My first self injection using Bimix

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

larryandangieohio
Regular Member


Date Joined Jan 2010
Total Posts : 44
   Posted 4/13/2010 9:17 AM (GMT -6)   

The doctor made it look so easy last week in his office. He started with .3 ml and I received about an 80 %. He told me to try .4 or .5 ml. and that I should get the "FULL" benefit. It was quite different at home with the needle in my hand!

 

Problem number one: The shakes … I was shaking just inserting the needle in the vial to fill the syringe and then starting to think about where it was going next. The Bimix is kept in the refrigerator and I was told to let it warm to room temperature, so I used that time to calm my nerves.  After all what I was about to do was for the betterment of mankind (please, remember  ... this is my world!)

 

Problem number two: Doc had said to alternate sides. Since he had injected the right side I was to inject the left side. I am right handed so this made the voyage a little rough from the get go! (I would suggest that all doctors ask if the patient is right or left handed and select the opposite side so that when the needle is in our hands for the first time it makes it a little easier.)

 

Problem number three: NERVES or lack thereof. I was using a 30g 1/2" long needle that (in my mind) grew longer and thicker as it approached the target area.    smhair   It took five approaches before penetration. Once the skin was broken, I knew it was all or nothing and I had to plunge ahead (pun intended). By the time it was fully inserted (I was certain the needle would be protruding out the other side) my heart was racing full speed.

Problem number four: Even though I thought I had properly located a clear point of entry ..... I  hit a small vain!  mad  It was not the same ease of entry feeling as when the Doc did it last week.  There was a little resistance and a minor sting ... since I had read up on the procedure I knew what had happened. I took a deep breath and continued insertion ever so slowly.

Problem number five: Okay the needle is “IN” and being held in my left hand while my right hand is holding on and trying not to move. At this point my dog decides to enter the room so see what ole dad is doing. How do you brush away a 100lb dog while both hands are occupied? (note to self …  remember to fully close and lock all doors prior to needle play).

Problem number six: The plunger has to be pushed all the way in/down using my left thumb while my left hand is holding the syringe and my right hand is still holding Mr. Scared to Death as he is now trying to retreat into my body and I am trying to pull him out and keep him steady. This is a feat in itself for a right handed individual.

Problem number seven: As the needle is withdrawn, blood appears on the scene.  Scary, but not a huge factor, just a small drop. At this point we now have blood, sweat and no tears! The blood leaves a small bruise under the skin about the size of a pencil eraser. I will consider it a battle scar until it fades, too bad I can’t show it off!

Twenty-five minute later we had success to the point of about 95%, very useable with only .4ml ….yeah

WOOOOOOOOOOWHOOOOOO! And next time I get to use my right hand!

Moral of the story: Put your fears to rest it’s never as bad as your mind makes it out to be!     cool


Dx Age:58  PSA 8/06 8.74,  10/09 7.46,  12/22 6.50 Needle Biopsy  11/10/09: 16/16 cores positive 2 - 85% of tissue

Gleason score 7 (3+4 with tertiary pattern 5). CT,Bone, and PET scans all negative.

Da Vinci laparoscopic prostatectomy performed on Jan. 07, 2010 at IU Simon Cancer Center…  Indianapolis, IN  Prostate size: 42 g Gleason score (primary + secondary):  4 + 3 = 7

Primary pattern (%):4, 60%  Secondary pattern (%): 3, 35%   Tertiary pattern (%): 5, 5%

Histologic type: Adenocarcinoma   Variant histology present: No   Multifocality: Yes

Extraprostatic extension: Yes   Seminal vesicle invasion: No   Cancer at surgical margin:No  

Bladder neck involvement: No    Lymph-vascular invasion: No    Perineural invasion: Yes

Catheter removed Jan-19-10  Dry Nights 1 pad/day as of 2/4/10 Baseline PSA 2/3/10 <0.04

PSA 4/7/10 0.045

 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 4/13/2010 9:41 AM (GMT -6)   
Larry,
Congratulations! It's great that you are doing it so soon after the surgery. I'm still a newbie myself so that stage is fresh in my mind.
I have a couple of "point"ers for you:
1) Make a chart to keep track of the side. After only a couple you will forget which side is next.
2) Get an auto injector for $35. You can place it right where you need it to go without having to spear the minnow barracuda.
Enjoy,
You've found the Holy Grail.
Jeff

larryandangieohio
Regular Member


Date Joined Jan 2010
Total Posts : 44
   Posted 4/13/2010 9:51 AM (GMT -6)   
Hi Jeff,
Thanks for the suggestions! I've noticed before that our stats are pretty close. I looked for the auto injector all weekend at several different stores with no luck. I even looked on line this morning thinking I would postpone the first try if I could locate an injector. Where did you find yours? Did you have to get different syringes and needles to fit it?
Larry

Dx Age:58  PSA 8/06 8.74,  10/09 7.46,  12/22 6.50 Needle Biopsy  11/10/09: 16/16 cores positive 2 - 85% of tissue

Gleason score 7 (3+4 with tertiary pattern 5). CT,Bone, and PET scans all negative.

