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RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 4/22/2010 6:39 PM (GMT -6)   
I want to apologize up front if I am out of line for making this post, but I just need to share this with others that have been where I am going.
I am 49 and have just received notice that my biopsy was positive.  I am gleason 6 and was told that I am T2A.  4 of 12 samples positive.
I was having problems with having to go to the bathroom several times a day. It is kind of embarrassing at work when I have to leave a meeting to go to the bathroom.  I was also waking up and going a couple of times during the night.  This is what sent me to a urologist last year.  He told me that my prostrate was small and put me on flowmax.  This worked until a couple of months ago when the problem started again.  I went to see my regular doctor for my yearly physical and was told that my prostrate was enlarged so I was sent to a different urologist who did a DRE and told me that not only was my prostrate enlarged, but it also had a knot on it.  Eventhough my PSA was just 1.6 from my physical he suggested we do a biopsy.  That is when we got the results stated above.
My wife and I are going to a consultation with the urologist tomorrow evening.  I have read so much on PC the last few days that I have already started to diagnose myself.  Just a little scared and confused.
 
Again my apologies if I wasting anyones time in reading this.
 
Rob

Buzzdriver
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 4/22/2010 6:50 PM (GMT -6)   
Hey, no apologies needed - we all started somewhere!
 
There are a lot of options - and this board is quite well-stocked with case histories that can both frighten and enlighten.
 
You have time to make an intelligent choice that is personal to you and to your partner.  Keep reading, keep studying, but keep calm as well. 
 
The group on this board is enormously helpful and sympathetic.  Keep us all posted on your progress.
 
Buzzdriver
57 Now
Age 54 at DX.  Gleason 6, PSA 4.2, a .78 rise in one year. 
 
Had High Dose rate brachytherapy at California Endocurie Therapy Center in Oakland, CA in February of '06.  Very successful - PSA came down quickly and steadily to current .08.  No problems.
 
Developed flow restriction in summer of '08 - had bladder neck resection in March of '09 - immediately incontinent, immediately in severe and constant pain, ultimately left job because I could not function because of pain and incontinence.
 
Started hyperbaric oxygen therapy (HBOT) three weeks ago - pain virtually gone, blood in urine down to "trace" levels, still pretty leaky.  HBOT has been a godsend with respect to reducing the pain! 
 
Considering sling procedure to get control of leakage. 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/22/2010 6:54 PM (GMT -6)   
Rob, welcome to HW Prostate Cancer. Please, no apologies, this is why we are here. We consider ourselves the best patient-to-patient web support group out there for prostate cancer. All of us had to make that "dreaded" first post.

You have a PC diagnosis now, and you certainly belong here and are most welcomed. We all have to start somewhere. While at 49 you are a bit on the young side for a dx, you are not the youngest by far. We have several brothers in their early to mid 40s.

The good news, is that you are a Gleason 6, with a fairly low PSA reading. It was good that it was diagnosed early, because of your other prostate problems.

You will find that you have loads of time to study your situation. You could be open to any of the regular primary treatment methods, including open or robotic surgeries, conventional radiation, seeding radiation, etc.

But more importantly, you may be a good candidate for Active Survelience (AS), use to be known as Watchful Waiting. Perhaps you can make a signature at the bottom of your posts, so that others can study your situation. Go to the Control Panel at the top of the screen for starters.

Feel at home here, come often , ask all the questions you want, no such thing as a stupid question. We have many fine brothers, and sisters that support their men, and others, that will make you feel at home.

Please keep us closely posted.

David in S.C.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14 out - 27 days, Cath #15 - 3/29


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 4/22/2010 6:55 PM (GMT -6)   
Rob
 
You've come to a caring place with a bunch of great people who have a wealth of first hand experience and knowledge. Please dont ever feel that you are wasting anyone's time.  We are all here to help each other through what can be scary and confusing time.
 
I know what you mean about all the reading and feeling like you are diagnosing yourself.  I was positive I was going to try one thing and then something I read made me change my mine and go in a different direction until I read something else that made me think differently.  It can be confusing and overwhelming.  Sometimes it felt like there was too much information and too many choices.
 
