Clevland Clinic

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seas1
New Member


Date Joined Apr 2010
Total Posts : 7
   Posted 4/16/2010 6:23 PM (GMT -6)   
Just wondering if anyone else had work done at Clev. Clinic? Went up there today and they are going to have my surgery done  next thurs instead of Wed. . So far, very impressed with the place.

Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 4/16/2010 8:32 PM (GMT -6)   
Found @ http://health.usnews.com/best-hospitals/rankings/urology

Cleveland Clinic places #2 after Johns Hopkins, Baltimore in the Best Urology Hospitals Listing.

#3 is listed as Mayo Clinic, Rochester, MN
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 4/17/2010 1:51 PM (GMT -6)   
I am a very satisfied Cleveland Clinic customer. I had Dr Kaouk. I am convinced that it was his skill and experience with the DaVinci that got me where I am. Many other doctors would have had positive margins I believe, and even if I'm wrong, I am very grateful to them.

With a Gleason 9, I needed every break I could get.

Good luck on that first gas and BM. Be sure you get it done there in the hospital. Not a pretty sight at home.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


male_sling_problems
Regular Member


Date Joined Nov 2009
Total Posts : 134
   Posted 4/17/2010 2:13 PM (GMT -6)   
Hello seas1

You are in expert hands at The Cleveland Clinic. I had open surgery surgery there in January 2000 with a Gleason 7. I remain cancer free to date.

Just last January I had a second surgery there. A pelvic reconstruction specialist removed a Coloplast Virtue sling that had been implanted at a local hospital without my consent five months earlier.

The Virtue sling caused continuous intolerable pain and made my incontinence much worse. Near the end of the removal surgery, I was implanted with an American Medical System AdVance sling. The results have been fantastic. I am now 100% dry at all times for the first time in ten years. The pain, that resulted from the Virtue sling trauma, is improving with time.

My biggest regret is failing to go to The Cleveland Clinic for my sling surgery last July. It would have sparred me from so much suffering and the worst medical experience of my life.

Best wishes to you,

John

Post Edited (male_sling_problems) : 4/17/2010 2:17:07 PM (GMT-6)


seas1
New Member


Date Joined Apr 2010
Total Posts : 7
   Posted 4/18/2010 7:49 PM (GMT -6)   
Thank you for the responces. Dr Stein will be doing the work this Thurs. They  sure seem to be extremly thorough on the pre surgey day. Thanks again folks.

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 4/19/2010 10:31 AM (GMT -6)   
sea1,

While I had my salvage prostatectomy at Sloan-Kettering, they referred me to Cleveland Clinic for reconstructive surgery. You can't go wrong with Cleveland Clinic. I had Dr. Angermeier for my surgeries, 1 reconstructive and 2 implants. He's in a class by himself.

Wigs
Diagnosed @ age 46 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
 
 

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