Oh, BD, sounds like your cancer has spread outside the immediate area. Please note that you probably don't have testicular cancer but rather have prostate cancer that has spread to another organ. It's like breast cancer that spreads to the bones - it's still breast cancer but is called metastatic breast cancer. In answer to your question about whether or not your situation is unusual, the answer is sadly no. While most prostate cancers are caught in the early stages (while it is still confined to the prostate area), some like yours are found in the more advanced stages requiring multiple lines of treatment.
If the cancer has indeed spread to the bladder or genital area, you will probably need hormone therapy. Has your doctor addressed the need for an oncologist?
There are a few guys here who are very knowledgeable about advanced PCa. Hopefully one of them will chime in soon with sound advice for you.
Please stay with us - the information you gather now from here as well as other sources will help you make an informed decision.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!