Incontinence hope !

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New Member

Date Joined Feb 2010
Total Posts : 19
   Posted 4/12/2010 8:28 PM (GMT -6)   
I had a shocker this week. I went skiing in Colorado. I don't know if it was the altitude, the cold, the skiing , or the relaxing week with no stress that made a difference but when I went away I was on 7 pads per day 10 weeks post surgery.  While there it went down to three pads per day (1 at night).  One day I had one pad for 13 hours.
Today, one week later, I went the entire day on 2 pads! (still one at night).  Finally light at the end of the tunnel.
2/97---Total colectomy with J Pouch surgery. stage 1 colon cancer. Total removal, no chemo or radiation was needed.
8/09---routine physical, 4.4 psa
11/5/09---diag: 1 out of 12 cores positive 3+3 Gleason
1/26/10 robotic prostatectomy. 3+3 Gleason, Clear margins
 3/9/10---psa <0.1
3/26/10---2 month post op.  This week for the first time felt stirrings of an erection. Long ways still to go though.

Veteran Member

Date Joined Sep 2009
Total Posts : 3172
   Posted 4/12/2010 8:58 PM (GMT -6)   

Also check out the input I sent to Len tonight on another thread titled, "When does the urgency to urinate return?"

It sounds like you are subconsciously training yourself to "hold it" with a new set of muscles! (which is exactly what you need to do in order to gain control)

Way to go!

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 4/12/2010 9:14 PM (GMT -6)   
Congratulations for whatever reason you saw such quick improvement.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29

Regular Member

Date Joined Mar 2009
Total Posts : 260
   Posted 4/12/2010 9:21 PM (GMT -6)   
Sounds like you're on the way to becoming pad free! It took me 15 months to go from 10 or more pads per day to pad free.

Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Five PSA tests undetectable, latest Feb 5 (Whew!)
Pad free beginning Mar. 18, 2010!

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 4/13/2010 9:09 AM (GMT -6)   
Hmm, almost makes someone wonder if going to high altitudes and skiing naked would accelerate incontinence recovery? devil
James C. Age 63
Gonna Make Myself A Better Man
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN

Regular Member

Date Joined Nov 2009
Total Posts : 206
   Posted 4/13/2010 10:32 AM (GMT -6)   
James, I'm not a skier but I'm willing to try
the "naked" part.

Actually at this point I'm ready to try anything.
(now 12 weeks post surgery)

Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
Christmas Day got my first hot flashes. Thanks Santa!
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
Pathology Report:
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
Pathology Stage: yp T3a NO MX
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
First PSA test since surgery on March 18th.
with the results of 0.03 !!!
Next appointment with the surgery Doc is April 13.
Started a Facebook page for bikers with prostate issues at:
IMRT to start approx. April 26.

Forum Moderator

Date Joined Jan 2010
Total Posts : 7078
   Posted 4/14/2010 9:44 AM (GMT -6)   
Several have posted that there seemed to be plateaus of improvement. I've seen that as well. A major improvement, then over the following week or two you see setbacks, improve again, then a few weeks later you realize 7 became 4 became 3....
Problem is that I wish I would get to zero - tomorrow will be DaVinci + 25 weeks.

New Member

Date Joined Apr 2010
Total Posts : 7
   Posted 4/14/2010 7:44 PM (GMT -6)   
Congrats, sounds good. 
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