Finally, a turn for the good

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/8/2010 10:13 AM (GMT -6)   
Called my uro's office this morning, ready to face my fate one way or the other.  The first post SRT PSA reading was .12, the latest one was .04.  I had the nurse read it back to me 3x to convince me I wasn't misunderstanding it.
 
Gentlemen, and ladies, that means I am entitled to get back in the zero club.  A .04 is lower than I ever had even right after surgery.  My uro considers this, at least at this point in time, as remission.  He still wants to check every 3 months for the next year out from now, to make sure its not going to throw a curve.
 
Perhaps all these months of pains/etc since my radiation ended, the radiation was still doing its job of killing off stray cells.  While I know this is no guarantee that there won't be future reccurance, it looks on the surface that the remaining cancer cells very well may have been limited to the prostate bed.  For that, I am thankful.  I was 90% willing to bet that it was going to go up this time, boy, I am glad to be wrong.
 
So if I could get this chronic stricture issue fixed, and get some strength back, I could almost be human again.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 4/8/2010 10:20 AM (GMT -6)   
David,

That is great news!!! You surely have been through the ringer. It was time for you to get some good news.

Wigs
Diagnosed @ age 47 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
 
 


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 4/8/2010 10:23 AM (GMT -6)   
That's great news!
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 4/8/2010 10:26 AM (GMT -6)   
David,
So happy to see that report!!!!!!!!!!!!!!!!!!!!!!!!!!
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


rigagirl
New Member


Date Joined Apr 2010
Total Posts : 6
   Posted 4/8/2010 10:29 AM (GMT -6)   
Congratulations!!! This is wonderful news!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/8/2010 10:31 AM (GMT -6)   
THank you: wigs, galileo, rigagirl, and michael, been a long long long time since i could post anything positive
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Ricky2
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 4/8/2010 10:31 AM (GMT -6)   
Great news!!!!

Ricky2
Age 70

PSA 5/2008- 3.6, PSA 7/2009- 6.1, retested 9/2009-5.1.
Biopsy 9/2009. 4 of 12 positive. Gleason 3+4=7
CT and bone scan negative.
Robotic De Vince Surgery 10/29/2009. 1 night in hospital. No pain. Cath out on 11/6
Pathology Report: Gleason score 3+4. Margins slightly involved <.1mm to .25mm. Perineural invasion present, stage pT2c. Tumor 18%. Seminal Vesicle - absent, Lymph Nodes 0 of 6.
Continence- first 4 weeks after cath out Dry at night, rest of time, bladder held nothing. 6-7 pads per day. as of 12/30 no pads most of time. almost dry except for a few drips. I keep doing Kegels.
ED. Started VED on 12/17/2009. Every other day for 15 min. Cialis .20 mm twice a week
PSA 02/08/2010 <.1
02/22/10 Trimex injection .2ml less than 50% just a little discomfort.


JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 4/8/2010 10:38 AM (GMT -6)   

David,

That news just brought a big smile to my face...WONDERFUL!


Age -57; Diagnosed 10/05 PSA 13.4 GS 7 (4+3) Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09)
Doubled to 1.5 (2/10) YUCH!
Hoping to qualify for salvage cryo or radiation


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 4/8/2010 10:44 AM (GMT -6)   
Fantastic!

Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 4/8/2010 10:44 AM (GMT -6)   
Holy Hanna, Batman --- this ROCKS ! !

Yiiiippppeeee !!!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 316
   Posted 4/8/2010 10:45 AM (GMT -6)   
Davidddddd!!!!! I am so glad to hear that great news! To be honest, I kept logging in waiting to see the results of your PSA test. I am so happy for you if anyone deserves this it's you.
 
LuvMyDAD

defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 4/8/2010 10:57 AM (GMT -6)   
Truly great news - welcome back to the club!

John
Def3

Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 4/8/2010 10:58 AM (GMT -6)   
Great news David, high time.  Tim

BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 4/8/2010 10:59 AM (GMT -6)   

David, that makes my day...no make that my month. You deserved some good news, and this is wonderful. Welcome back into the Zero Club. Drinks on the house!

Bill


Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/08) (3/09) (7/09) (1/10): all <0.1


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 4/8/2010 11:03 AM (GMT -6)   
David is the Man!

Yipee! Wahoo! Woopee! tongue

I logged in from work today (don't tell anyone) just to see your stats and what a blessing!

What could be better!

Welcome back to the zero club, mister!

You really deserved the good news.

Looking for more coming down the road.

Sincerely,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 314
   Posted 4/8/2010 11:06 AM (GMT -6)   

Very good!

