Scan both negative. Stage T2C.

8/27/09            DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.

9/8/09              Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion.  Stage pT3b.

9/30/09            PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Prostate Oncologist and Radiation Oncologist. Appointments set for 10/8.

10/8/09            Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.

10/21/09          First Lupron injection. 30 mg dose (4 month)

11/2/09            PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.

12/18/09          psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/09. Anticipate 64-66 grays over 32-33 treatments.

1/14/10            Start RT with 32 treatments # 2 gys per.

2/26/10            IMRT completed.

 

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradually getting better, with dramatic reduction in leakage around 9/20. Currently on 1 pad during the day and one at night (for security). Actually totally dry at night. After 1/16/10 down to a female regular pad. Barely felt.

 

 

 


Heavy Leaker
Regular Member


Date Joined Feb 2010
Total Posts : 63
   Posted 4/9/2010 6:40 AM (GMT -6)   
t-dog said...
Ahhh Jeff my brother, I must admit i too have shamelessly used the GFMPH trick to its fullest advantage. A good benefit indeed.

Sorry, but I don't know the GFMPH trick!  What is it?
 
Ray
4 biopsies over 4 years starting in 2006, 4th biopsy showed 5% of one core Gleason 3+3=6.  PSA in 2005 6.0, rose to PSA 18 shortly before surgery.  Chose surgery over radiation due to conflicts in PSA versus biopsies.  PSA 18, Gleason 3+3+6, Age 58, Rising PSA since 1999, Biopsy 5% of one core
Robotic surgery 10/26/09  T2B Tumor 30% of prostate  involving left & right lobes  NOMX Gleason 3+4=7  Urethral Resection margins &  resection surface clean Seminal vessicles clean.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/9/2010 8:38 AM (GMT -6)   
GFMPH= Good For Men's Prostate Health,,,,examples: Hon, that 46" flatscrren HD TV would be good for mens prostate health. Hon, love making every night would be GFMPH, Hon, a 4 day fishing trip with the boys to Las Vegas would be GFMPH... smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Heavy Leaker
Regular Member


Date Joined Feb 2010
Total Posts : 63
   Posted 4/9/2010 9:25 AM (GMT -6)   
James C. said...
GFMPH= Good For Men's Prostate Health,,,,examples: Hon, that 46" flatscrren HD TV would be good for mens prostate health. Hon, love making every night would be GFMPH, Hon, a 4 day fishing trip with the boys to Las Vegas would be GFMPH... smilewinkgrin

James,
 
Thanks, now I can use that phrase instead of the usual long explanation I give!!!!
 
Ray
4 biopsies over 4 years starting in 2006, 4th biopsy showed 5% of one core Gleason 3+3=6.  PSA in 2005 6.0, rose to PSA 18 shortly before surgery.  Chose surgery over radiation due to conflicts in PSA versus biopsies.  PSA 18, Gleason 3+3+6, Age 58, Rising PSA since 1999, Biopsy 5% of one core
Robotic surgery 10/26/09  T2B Tumor 30% of prostate  involving left & right lobes  NOMX Gleason 3+4=7  Urethral Resection margins &  resection surface clean Seminal vessicles clean.


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 4/9/2010 2:59 PM (GMT -6)   

It’s like you have credibility when you talk about ED, fear of the unknown, leaking, post op pain, darn biopsy result interpretation, and such…because we have all walked... the walk.  Real friendships do take place just as posted above. I for one don’t post as often as I could, but not a sunrise takes place that I don’t check this site, and I actually feel the emotions of others who are looking for help, and I sense the genuine concern of the an individual sharing. Really fascinating things happen here on a daily basis.  You are a bunch of swell people.  

 

Hero


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 4/10/2010 6:08 PM (GMT -6)   
Roger love you to man! This is the only board I post on or have ever posted on. I am very happy to call everyone hear a friend.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
PSA 3/29/10 <0.01

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 10:18 AM (GMT -6)
There are a total of 3,005,665 posts in 329,249 threads.
View Active Threads


Who's Online
This forum has 161795 registered members. Please welcome our newest member, jjakefamily.
252 Guest(s), 4 Registered Member(s) are currently online.  Details
MauiViv, Lymie24, Alex ArmPain, dsrouillard