New Emergency - Meet Catheter #16

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 9:26 AM (GMT -6)   
Another painful emergency.  Shortly after my wife left for work early, I discovered I was fully blocked again  (SP Catheter), second time since Sunday morning.  Instead of bothering her, I thought,  I will irragate it myself, as I watched her do it before.  Big mistake, unknown to me, this was a hard blockage.  When I tried to inject the sterile water down the cath, it hit a  major obstruction, and then it forced all this gunk/blood right out my penis.  I tried  a second attempt ,put me in the pain zone, and now, the cath was blocked, and the bladder neck was gunked up.  Put a call to my wife to come home to help me, but couldnt reach her.
 
Threw some clothes on, drove to the uro's sattellite office, just about 3 blocks away.  Even though only one dr. on duty, and a busy waiting room, they had me in a room within 10 mins.  With all my episodes, I am known by face.  The nurse called my Dr. at his main office for advice, he said, if you can't irragate it on the first pass, then replace the cath.  (he was going to be doing that Monday anyway).
 
This uro is much younger, partner of my dr, never had dealings with him before.  But thank goodness, the nurse knows me well, and helped  the dr.  There was no irragation attempt, too much gunk.  So they swapped out #15 for #16.  I was scared and in a lot of pain to start with.  This time, the long painful part was removing the old one, it kept sticking from gunk, took the two of them 3 attempts to get it out.  Since I didnt have anyone to drive me, they couldn't drug me or sedate me  first.
 
With the nurse holding one hand, and my other arm on the doctor's shoulder, he got me into some deep shallow breathing while they inserted the new catheter.  It was still a full "10" on the pain scale, but going in only took 1/3rd  the time of getting the old one out.
 
After the new one was inflated, he flushed out my bladder 3x to get any more gunk that was accumulating, so that it wouldnt start to mess up the new cath.  They were very kind, and helped me lift back vertical, something hard to do after having all that pain.
 
Now I wont have to worry about waiting till Monday to get a swap, its done, but will still meet with my uro to strategize about what is next.  My wife has a fresh irragation kit just incase.
 
Back home, alone at the moment, still hurting, but slowly subsiding.  It was another painful emergency situation, but once again my local uro's team came through for me.  I am thankful for that part.
 
Perhaps the rest of Friday won't be so dramatic for me.
 
David in SC


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in

Post Edited (Purgatory) : 4/23/2010 9:44:20 AM (GMT-6)


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 4/23/2010 9:50 AM (GMT -6)   
SOrry to read this. Is all this gunk caused stuff breaking loose from radiation in the past?

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 4/23/2010 10:08 AM (GMT -6)   
OUCH....I would say I can feel your pain - but considering where the pain is - I better not scool
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 10:46 AM (GMT -6)   
larry, they still believe that all the gunk, debris, and blood is still the result of post radiation damage, but that ended almost 5 months ago.

thanks steve, it hurts the way one would expect with a hole come from below your navel, these swaps never get easier, thats for sure
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/23/2010 10:47 AM (GMT -6)   
David-------{David} poor guy.. cry
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 10:57 AM (GMT -6)   
No end to this, James, you can see why I am starting to really believe this. Told the new young dr today, that during the past 7 months, which includes all this SP cath time and the 2 months of radiation, haven't had a single day go by where I wasn't dealing with some serious pain issues during the day or night. My purgatory name is really starting to be a suitable choice, even though I have used it for years before ever having PC, it is like being stuck in some kind of limbo.

He said the same thing, even if some other surgical approach was used to rid the problem, no surgeon is going to want to touch me until I can be at least healed from the collateral radiation damage, that it would be too risky and problematic to do any complex resconstructive type surgery at this time.

I told him, I am no better off now, then I was a month ago, or even 2 or 3 months ago. I don't see any improvement where it all hurts.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 4/23/2010 11:05 AM (GMT -6)   
Hope this one lasts......be well

Swim
 Hilarem datorum diligit Deus


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 11:47 AM (GMT -6)   
Swim, good old #16 is going to have to last till late May, when my situation will be re-assesed again. Still have a lot to talk over with my uro on Monday.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 4/23/2010 11:52 AM (GMT -6)   
David,
Just back from treatment 2, and another "accident".
Only thing I can complain about is wet jeans.
You seem to be catching it all these days. Trust me, I feel for you.

I pulled out Pink Floyd Welcome to the Machine last night. Will be my theme song for a while.

Hang in there.

RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 4/23/2010 11:58 AM (GMT -6)   
Best to you that this improves your situation and leads to a speedy recovery.
Age: 49 PSA: 4/10 1.6
Biopsy: 4/10 - 4 of 12 Positive, Gleason 3+3, T2A


Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 4/23/2010 12:06 PM (GMT -6)   
Ouch!!! Hang in there and maybe this one wll stay open.
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
 
 


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 4/23/2010 1:18 PM (GMT -6)   
David - so so sorry to hear of your latest trauma - we are hoping and praying and wishing ( all toes and fingers crossed) that things will turn around for you...


sincere hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 2:28 PM (GMT -6)   
142 - now you see why I only wear black pants.

thanks texas, and maine. only cath 15 has closed, never had that problem with any of the others. for some reason, from the time it was put in, it was problematic for me and caused me more pain then any of the others. maine, where are you from in maine? i am formerly from NH and been all over ME

bronson, i would take that hug for real, so very sick of the truama and pain ,sure didnt need a new episode. if i didn't know that all my journey was true and factual, I would almost think it was made up. but i only report what really has happened on this painful and twisted PC journey. i wish it would end, and let me enjoy some day to day living without the pain and another catheter. thanks for your care.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 4/23/2010 3:17 PM (GMT -6)   
David
 
I can feel your pain all the way across the border into Canada.
 