As others will say , you will know when you find the right treatment choice and doctor.  At you age and gleason score you seem to have a lot of choices.
 
Good luck and please don't hesitate to ask questions here or come here just to vent.  I was extremely nervous before my surgery and several guys here took the time to get me through it. 
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 4/22/2010 6:58 PM (GMT -6)   
Hi Rob,
 
Welcome to our corner of the world and sorry that you have to be here. All of us are scared, confused and overwhelmed when we first find out that we have the big C. Sounds to me like you've done everything right thus far and if your numbers hold true, have many options to attack the daemon sucessfully. Your PSA is unusually low, but a Gleason of 6 would indicate that you should have a very good outcome. Good luck tomorrow at the Uro's office. In one of the first 3 posts at this forum, you can find a list of questions to ask your Uro.
We have many very knowledgeable members here that are more than willing and able to answer most questions you may have down the road.
All the best to you and keep in touch.
  
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 4/22/2010 7:55 PM (GMT -6)   
Rob, I also would like to join the others in welcoming you to this community, and I hope you stay with us for the duration of your journey. Most of us remember vividly what you are feeling and going through right now. I will personally never forget it. I hope you have a productive consultation meeting with the urologist. Take some comfort in knowing that no decisions have to be made at this point. Take your time to decide what approach to take. Keep us in the loop.

Warm regards,

john
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
three months -> .03 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 4/22/2010 8:14 PM (GMT -6)   
Thank you all so very much for your heart felt welcome. It appears to be a God send that I found this forum. I do not know anyone personally that has gone through pc and I really appreciate the welcome here.

I made a signature as recommended but if it does not show up when I post I will go back and do it again.
Age: 49 PSA: 4/10 1.6
Biopsy: 4/10 - 4 of 12 Positive, Gleason 3+3, T2A


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 4/22/2010 8:30 PM (GMT -6)   
Rob,
no apologies needed, you are among brothers who share the same problem you are facing now. Your biopsy report is not alarming, you have a low Gleason and a low PSA. You have many options available to you starting with doing nothing (active surveillance) to surgery. You have a lot of time to educate yourself. There are a lot of books (Dr Walsh' book) you can get to learn about the pros and con of each option. Good luck, and keep us posted.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/22/2010 8:39 PM (GMT -6)   
Rob
- welcome to this group - it is a great place to learn, grow, rant and cry and get through this disease called Prostate Cancer.

Your stats sound like you should not be in a rush , so you and your wife can learn and ask questions, so you can find the right treatment for YOU and then the right doctor for YOU.

Make sure your wife/ partner comes along with a note pad to the urologist - to write stuff down ( you will forget most of it - just due to overload!) and to ask questions - EVEN the ones you think are stupid ...-> the only stupid question is the one not asked....

- and as the others have already said, no apologies needed, no I'm sorries required... it can be a scary ride ... but you have a good bunch of guys and gals that can help support you on this journey.....

hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 4/22/2010 8:42 PM (GMT -6)   
Welcome Rob,
Glad you found this forum and we are grateful to have newcomers, but not grateful that they have PCa. Hope that your consult goes well and keep us posted as you progress thru the process of exploring your options.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 4/22/2010 8:51 PM (GMT -6)   
Rob,
Sorry you have to be here. Now you need to get informed as possible so you can make the right decision for you. The 1st thing you need to do is get an accurrate staging of your PC. There are some questions and areas that need to be explained to you before you choose a treatment. The nodule felt is a problem. I would request an MRIS or a color doppler ultrasound to see if the nodule has penetrated the capsul and it's exact location. This will affect the treatment and its success.
4 out of 12 positive cores indicate a large tumor volume and this does not correlate with a very low psa and a Gleason 6. There are very specific formulas for how much psa a Gleason 6 generates with a prostate and tumor volume. The PCRI web site has tools you can download to calculate this. Your doctor must correlate your psa to your gleason grade and to your prostate volume and estimated tumor volume. If he cannot do this then get a doctor who can.
Make sure your doctor uses the partin tables and artificial neural networks before recommending a treatment.
I can only echo Dr Strum's mantra:
For a successful outcome:
1. Know the biology of your cancer. There are a lot of open questions as to the biology of your PC.
2. Choose the best treatment that matches the biology.
3. Choose the very best "artist" to perform the treatment.

