Just got the Advance Sling

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GPops
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 4/25/2010 9:28 AM (GMT -6)   
Hello. This is my first time posting to this forum though I have been lurking for a while. I have recently had an advance sling put in and I would like to share the experiences I've had since undergoing an RRP in Sept 2005 , what led to my decision to have the sling put in and how things are going to-date. First of all, I want to apologize for not having all the details of my DX to share with you but I will make it a point to get them on my next visit to my uro. I was first diagnosed in 2005 and had it confirmed by Roswell Park Cancer Institute and Johns Hopkins. I wanted to be sure. Although WW was offered as an option I chose the surgery. Who knows if that was the best decision! At any rate, the surgery went well and recuperation was as uneventful as it could be. Although there was partial nerve sparing Ed has been a problem, but that's another story. You all know how that is. The incontinence is the issue here. I was a Letter Carrier at the time, walking the beat, and somehow I thought that that exercise would work in my favor in overcoming incontinence. Not so! While I was working I was going through 3-4 pads a day. I was using the heavy duty Depends Guards. I retired shortly shortly thereafter and I faithfully did my Kegels. At times I saw improvement, was able to go down to using lighter feminine pads but then it would worsen again. I went through Pelvic Floor rehab and Biofeedback training(some fun!) but nothing seemed to help. I was back to 2 or 3 Depends a day again. Although, when you think about it , in the grand scheme of things, this is not the worst that can happen to anyone but I was getting tired of it! Always making sure I had an extra pad in my back pocket in case of emergency, worrying about leaking at the worst possible time and the possibility of odor. Although I am widowed, I do have a very understanding girl friend and that is another consideration. ED limits our activities but not our intimacy. Lying down does give me a lot of control but any sudden movement causes the dreaded leak! So I have to wear a pad when I'm with her and that bothered the hell out of me. So I started to investigate the sling that I had read about. I figured that if there was any way out of this there was no reason I should put up with this any longer. I went through the testing and my URO recommended a surgeon who had much success with the Advance sling. I had the surgery April 1st (how's that for optimism!) and let me tell you I don't know why I waited so long! So far I am completely dry. That's the good news. Great news! That's not to say it's a piece of cake. There's quite a bit of post-op pain involved. The recuperation is not that easy, but with the help of pain meds it's endurable. It's much better now and I'm sure that in a week or two it will be completely gone. As far as peeing is concerned, there's a learning curve that I'm going through. Right now, and this might change, I have a hard time going when I get up in the morning for some reason. That's when you know you have to go but I just can't seem to get it going more than a few drops either sitting down or standing up. I have to put up with the discomfort till I've moved around a bit and then I'm able to go. I find it a little more difficult to empty my bladder to the point that I feel I am completely done. At times I have to muscle it out! But other than that I have complete control all day, don't wear any pads and am happy. I see my surgeon Wednesday for what I think will be my final post-op and I'll discuss these points with him. I'll let you know how things are then. I hope this is or will be helpful to some of you.

Regards and good luck to you all,

Frank
71 YO, RRP 9/2005


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 4/25/2010 9:45 AM (GMT -6)   

Welcome to the forum.

Thanks for sharing!!

Skeener

 


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 11/10 - 0.0.
 
Next PSA May
Next doctor's visit in 6 months      


Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 4/25/2010 5:13 PM (GMT -6)   
Thanks you for sharing that story. I'm sure several people on this forum will benefit from it. I am glad that it's working for you
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
 
 


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 4/25/2010 6:37 PM (GMT -6)   
Best of luck on staying dry. Your post is going to be very informative to many on healing well.
Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/26/2010 1:03 PM (GMT -6)   
Frank, welcome and thanks for sharing your story with us. Keep us updated on your journey as you travel along.. smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 4/26/2010 1:58 PM (GMT -6)   
Frank,

I just returned from my Urologist and although it has only been 7 months since my robotic surgery, I discussed the sling with him. He told me I was getting way ahead of myself. I like the rest of the group, hate being wet. Thanks for your story and keep us informed as to you progress.

Len
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09 <0.1
2nd post op PSA:  1/25/10 <0.1
3rd post op PSA  4/19/10 <0.1
As of 4/26/10 Still Wet 3 pads per 24 hr. period


male_sling_problems
Regular Member


Date Joined Nov 2009
Total Posts : 134
   Posted 4/26/2010 3:25 PM (GMT -6)   
Hello Frank,

I was pleased to learn that your AdVance sling is working so well for you.

I was implanted with a Coloplast Virtue sling last July without my consent. I had consented to an AdVance or a sling of the AdVance design.

The Virtue sling made my incontinence MUCH worse and the pelvic pain was continuous and absolutely intolerable. Narcotic pain killers were of little help. Neither was my surgeon or Coloplast.

