DJ - that was an interesting fix for that problem for sure, not the normal use of the drug, but if it works, it works.
The only reason I am having bladder spasms, is because of having a catheter in place. During the times of this journey when I was cath free, I never ever have even a single one.
The dr. said that the bladder senses the prescence of a "foreign" object in itself, and its trying to "help" by expelling the object by squeezing down on it. It's not natural to have something that large in the bladder. For most men, its a one to two week event, and the bladder gets over it quickly. Its not natural or normal to have one that is nearing the 7 month mark without interuption, and the SP type is more invasive to the bladder, as it actually enters through the side of a surgically produced hole in the bladder. At least with a foley, its following the natural path and direction of the urethra and then entering through the actual bottom of the bladder.
The ditropan I take, is a low level muscle relaxers, that is suppose to chill out the bladder walls to make them less likely to keep its attempt to expell the catheter, either I have grown immune to the med over time, not sure if you can or not, or else my bladder is one tough nut and just keeps trying.
The most common time for me to have a spasms, is if I have been lying down or sitting down for a long period of time, and then standing up and starting to walk, that is almost a guarantee to have one.
Sometimes turning on a faucet will trigger a spasms, its that mental connection about
needing to go to the bathroom and hearing water.
The only real cure and end to this physical hell, is to be catheter free. I dream of such a day, but until a better method can be thought of, I am in a true limbo or purgatory of this current world.
I have learned to adapt to what most men here would seem impossible. I read how much probably 90% of the men here that have had surgery feel about
their short catheter time. To many, its the worse part, and thats only for a week or so. Its really hard to imagine this day after day, month after month.
When this SP was put in on October 1 of last year, the longest I dared to think it would be in me, was either to late December of last year or worse case , Mid-January of this year. Here it is almost May, and there's no end in site.
Adjust and adapt, and endure. That is my strategy in the meantime.
Thanks for the sugestion, I will listen to anything at this point.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29