I would get a 2nd opinion from a prostate oncologist, one who specializes in PC only. Most Urologists are not equiped to handle or stage unusual cases. Your initial Dx has some open questions that I don't think a urologist can answer.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 4/22/2010 8:55 PM (GMT -6)   
Rob: Good luck with the consult. Welcome to Hw. We are a group of friends that try to help each other in the PC. You numbers look good to keep us posted as to what you Uro tell you.

What part of TX are you in? You may want to put an e-mail in your signature.

We are here to help you through the questions and curiosities.

Cajun Jeff (from Lousiana)
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 4/22/2010 9:01 PM (GMT -6)   
Rob, I was 48 when diagnosed and had a lot of questions. I found this site and some hospital sites. I am in Houston. What part of Texas are you from? Feel free to send me and email. Click on the email button under the post.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 4/22/2010 9:16 PM (GMT -6)   
Rob welcome we are here to help you.I was 46 when pc hit me, my doctor told me oh you will be fine do not woried that was one of the darkest day of my life.Thanks God it has been five years and my psa is 0.04 now it is my turn to tell you you will be fine.god bless you. yeah
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 4/22/2010 9:48 PM (GMT -6)   
Rob,
One important step I forgot to mention is to send your biopsy slides to either Dr Epstien at Hopkins or Dr Botwich at botwich labs for a 2nd opinion. I would also request a polidy analysis. Your doctor can arrange to send them.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 4/22/2010 11:43 PM (GMT -6)   
Rob,

I am really glad you found us. I only discovered this site after the surgery. I wish I discovered it earlier - it would spare me a lot of confusion, stress and heartache.

You will have a lot of conflicting advice, tons of questions, run away emotions - bring it all here. The brothers and sisters here consider it our mission to make your journey a little easier.

And let me echo John T and others - get lots of opinions and tests. The more you know about your specific case, the easier it will be to make a right decision for YOU.

Wecome,

Greg
Father died from poorly differentiated PCa @ 78 - normal PSA and DRE
5 biopsies over 4 years negative while PSA going from 3.8 to 28
Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8
Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere + Avastin)
PSA prior to treatment 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60
RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins
PSA undetectable for 8 months, then 2/6/2009 0.10, 4/26/2009 0.17, 5/22/2009 0.20, 6/11/2009 0.27
ADT (ongoing, duration TBD): Lupron started 6/22/2009
Salvage IMRT to prostate bed and pelvis - 72gy over 40 treatments finished 10/21/2009
PSA 6/25/2009 0.1, T=516, 7/23/2009 <0.05, T<10, 10/21/2009 <0.05, T<10


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 4/23/2010 12:15 AM (GMT -6)   
Hi Rob,
Welcome to HW. You found a great site with tons of support.
You are feeling the same emotions that most of us felt. There's no need for apologies. We've all been there, brother.
This is probably hard to take but, "don't panic". You've got decent stats and have time to makes decisions and, maybe most important, get your body in shape. Whatever you decide to do is going to put stresses on your body. Start exercising now. Eat right. Do kegels to strengthen your pelvic floor. Knock off that extra weight. Finally, use this time to empty your prostate as often as possible.
Believe me you will be glad you did.
Good luck to you.
Jeff (NY)
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23. Did I waste 6 months?
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05.


Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 4/23/2010 4:38 AM (GMT -6)   
Rob,

Welcome! This is a great place to learn about your options. Best of luck and keep us posted on your progress!
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
 
 


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 4/23/2010 6:16 AM (GMT -6)   
Rob, sorry to hear about your diagnosis but you've come to a great place to learn and share. As the wife of a PCa man, I tend to look at the situation from a different perspective but, believe me, everyone here (including me) has been where you and your wife are now.