Da Vinci laparoscopic prostatectomy performed on Jan. 07, 2010 at IU Simon Cancer Center…  Indianapolis, IN  Prostate size: 42 g Gleason score (primary + secondary):  4 + 3 = 7

Primary pattern (%):4, 60%  Secondary pattern (%): 3, 35%   Tertiary pattern (%): 5, 5%

Histologic type: Adenocarcinoma   Variant histology present: No   Multifocality: Yes

Extraprostatic extension: Yes   Seminal vesicle invasion: No   Cancer at surgical margin:No  

Bladder neck involvement: No    Lymph-vascular invasion: No    Perineural invasion: Yes

Catheter removed Jan-19-10  Dry Nights 1 pad/day as of 2/4/10 Baseline PSA 2/3/10 <0.04

PSA 4/7/10 0.045

 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 4/13/2010 10:46 AM (GMT -6)   
Hi Larry,
Our stats are pretty close. (I'll inlce them here so you don'thave to look.
I'm using 1 cc U-100 syringe . The needle is 31 ga I think (I just measured it - 0.010" in diameter and 5/16 " long). I agree with you. The needle metal has a strange property. It grows to 10x its size when held in the user's hand ready to insert. :-)

I have the The BD Automatic Injector called "Inject-Ease" but it appears to be discontinued. I got it through Amazon .com. My wife is searching for you now.... You can get it through the Insulin Case shop Ambimed for $29.95. My wife found it at Insulincase.com Palco "Inject-Ease".

Happy Spearfishing.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23. Did I waste 6 months?
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.

Post Edited (Worried Guy) : 4/13/2010 1:28:41 PM (GMT-6)


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 4/13/2010 12:51 PM (GMT -6)   
Since you get to switch hands from left to right will that keep hair from growing in your palms? Sorry couldn't resist.

larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/13/2010 1:53 PM (GMT -6)   
Congratulations Larry, you took the plunge literally, glad its working.

Keep it up.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


larryandangieohio
Regular Member


Date Joined Jan 2010
Total Posts : 44
   Posted 4/13/2010 3:07 PM (GMT -6)   
Larry -- I've never had hair grow on the palms of my hands. You never see grass on the playground .... it gets worn off! lol I was going to say I had to use both hands, but I thought some might get the wrong impression. WINKS!

Thanks David ... I've been reading your post, glad you're back a doing a little better! Congrats on your new reading! Keep down the good work.

Dx Age:58  PSA 8/06 8.74,  10/09 7.46,  12/22 6.50 Needle Biopsy  11/10/09: 16/16 cores positive 2 - 85% of tissue

Gleason score 7 (3+4 with tertiary pattern 5). CT,Bone, and PET scans all negative.

Da Vinci laparoscopic prostatectomy performed on Jan. 07, 2010 at IU Simon Cancer Center…  Indianapolis, IN  Prostate size: 42 g Gleason score (primary + secondary):  4 + 3 = 7

Primary pattern (%):4, 60%  Secondary pattern (%): 3, 35%   Tertiary pattern (%): 5, 5%

Histologic type: Adenocarcinoma   Variant histology present: No   Multifocality: Yes

Extraprostatic extension: Yes   Seminal vesicle invasion: No   Cancer at surgical margin:No  

Bladder neck involvement: No    Lymph-vascular invasion: No    Perineural invasion: Yes

Catheter removed Jan-19-10  Dry Nights 1 pad/day as of 2/4/10 Baseline PSA 2/3/10 <0.04

PSA 4/7/10 0.045

 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 4/13/2010 3:28 PM (GMT -6)   
I agree, the first self-injection is scary. I opted to have my wife do my injections, and that solved the left/right side problem too.

A practise tip I have seen but never actually tried, is to use a piece of fruit held between your legs as the target -- something with a tough skin like an orange or banana. Then you can practise as much as you like without pain. If you inject with whiskey, you make a nice dessert too :-)
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 4/13/2010 5:35 PM (GMT -6)   
Hi Larry,

STOP,,, Run, don't walk to a drugstore and get an auto injector, you will be shocked at how much easier it is,, in all aspects
Stats:
Age: 52, PSA (2008)=1.9
Biopsy on 01/09/09, Gleason Score = 3+3
One (1) out of twelve (12) cores was positive, plus external nodule found
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Post Op Path 3+3
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, <0.01 - 3 months post-op
PSA 1/10 undetectable, <0.01 - 9 months post-op
Trimix provides 100% erectile function


larryandangieohio
Regular Member


Date Joined Jan 2010
Total Posts : 44
   Posted 4/13/2010 5:45 PM (GMT -6)   
Hi MrGimpy,
Worried guy said the same thing so I called the compound pharmacy about them. They told me that they have them for $24 BUT I have to buy new syringes that will fit into them! When I purchased the bimix (10ml) I also received 20 needles and 20 syringes ... I'd hate to pitch them! It really wasn't that bad of an ordeal I was trying to joke about it as I was writting the original post.


ThX Everyone

Dx Age:58  PSA 8/06 8.74,  10/09 7.46,  12/22 6.50 Needle Biopsy  11/10/09: 16/16 cores positive 2 - 85% of tissue

Gleason score 7 (3+4 with tertiary pattern 5). CT,Bone, and PET scans all negative.

Da Vinci laparoscopic prostatectomy performed on Jan. 07, 2010 at IU Simon Cancer Center…  Indianapolis, IN  Prostate size: 42 g Gleason score (primary + secondary):  4 + 3 = 7

Primary pattern (%):4, 60%  Secondary pattern (%): 3, 35%   Tertiary pattern (%): 5, 5%

Histologic type: Adenocarcinoma   Variant histology present: No   Multifocality: Yes

Extraprostatic extension: Yes   Seminal vesicle invasion: No   Cancer at surgical margin:No  

Bladder neck involvement: No    Lymph-vascular invasion: No    Perineural invasion: Yes

Catheter removed Jan-19-10  Dry Nights 1 pad/day as of 2/4/10 Baseline PSA 2/3/10 <0.04

PSA 4/7/10 0.045

 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 8:51 PM (GMT -6)
There are a total of 2,974,860 posts in 326,216 threads.
View Active Threads


Who's Online
This forum has 161310 registered members. Please welcome our newest member, ejt998.
378 Guest(s), 6 Registered Member(s) are currently online.  Details
mattamx, charles384, Cyclone-ISU, ChickenArise, straydog, BOB 46