March 5 prostatectomy

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reputo
Regular Member


Date Joined Apr 2010
Total Posts : 26
   Posted 4/13/2010 6:25 PM (GMT -6)   
I intended to choose radiation seed implants, but after the Zoladex injection (though my prostate was reduced in size) I no longer seemed able to empty my bladder completely. I changed to da Vinci Prostatectomy on the advice that (with this new urination issue) I was likely to be "on a catheter the rest of my life" due to the side effects of radiation.

Today, my penis (never something to brag about) seems to be an inch and a half shorter. If I stand to urinate, I'm likely to dribble on my hand and pants. Since the removal of the catheter, the flow is extremely slow and I get up 2 or 3 times in the night for a 3-minute-long pee. The night sweats have reduced enough that I am now able to sleep in the same bed as my wife, on a towel, but the hot flushes keep me awake from 1 to 4 AM unless I take zaleplon. The outpatient literature said it is good to have an erection 6 days after surgery, but due to the Zoladex I haven't been able to have one since Thanksgiving - five months.

How long do the effects of Zoladex last? Will I be on a catheter anyway in a few years?

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 4/13/2010 10:57 PM (GMT -6)   
Hi reputo, I'm not one of the medical heads here so I won't attempt to answer your questions ---- others will do a far better job than I. However, I do want to welcome you, while saying I'm sorry you need to be here.

One "medical" issue I can comment on is the lack of signature information --- see mine below. I do know that this site is a great place for support and advice and the sharp medical minds here --- I swear many of them know more about PCa than the average uro does --- wll be looking for a signature to help put your questions into a perspective. So, I encourage you to add one.

I'll be watching for your future posts and wish you well.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02  
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
Feel free to email me at:  sheldonprostate@yahoo.com    


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 4/14/2010 5:58 AM (GMT -6)   
Welcome, reputo.  This is a great forum to be on.
 
I can sympathise with the shorter penis and the problems peeing standing up.
 
When the rest of the guys log on, I am sure you will get answers to your questions about the effects of Zoladex.
 
Please keep us informed of your progress.
 
Skeener
Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 4/14/2010 7:15 AM (GMT -6)   
Hi reputo....yep U are correct with the little guy losing his stature! I theorize mine saw what happened to his rear end and went into hiding!!! Seriously though I hope your surgeon and his staff provided you with a program that will help you recover most of what you started out with as it's important to get the circulation back to the tissues that were disrupted during surgery. Henry Ford encourages a YEARS worth of .25 MG / daily of Viagra or some other ED medication (taken before bedtime). They also suggest other aids such as a penile pump to get blood back into the area.

74 years old
BPH for many years which steered me towards robotics rather then other methods.
PSA 6.7.......biopsy 2 of 12 positive and 3+4=7 Gleason. CT and bone scans negative.
Vattikutti DaVinci robotic prostatectomy @ Henry Ford February 10th 2010 all nerves spared.
Home the next afternoon with pubic catheter and minimal problems.
Pathology report = margins clear Gleason the same at 3+4=7
Five week PSA undetectable.
Two months after I wear a pad when out in public for lengths of time or doing some heavy work but nights and around home zero pads.

JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 4/14/2010 9:55 AM (GMT -6)   
Penis ? What is that anyway and where did it go? Actually it's been a bit (pun intented) short all my life and for that reason I always, when available, sit while peeing.

Saves dripping all over my 'blue suede' shoes.

Jerry.
.


reputo
Regular Member


Date Joined Apr 2010
Total Posts : 26
   Posted 4/14/2010 11:55 AM (GMT -6)   
Signature
Age: 57
Biopsy: June 2009. Gleason Score: 3+3.
RRP on May 5, 2010

Pathology: Unremarkable
First followup PSA scheduled: Apr 16
Next Urologist visit: Apr 22


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/14/2010 12:04 PM (GMT -6)   
reputo, I missed your first post, so let me Welcome you to HW here. Hope you can find us useful.. smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 4/14/2010 1:12 PM (GMT -6)   
Ah yes the topic of Penis...sss! Had a nurse who I'm sure had dealt with many over the years in urology exclaimed it thisaway! there are "SHOW-ERS" and there are "GROWERS". I too was at the end of the line when "they" were passed out but have always been a GROWER!

reputo
Regular Member


Date Joined Apr 2010
Total Posts : 26
   Posted 4/14/2010 2:02 PM (GMT -6)   
I can deal with the shrinkage, and there will be no growing while the Zoladex lasts, but I do wish I could pee. A friend had RRP and said that the good news is "you will pee like a 20-year-old", but so far no luck.
Age: 57
Biopsy: June 2009. Gleason Score: 3+3.
da Vinci RRP on May 5, 2010

Pathology: PC in center, margins clear
First followup PSA scheduled: Apr 16
Next Uro visit: Apr 22


Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 4/14/2010 3:01 PM (GMT -6)   
No urge to go is odd. Caffeine is murder and I love coffee so a couple of mugs and I can't get too far from the bathroom. Have noticed I can build up a pretty good accumulation while sitting / laying but up and abou gravity must get involved. Have you unconsciously cut WAY back on fluids. If you consume fluids they gotta come out somewhere.

74 years old - Vattikutti robotic prostatectomy 2/10/10 @ Henry Ford. Five weeks out PSA undetectable, no pads nights and mornings. Wear one when out on the town. So far so good as the margins were clean as were the various ducts, nerve bundles and lymph nodes spared.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 4/14/2010 3:48 PM (GMT -6)   
The side effects of Zolodex I can't attest to, but the rest of your issues sound pretty normal. I would say within 30 to 60 days you most likely will get your incontinence under better cntrol, and thhings will return to "normal" somewhat.

It took me 8 months to get off the pads. Kegals are an important part of getting bladder control, along with walking, and some say limiting caffeine, wine, and some acidic fruit juices.

There should be no reason you will end up on a catheter in a few years unless you have severe bladder neck problems, which we have a few giys dealing with now. Overall the incidence is fairly rare, and a high percentage of men regain full control of their bladder.

The ED is another issue that will remani to be seen.

Welcome to Healing Well, and good luck on your recovery. This is a great place to ask questions and have guys who have been there answer them.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01

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