I was finally able to have the Virtue sling surgically removed during a 3 1/2 hour surgery by a pelvic reconstruction specialist at The Cleveland Clinic last December. Near the completion of the removal surgery, the surgeon implanted an AdVance sling.

The results have been nothing short of fantastic! I am 100% dry for the first time in 10 years. My urinating is almost natural and the numbness and pain, which I suspect is nerve damage from the Virtue sling trauma, is slowly improving.

My suggestion, to those that are considering sling surgery, is do your research. Then choose your device and surgeon very carefully.

Best regards,

John

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/26/2010 3:57 PM (GMT -6)   
Frank, thanks for joining.

Your sling story is full of good details, will be useful to anyone considering this route. I wish you well with this, and hopefully as you heal, the pain factor will be a thing of the past.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 419
   Posted 4/27/2010 7:44 PM (GMT -6)   
Frank,
Nice to hear your story and results. We all learn a little each time someone shares their experience. My sling surgery did not prove to be successful but I have some comments that may be useful. The first couple of weeks I was pretty dry and I also had a little trouble going first thing in the am. For some reason everything seems to slow down when sleeping and laying motionless. As time went on (I am now 12 weeks post sling surgery) I found that going was much easier and did not have to force with muscles to get it out. I suspect that the swelling from surgery had something to do with this....things are a bit crowded from the swelling and I think that may influence things a bit. Perhaps you will also find that to be true if you still have some swelling.
Even though I am now about back to where I started using 2-4 pads a day I still find that when I get up occasionally during the night I may have to push a bit to empty completely. This is again where I get the "opinion" that the sleeping non activity influences how the "flow goes".
Keep us updated on your progress. Perhaps consider posting a weekly progress report. I did that and it seems to have been useful to some of the guys considering sling surgery.
Good luck and it appears you are headed for success.
64  year old male in excellent physical condition.
PSA jumped  3 to 8 in one year
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP,  7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Largest tumor nodule: 1.3 cm. All margins negative.
Incontinence & ED. Dry nights , no control during day.
Imipramin and detrol, Phy ther. and kegals no help.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Incontinence symp. index severeity score=22
Rec. for sling surgery. Dr. does mostly InVance.
Researched and decided on either AdVance or Virtue.
Virtue sling surgery 2/3/10 NYU med center by Dr. Victor Nitti
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day, stopped drugs, plan for AUS next winter.
Latest PSA 4/1/10negative.
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 4/27/2010 9:28 PM (GMT -6)   
Thanks for sharing your story Frank. It took me 5 months to stop using pads although I still have an occasional drop under stress when I play golf.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


GPops
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 5/7/2010 6:04 PM (GMT -6)   
Sorry it took me so long to get back to get back to you guys. First the good news... so far I'm completely dry. I'm a big boy now, no more diapers! Not to be too crude, but it's nice to be free and loose again, (you know what I mean?) I'm optimistic that it will last. Peeing is almost normal. The stream isn't as strong as normal but not bad at all. It kind of reminds me of what it was like before the initial prostate surgery! I'm able to control myself completely when I have an apparently full bladder and a strong urge until I can get to the john. I'm about 90% through my recuperation now I think. The discomfort is just about gone. For the sake of any of you who are thinking of having the sling put in or if you have had it done recently , I'd like to tell you my experience so you'll have an idea what to expect. The surgery was at 7am , general anesthesia. I was out of recovery later that morning, not sure what time with a catheter in place, feeling groggy but not too bad. Pain meds! The Dr. said everything went well and I could go home after they took the catheter out and I was able to pee on my own. Otherwise I would have to have the catheter put back in for a while!Here's where you want to be careful! Later that afternoon the catheter came out and I waited. I wasn't able to pee for awhile and I was getting anxious. I really wanted to get home. I finally was able to coax a little out and convince myself and the nurse that things were starting to work. I really think she was relieved. She was a young nurse and I have a feeling she wasn't too anxious too put the catheter back in. So she took my word for it and I went home. To make a long story short, I had to call my doctor at 8pm because I had not peed at all and it was VERY painful. Sitting down, standing up, water running, even sitting in a warm bath...nothing helped. I was told to go to the ER or a local Ambulatory care center. I chose the Ambulatory Care center because I could imagine what the ER would be like at 9pm on a Friday night! My doctor called ahead and the good people there took me right away and put another catheter in. about 1200cc's later you can't imagine how good it felt. I love catheters. So this was Friday and I went back to the doctor Tuesday. They took the catheter out and filled my bladder with saline( I guess) to see if I was able to pass it ok. It wasn't easy but I was able to do it. The moral of this story is, don't be in too much of a rush! Make sure everything is working before you leave the hospital. That was painful and scary!
Listen guys, I'm terrible at composing these things and it's taken me a while. I'd like to pass on what this last month has been like as far as what the progress was, and I will on my next post. I hope this has been interesting and helpful to someone. I'll talk to you next time but now I have to go see my girlfriend! ( I'd like to talk to some of you about the cursed ED!)

