erectile dysfunction options

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laxacharlie
New Member


Date Joined Apr 2010
Total Posts : 16
   Posted 4/24/2010 2:34 PM (GMT -6)   
I am new to board, seems like a great place to share info! Had RARP procedure 4/12 and catheter out 4/22. So far my continence not too much of an issue, other than some rather significant burning on urination. My question: when to start getting serious about ED issues, and is use of pump along with drug treatment a good way to go? How long after saying so long to the catheter do most begin ED work? I do have faith in my Urologist, but find that advice from fellow travelers is very helpful. Thanks!

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/24/2010 2:46 PM (GMT -6)   
Charlie, welcome to the Forum. Most guys begin to start ED recovery as soon as the catheter is out. By that I mean, we usually begin trying the big 3 ed pills, in what is called a maintaince dose, 3 days a week, normally a quarter doses -25mg of a 100 mg pill of Viagra, just to improve blood circulation and infusion in the area. I suppose the "average" guy will begin using a VED- pump at about 6 to 8 weeks, and if no response from the pills or pump will move on to the pricks at 3 months or after. Pricks being penile injections of alprostadil, trimix or bimix solutions. In my opinion the pump should be used as long as you have ed, to maintain blood infusion, tissue stretching and cavity extension, even if it's a year or two later. There's loads of threads here dealing with ED recovery. Here's a link to some of the recent ones:

www.healingwell.com/community/default.aspx?f=35&m=1620929

Hope this is helpful and I am sure others will come along and correct me if they do it different.. smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/24/2010 3:02 PM (GMT -6)   
lax, welcome here.

on the painful burning part, ask your dr. for pyridium. its a cheap generic drug, generally will take all the pain and burn out of your urine. becarfull if you use it, as it turns your pee bright orange, and it will stain what it touches. some claime it can tint your contact lenses if you wear them. the drug works well, though, and easy to find.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 4/25/2010 7:53 AM (GMT -6)   
Seems odd your doctor hasn't addressed the issue with you AND your partner!!!
Henry Ford offers a class on the very issue about a week after one's surgery. Pills, a pump, Muse (penile suppository), and shots are explained with a couple of Muse samples. Personally doing 25MG Viagra / nightly (purchased to Canada drugs). A years supply was $238.00. Many of the younger guys in my class went for the shots which I understand work well and are demonstrated in the doctors clinic.

Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 4/25/2010 10:36 AM (GMT -6)   
What has the advice been which you've received from your Urologist?

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample (Gleason's 3+3=6)

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci; Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL; Dr. Robert Nadler, Urologist/Surgeon

Post-Op Gleason's:  3+3, Tertiary 4; Margins:  Free ; Bladder & Urethral:  Free

Seminal vesicles:  Not involved; Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%; Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1 light (woman's style) pad per day)

ED: Combination of Cialis and MUSE (alprostadil) once weekly: started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0; 3/10: 0.0

 


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 4/25/2010 12:30 PM (GMT -6)   
Hi Charlie,

Every patient is different BUT I am surprised your Uro did not go over this in depth. Mine had me start seeing a ED specific Dr and from the weeks leading up to my surgery He had me on a plan, so I knew once the catheter came out the tings I needed to do and then followed up with him every 6 weeks or so to go over my ED resolution

Check back with your URO and see if there is ED specialist in his practice, most large hospitals have an ED specialist on staff

Note: ED recovery begins BEFORE surgery, mine had me taking viagra 50mg daily 1 week leading up to my surgery, pump also, I ordered it and had it ready to go and became comfortable with how to use it BEFORE surgery
Stats:
Age: 52, PSA (2008)=1.9
Biopsy on 01/09/09, Gleason Score = 3+3
One (1) out of twelve (12) cores was positive, plus external nodule found
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Post Op Path 3+3
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, <0.01 - 3 months post-op
PSA 1/10 undetectable, <0.01 - 9 months post-op
Trimix provides 100% erectile function


laxacharlie
New Member


Date Joined Apr 2010
Total Posts : 16
   Posted 4/27/2010 3:30 PM (GMT -6)   
My doc did cover this in detail, and has suggested I begin erectile rehab after 6 weeks, I am curioous if any have started with viagra/cialis etc. prior to that time. It appears that many have. Thanks!
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