Zen9


No family history of PC.  PSA reading in 2000 was around 3.0 .  Annual PSA readings gradually rose; no one said anything to me until my PSA reached 4.0 in September 2007, at which point my internist advised me to see a urologist.   
Urologist advised a repeat PSA reading in six months = 4.0 .  Diagnosed May 2008 at age 56 as a result of 12 core biopsy.  Biopsy report by Bostwick Laboratories = Gleason 3 + 3. 
Interviewed two urologists - the one who did the biopsy and another - the latter had the biopsy slides re-examined = Gleason 3 + 3. 
Then went to M. D. Anderson Cancer Center in Houston in July 2008 and met with a urologist and a radiologist.  Biopsy slides re-examined yet again, this time by MDA's internal pathology department = Gleason 3 + 4.   
Chose da Vinci surgery over proton beam therapy; surgery performed at M. D. Anderson Cancer Center on August 15, 2008.  Post-operative pathology report = four tumors, carcinoma contained in prostate, clean (negative) margins, lymph nodes clear, seminal vesicles clear.  Gleason = 4 + 3. 
Minor temporary incontinence; current extent of ED uncertain due to lack of sexual partner; refused treatments for ED as being pointless under the circumstances. 
PSA readings: 
November 2008 = <0.1 ["undetectable"]
June 2009 = <0.1   
December 2009 = <0.1
 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 4/8/2010 11:09 AM (GMT -6)   
 
David,
 
That is the best news I have heard in a long time.  You are back in the zero club hope I can join you soon.  Now you can look forward to a bright future with your lovely wife.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 4/8/2010 11:09 AM (GMT -6)   
David,
Gasped outloud when I read your subject line, "yipppped" (pardon the extra p's- pun intended)  outloud when reading your PSA results!!!!  I am in the process of getting a work at home job, so have been lurking briefly on a regular basis, but had to stop and give you a cheer.
Guess you are buying us all a round of that "natural corbonated water" you speak  of??
CareBear

(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


6071
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 4/8/2010 11:10 AM (GMT -6)   
great news dave i am very happy for you keep it up
Age 61 at DX
Biopsy 7/2008 Positive 1 of 12 cores positive 3+4 5% To 10%
Open Radical Prostatectomy 15/10/2008
Stage pt2c
Post op staging Gleason's Score 3+4=7
apical margin is focally positive
no extraprostatic extension
Seminal vesicles and lymph nodes clear
Catheter out on the 13/11/2008
4 week PSA < 0.1
26/1/2009  < 0.1
20/4/2009 < 0.1
11/6/2009 ultra sensitive psa 0.07
20/7/2009 < 0.1
26/8/09 Starting photon 3D CRT
13/10/09 Radiation Finished
25/11/09 ultra sensitive psa < 0.05
 







Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 4/8/2010 11:20 AM (GMT -6)   
Congratulations - it is always to hear good news - all of us need them!

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 4/8/2010 11:24 AM (GMT -6)   

Great news David, it's about time you had something good happen.

JT


64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 4/8/2010 11:28 AM (GMT -6)   
It's about time you posted something good! May you be in the club forever.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
PSA 3/29/10 <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/8/2010 11:36 AM (GMT -6)   
To all my friends, brothers and sisters who posted above this post, let me get by easy this time (on my way out the door) and give a giant collective thanks. It still hasn't fully sunk into my head yet, probably will fully hit me later. Since my original PCa dx back in August 2008, this has been hanging over my head like a sword. Even fighting the stricture problems and the radiation complications was harder when I never knew if all this pain/suffering/emotional stress was even going to do any good.

I feel encouraged. Feel like I got a shot at it now. Now I can mentally move on to "let's figure out how to get this poor guy out of a catheter" after all this time. Still hoping that perhaps in another few months of healing from the radiation, that perhaps the second miracle will happen, and the stricture problem will be history. I really don't want to have to have a perm. catheter as a solution.

But right now, I am in remission, and my PSA is .04. I can live with that.

David in SC

Drinks definitely on me.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Jim is sick
Regular Member


Date Joined Mar 2010
Total Posts : 118
   Posted 4/8/2010 11:42 AM (GMT -6)   
I think you are a good person and you certainly deserve the good news. Congrats!
48, Caucasian, 5' 8", 200lb, general good health.
PSA: 8-7-09 3.22, 11-13-09 4.25.
Biopsy: 32 cores. 3 cores reveal PCa, 10%, Gleason 3+3.
Diagnosed: 2-12-10.
Treatment options being considered: AS, Proton Therapy, HIFU.
Mode: Learning.
Process: Reading Dr. strums book, Determine second opinion specifics.


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 4/8/2010 11:49 AM (GMT -6)   
I love good news and ESPECIALLY from you! A big congratulations.

Steve
Age-66
PSA-6.5
8/09-14 core biopsy
4/14 cores pos. GS-(3+4)7
10/13/09-robotic RRP Moffitt Cancer Center Tampa
Post-surg path-two nerves spared, capsule, margins, seminal vesicles neg.
GS-(3+4)7, tumor <5% in 83gm sample.
1/5/10-first PSA-<0.1
IC and ED.

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