Best of luck to you all!

Frank
71 YO, RRP 9/2005


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 5/7/2010 9:00 PM (GMT -6)   
Gpops, You did a great job letting us know of the issues of not being able to go and rushing out of the hospital before we should.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 5/8/2010 9:59 PM (GMT -6)   
Frank,
Welcome to the crew. I am watching the various sling posts, as I am 6 moths post-DaVinci, and not as close to dry as I would hope to be. Not even close to an evaluation, much less a decision, but posts like yours are of great help.

male_sling_problems
Regular Member


Date Joined Nov 2009
Total Posts : 134
   Posted 5/10/2010 7:39 PM (GMT -6)   
Hello Frank,

It's good news that you are getting along so well with the AdVance sling. Another week will make 6 months since my AdVance sling implant and I continue to be bone dry for the first time in ten years.

Prior to the Advance sling, I was implanted with a Virtue sling. It was a horrible experience and I was the happiest person on Earth when it was removed last December.

Since my horrible experience with the Virtue sling, I have periodically checked FDA's MAUDE Reports to learn how it is fairing as a newcomer to the sling market. The following are incidences requiring intervention. You can go to the MAUDE website and click on each listing for details of the problems encountered.

27 records meeting your search criteria returned - Brand Name: Virtue

Report Date From: 01/01/2009 Report Date To: 09/10/2010

Manufacturer Brand Name Date Report Received
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 02/08/2010
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 02/08/2010
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 01/07/2010
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/29/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/07/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/07/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/01/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/01/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/01/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/01/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 12/01/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 09/14/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 09/08/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 09/03/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 09/03/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 08/28/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 08/20/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 08/20/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 08/19/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 08/19/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 07/21/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 07/21/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 06/30/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 06/02/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 06/02/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 04/06/2009
COLOPLAST MANUFACTUR VIRTUE VENTRAL URETH 04/01/2009

The above is a good reason to research thoroughly and pick your device and surgeon very carefully prior to sling or any other surgery.

Best regards,

John

Post Edited (male_sling_problems) : 5/10/2010 8:12:08 PM (GMT-6)


GPops
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 5/11/2010 10:02 AM (GMT -6)   
John,

Your post was very encouraging. Things are going great for me now but the fear in the back of my mind is "will it last?". Some of the guys here report that after a few months they are back to where they started! You helped put my mind at ease. Thanks

Continued Good Luck

Frank
71 YO, RRP 9/2005


male_sling_problems
Regular Member


Date Joined Nov 2009
Total Posts : 134
   Posted 5/11/2010 11:38 AM (GMT -6)   
Hello Frank,

My family doctor warned me to wait at least six months, for the swelling to go down, before I get my hopes too high.

It is now six months, post AdVance sling implant. I can cough, sneeze, blow up balloons, lift heavy objects and jump up and down without spilling a single drop! I was having mild problems with "urge" incontinence (aka leakage from delaying urinating when necessary) but that has improved significantly.

It is great to be dry again after 10 years of wearing pads. My hat is off to American Medical System for their AdVance sling.

Best regards,

John Lautzenhiser

GPops
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 5/11/2010 4:16 PM (GMT -6)   
John,

I'm just hitting 6 weeks so I hope I'm not getting my hopes up too high. I hope someday soon to be confident enough to get rid of the supply of pads I built up! Still waiting for the discomfort to go down although there has been a lot of progress there. You're right! It is great to be dry. You take something so fundamental for granted until it's gone. Right now I'm almost giddy with joy. With time , I know the novelty will pass but I know I won't take it for granted again.

Keep me up to date on how you're doing, as will I.

Good luck Brother

Frank
71 YO, RRP 9/2005


male_sling_problems
Regular Member


Date Joined Nov 2009
Total Posts : 134
   Posted 5/11/2010 5:06 PM (GMT -6)   
Hello Frank,

After ten years of experimenting, have also found a pretty good solution for my difficulties with ED.

My insurance will supply 36 Cialis pills per 90 days. I order the 20 mg dosage, split them three ways with sharp diagonal pliers (used for electronic work), and take 1/3 pill per day.

This is my answer to Cialis's one a day pill of 5mg. I only cut one pill at a time. So with the few crumbs that I loose when cutting, I should be pretty close to the 5mg per day. I should mention that my insurance does not pay for the 2.5mg or 5mg for the one a day treatment.

I have found this significantly increases blood flow to the penis and I often awake with erections like 50 years ago. This has worked the best for me of any pill therapy.

Best regards,

John

Post Edited (male_sling_problems) : 5/11/2010 8:22:27 PM (GMT-6)


johngpt
Regular Member


Date Joined Jun 2011
Total Posts : 20
   Posted 6/6/2011 3:19 PM (GMT -6)   
GPops, it's been a year since you last posted. How have you been?
John
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