If ever the slogan "you deserve a break today" applied to anyone, it sure applies to you.
 
Hope you get continuing relief soon!
 
Skeener
Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 3:25 PM (GMT -6)   
thank you, skeener.
________________________

Late afternoon update. My youngest came by and chauffered his dad all around for his local errands, including getting some meds refilled, that was a big help. Still very sore from this morning, only in the last hour did I break down and take some presecription pain meds.

The new cath, seems (fingers crossed) settling in better than the last one. The last one hurt for days after insertion, felt like it was always poking the wall of the bladder, and caused the highest amount of spasms of any of them, more bleeding than the rest, etc. The flow seems good so far, starting to come out real clear looking for a change. Hope I can have a peaceful and pain free evening.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 4/23/2010 4:18 PM (GMT -6)   

David:

 

I'm at a loss for words. I hope you find a solution soon.

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 4:27 PM (GMT -6)   
Mel, I sure know how to have a good day, don't I? This morning's blockage was the last thing on my mind when I opened my eyes this morning. The nurse thought that since both blockages with the same SP cath were upon waking, that perhaps lying in the same position most of the night allowed a lot of gunk, blood, and debris to build up and clog the tiny opening on the cath's input point. Kind of makes sense to me. With my bladder being smaller post surgery, and being dulled by taking ditropan on and off for over a year now, my poor bladder doesnt have a chance on its own, and then you have to factor in whatever damage was done to it during radiation. Its still a tough painful fight at times, but I refuse to let it beat me, though each new "event" makes me more gun shy than the one before it.

It's got to get better, right?
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


rhb47
Regular Member


Date Joined Mar 2010
Total Posts : 208
   Posted 4/23/2010 4:48 PM (GMT -6)   
Hi David,

Just wanted to let you know I'm sending positive thoughts your way. Hope this is the last painful experience you have to go thru.

Renee
Husband diagnosed 3/10
Age 56, PSA 4.7, free 7.6%
Biopsy 5 of 10 cores positve-all right side-25% to 57%
Gleason 6
Appointment with Dr. Patel, Global Robotics May 26,10
 
 


6071
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 4/23/2010 5:11 PM (GMT -6)   
hi dave
sorry to hear of your latest trauma I can feel your pain
and i hope it gets better for you soon
Age 61 at DX
Biopsy 7/2008 Positive 1 of 12 cores positive 3+4 5% To 10%
Open Radical Prostatectomy 15/10/2008
Stage pt2c
Post op staging Gleason's Score 3+4=7
apical margin is focally positive
no extraprostatic extension
Seminal vesicles and lymph nodes clear
Catheter out on the 13/11/2008
4 week PSA < 0.1
26/1/2009  < 0.1
20/4/2009 < 0.1
11/6/2009 ultra sensitive psa 0.07
20/7/2009 < 0.1
26/8/09 Starting photon 3D CRT
13/10/09 Radiation Finished
25/11/09 ultra sensitive psa < 0.05
 







Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 5:23 PM (GMT -6)   
Thank you Renee and 6071, hoping for a peaceful night after a rough day
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 4/23/2010 5:38 PM (GMT -6)   
I don't post much but have PC. Still debating treatment but want you to know I'm praying for you.
You've had a hard road to follow but I greatly admire your strength in traveling it.
I hope I have half your courage.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/23/2010 5:50 PM (GMT -6)   
Ray, thanks. Please post more about your situation, your stats at this point, and see if we can figure out where you are at this point in your own journey. We would all be interested to know you better. In all my study of PC before I was diagnosed, and after the diagnosis, there was no part of me that would have thought that I would be going through all that I have. Some guys breeze right through their surgeries, dont even need pain meds. Some go dry right out of the box so to speak, a few lucky ones don't deal with ED issues (I am luck in that dept, but unfortantely, my other issue puts a serious damper on using what I have, lol). If someone told me ahead of time, that 18 months after my open Surgery, that I would be on my 16th catheter, I would say, "No way possible". But that is the card I drew from the deck.

What are some of your thoughts on treatment thus far? Its always important here, to remember, that regardless of your stats, don't let anyone (doctors included) rail road you into making an instant treatment choice. You will have time to think through it all, before you make any decisions. All PC primary treatments come with a price, either on the front end, i.e. with surgery, or on the back end, i.e. some of the radiation choices, and there is virtually no free ride. Its also important to remember there is no "easy" button, or "re-do", so study hard, think long, and choose wisely. Thats' all any of can do when push comes to shove.

Good luck to you, and again, tell us more about you and your situation.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 4/23/2010 6:39 PM (GMT -6)   
David, I've added a signature with current stats. As far as other stuff I'm freaking out. Not as much about the PC as the stress from having to deal with this and make a decision. I don't have insurance so paying for this is a concern. Urologist said all treatments are about the same cost. Wish this had held off until I got on Medicare. I've got a friend who chose IMRT as a first treatment and he breezed through it and his PSA is undetectable after 6 months so leaning in that direction if I can negotiate the cost to a level I can pay. If not I have no idea what to do.
Age 63
Frequent urination for 10 years but never saw a doctor.
01/26/10 talked to doctor who did blood work...PSA9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 4/23/2010 7:16 PM (GMT -6)   
Oh David... And I complain about pee pads and wet undies. I should be ashamed...
Good luck to you,
Jeff

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 4/23/2010 7:26 PM (GMT -6)   
Dave, very sorry to hear about your continuing problems. You got be believe that there is light at the end of the tunnel. Hope #16 is the last. Frank
Dx with PC Dec 2008 at 56, PSA 3.4, Biopsy: T1c, Geason 7 (3+4)

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Junl 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31

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