The good news: biopsy says you're a Gleason 6 and that is, I believe, the lowest Gleason score assigned. So, lets see that as a positive.

Believe it or not, now comes the hard part: deciding what, if anything, to do about your disease. That is where learning and research comes in. After the consultation you and your wife have with a urologist tonight, you will know a bit more. Urologists tend to lean towards surgery but I would suggest meeting with a radiation oncologist as well just to learn about other options.

There are many other more experienced members here who will help guide you through this next phase. Take heart and don't panic (I know, easier said than done). Try not to make any rash decisions until you are comfortable that you know what you need to know to make an informed decision.

Good luck tonight.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


rhb47
Regular Member


Date Joined Mar 2010
Total Posts : 208
   Posted 4/23/2010 8:08 AM (GMT -6)   
Hi Rob,
My husband was diagnosed 5 weeks ago and I have to tell you that this forum has made a huge difference in our view of things. The insights of people who have gone thru this are really helpful and within a short time you will feel as if these folks are your friends. Nobody wished to get this disease, but stay positive and study up on all your options. The more you learn the less afraid you will be and the more impowered you'll become.

Renee
Husband diagnosed 3/10
Age 56, PSA 4.7, free 7.6%
Biopsy 5 of 10 cores positve-all right side-25% to 57%
Gleason 6
Appointment with Dr. Patel, Global Robotics May 26,10
 
 


RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 4/23/2010 8:23 AM (GMT -6)   
Ladies and Gentlemen,
I really appreciate your taking the time to send me your advice and encouragement. My wife made me get off of the computer last night around 11 and go to bed. Sleep did not go well as I have so much on my mind. Funny thing is that I am real concerned about how this is going to affect my studies. Besides working full time I am also a full time student working on my MBA. I am half way through and planned to graduate next May. I did not want to tell my manager at work about my diagnosis as I feared that my company would stop their reimbursement of my education. Fearing that they would somehow consider me not worth the investment if I have pc. My wife convinced me to inform him that I have this diagnosis as it would not be fair to the company to suddenly surprise them if I suddenly had to take a couple of weeks off work. My manager said that he was sorry to hear about it and to keep him apprised of the situation. I left his office thinking I should have kept my mouth shut.

Have any of you experienced negative backlash from your employers for having this disease?
Age: 49 PSA: 4/10 1.6
Biopsy: 4/10 - 4 of 12 Positive, Gleason 3+3, T2A


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/23/2010 10:45 AM (GMT -6)   
Rob, welcome to the Forum. Stick around and ask as many questions as often as you need to , we're all a bunch of know it all's and love to prove it... smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 4/23/2010 2:49 PM (GMT -6)   

Rob

Welcome to the forum.  There are so many people here and they are so supportive.

Getting your head around having PCa can be awfully difficult.  I can attest to that!!

Studying for your MBA could be one of the best things to happen to you right now.  Newly diagnosed with PCa, for the first while you are probably going to focus on the illness way too much and in a negative way.  It will be very good for you to have the MBA to study for.  Hopefully, these studies will require so much focus that you will think less about your new diagnosis.

Also, if your company thought highly enough of you to reimburse your MBA expenses, having PCa is not going to change that one iota.

Please let us know how your PCa journey progesses.  We look forward to next May when you sign your postings with RobnTexas MBA!! 

Skeener


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      

Post Edited (skeener) : 4/23/2010 9:24:08 PM (GMT-6)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 4/23/2010 6:47 PM (GMT -6)   
Rob,
Everyone handles this issue differently. I preferred to keep it a secret and still do. My coworkers do not know anything about this situation. They thought I was traveling for the two weeks. In the rare occasion when I have to say something (like if I am next to somebody at the urinals and can't hide) I say I had minor surgery on my water works and just leave it at that. Urethral stricture. Nobody asks.
They do not know I am walking around with pee pads in my pants and PSA anxiety in my head. Also any of the ladies who care to notice such things must think I had enhancement surgery on my package. That thought makes me smile.
I found that by not telling coworkers I am forced to keep active and sharp since they will not cut me any slack.
Jeff
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